Videos
In this week’s video, Dr. Brian G.M. Durie recommends ways myeloma patients can avoid infections, such as using preventative antibiotics, getting certain vaccines, or using an air purifier.
BOTTOM LINE:
Talk to a doctor about ways to avoid and to manage infections…
News Article
The International Myeloma Foundation congratulates Myeloma Canada’s Co-Founder Aldo Del Col for the Meritorious Service Medal, which was awarded by Julie Payette, the Governor General of Canada, in recognition for Del Col’s exceptional service to the community.
Created by Queen Elizabeth II, the…
Videos
Dr. Joseph Mikhael on ASCO 2018 Abstracts Addressing Monoclonal Antibodies in Myeloma
Dr. Joseph Mikhael, Chief Medical Officer at the International Myeloma Foundation, highlights an ASCO 2018 session about monoclonal antibodies used to treat multiple myeloma. Dr. Mikhael comments on the…
Videos
Dr. S. Vincent Rajkumar on the Cost of Cancer Drugs
In this video, Dr. S. Vincent Rajkumar (Mayo Clinic, Rochester, MN) gives his point of view on how to lower the cost of cancer drugs to make them more affordable and accessible to patients in the U.S. and around the world. Dr. Rajkumar cites…
Videos
Dr. Ajai Chari Discusses a Phase 3 Daratumumab Combination Therapy Study from ASCO 2018In this video, Dr. Ajai Chari (Icahn School of Medicine, Mt. Sinai Hospital - New York) discusses an update of a phase III study that looks at…
Videos
Dr. Paul Richardson Discusses the Results of the OPTIMISMM study
In this video, Dr. Paul Richardson (Dana Farber Cancer Institute, Boston) discusses the results of the OPTIMISMM study, an international phase III trial that compares the three-drug combination of pomalidomide + bortezomib +…
Videos
In this week's video, Dr. Brian G.M. Durie discusses the ways patients can learn from one another at IMF-affiliated support groups.
BOTTOM LINE:
Support groups are a great way to find out about particular treatments and to hear patients’ stories
Videos
In this week's video, Dr. Brian G.M. Durie presents possible solutions for patients who may experience diarrhea while on Revlimid.
BOTTOM LINE:
If you have Revlimid-induced diarrhea, talk about dose adjustments with your doctor or consider taking colesevelam…
News Article
North Hollywood, CA, May 23, 2018—The International Myeloma Foundation (IMF) today announced the recipients of the 2018 IMWG Awards, given annually by the International Myeloma Working Group, a research division of the IMF…
Videos
In this week’s video, Dr. Brian G.M. Durie explains why a Freelite test may be inaccurate.
BOTTOM LINE:
Discuss abnormal Freelite test results with your doctor, and if necessary, test further by sending samples to the Binding Site.
Videos
In this week’s video, Dr. Brian G.M. Durie explains which criteria and tests determine if a patient’s myeloma is smoldering or active.
BOTTOM LINE:
Only treat myeloma if test results are absolutely clear and show active disease.
Audio
Dan was diagnosed with multiple myeloma in 2013. After an unsuccessful transplant, he was put on a different treatment regimen. Since then, he has been living symptom-free. He now shares his story about his journey and how knowledge is key.
Audio
In Memoriam
Diagnosed with myeloma on her 60th birthday, Linda lived well with myeloma for many years. The IMF was saddened to learn that she passed as of recent. We have preserved her story of her journey with the disease here.
Videos
In this week’s video, Dr. Brian G.M. Durie explains that if you relapse on Darzalex, it is important to carefully discuss all treatment options with your doctor.
BOTTOM LINE:
If you relapse while on Darzalex, consider all options including upping dosing, new combination…
Videos
In this week’s video, Dr. Brian G.M. Durie explains why genetic sequencing tests are not yet precise enough to use for choosing myeloma therapies.
BOTTOM LINE:
We may be able to specify myeloma treatments based on genetic subtypes in the future, but not quite yet…
News Article
The James Zadroga 9/11 Health and Compensation Act is a U.S. law to provide health monitoring and financial aid to the first responders, volunteers, and survivors of the September 11, 2001 attacks. On May 9th, the Staten Island…
Videos
In this video, Dr. Brian G.M. Durie explains that second transplant and certain novel therapies may work well for early relapse of myeloma.
BOTTOM LINE:
Many options are available in cases of early relapse, including second transplant or the use of novel therapy…
News Article
NORTH CHICAGO, Ill. and NORTH HOLLYWOOD, Calif., March 21, 2018 /PRNewswire/ -- AbbVie (NYSE: ABBV), a research and development-based global biopharmaceutical company, and the International Myeloma Foundation (IMF) today announced they have entered into a collaboration to…
Videos
In this week’s video, Brian G.M. Durie explains that even though Revlimid and Pomalyst may reduce white blood cell counts, they do not…
News Article
On Tuesday, March 6, 2018, the Patients Equal Access Coalition (PEAC), which is run by the IMF advocacy department, held an event in Washington, D.C. to relaunch the coalition as the Coalition to Improve Access to Cancer Care (CIACC). The relaunch effort is part of a larger process to enhance…
Videos
In this week’s video, Dr. Brian G.M. Durie explains that supplements might have side effects or might interfere with medications for myeloma.
BOTTOM LINE:
Discuss the use of supplements with your doctor, and do not use supplements as a substitute…
Videos
In this week’s video, Dr. Brian G.M. Durie emphasizes the importance of correctly diagnosing and staging myeloma before beginning treatment for the disease.
BOTTOM LINE:
Seek out a myeloma expert to ensure you only begin treatment when absolutely…
News Article
NORTH HOLLYWOOD, CA, Feb. 22, 2018 – The International Myeloma Foundation (IMF) is harnessing the power of myeloma patients, their families, and the myeloma community at large to raise awareness of the disease during Myeloma Action Month (MAM), starting March 1, 2018. This year’s…
Videos
In this week’s video, Dr. Brian G.M. Durie advises that patients discuss with their doctors the many aspects of various treatments, including possible toxicities, cost issues, the patient’s overall health, and the patient’s age.
BOTTOM LINE:
Discuss with your doctor if…
News Article
A new year is often characterized by renewed hope, promises kept, and a sense of energy and purpose. In the world of nonprofit cancer research, it is all this and so much more. It is also an opportune time to accelerate progress toward our ultimate goal: finding the cure.
The International…
Videos
In this week’s video, Dr. Brian G.M. Durie explains that the underlying biology of light chain myeloma is very similar to IgG or IgA myeloma.
BOTTOM LINE:
If you have light chain myeloma, you are not at a higher risk for poorer outcomes than those patients with other…
How do the two approaches to treating high-risk smoldering multiple myeloma (HRSMM) patients differ?
Videos
In this week’s video, Dr. Brian G.M. Durie compares two trials that treat high-risk smoldering multiple myeloma — the CESAR trial and the CENTAURUS trial.
BOTTOM LINE:
The IMF’s Black Swan Research Initiative is excited about the CESAR trial and will conduct…
Videos
In this week’s video, Dr. Brian G.M. Durie explains the somewhat confusing results of the IFM 2009 trial.
BOTTOM LINE:
With longer follow-up, the IFM 2009 trial may be able to demonstrate longer overall survival of patients in…
News Article
NORTH HOLLYWOOD, CA, January 22, 2018– The International Myeloma Foundation (IMF) – improving the quality of life of myeloma patients while working toward prevention and a cure – is pleased to announce that myeloma expert Dr. Joseph Mikhael has joined the IMF as Chief Medical…
Videos
In this week’s video, Dr. Brian G.M. Durie addresses why the cost of patented drugs, such as Revlimid, have not yet been reduced.
BOTTOM LINE:
The cost of drugs is important to all of the myeloma community, and the IMF will continue to take part in…
Videos
Maria-Victoria Mateos, MD, PhD
University Hospital of Salamanca
Salamanca, Spain
Introduction: Smoldering Multiple Myeloma (SMM) is an asymptomatic plasma cell disorder that includes patients with different risk of progression to Multiple Myeloma (MM). The Spanish Myeloma…
Videos
Maria-Victoria Mateos, MD, PhD
University Hospital of Salamanca
Salamanca, Spain
Introduction: VMP is a standard of care (SOC) for transplant ineligible NDMM. Daratumumab (D), a human IgGκ anti-CD38 monoclonal antibody with a direct on-tumor and multifaceted immunomodulatory…
Videos
Cristina J. Gasparetto, MD
Duke University Cancer Center,
Durham, NC, USA
Introduction: Selinexor is a first-in-class Selective Inhibitor of Nuclear Export (SINE) compound that binds and inactivates Exportin 1 (XPO1). Selinexor, as a single agent, or in combination with…
Videos
Rafat Abonour, MD
Simon Cancer Center
Indiana University School of Medicine
Indianapolis, IN, USA
Introduction: Novel therapies have improved the median overall survival (OS) for newly diagnosed multiple myeloma (NDMM). In an unselected population of NDMM patients, the…
Videos
Rafat Abonour, MD
Simon Cancer Center
Indiana University School of Medicine
Indianapolis, IN, USA
Introduction: t(11;14) is a common cytogenetic abnormality found in ~15% of patients (pts) with MM. Although t(11;14) is historically associated with favorable or neutral…
Videos
Bruno Paiva, PhD
University of Navarra
Clínica Universidad de Navarra
Pamplona, Spain
Background: MRD is an established biomarker to evaluate treatment efficacy, define patients at risk based on persistent MRD, and eventually, act as surrogate for prolonged survival based on…
News Article
From research grant award dinners to new revelations in the field of myeloma to heartfelt patient experiences blogged live from the event, the IMF’s presence at the 59th annual meeting of the American Society of Hematology this December 8, 2017 to…
News Article
On the 1st anniversary of the 2016 launch of the iStopMM* research study, the IMF met with the project’s research team for a status report.
This Black Swan Research-supported project is the largest population-based myeloma study ever attempted. The new iStopMM clinic is now open for business at…
Videos
In this week’s video, Dr. Brian G.M. Durie explains how to treat other medical issues that may emerge for myeloma patients.
BOTTOM LINE:
Proceed with recommended medical treatment for other conditions as if myeloma is not a factor.
News Article
Here are photos from the 2017 Comedy Celebration! Don't miss out next year and save the date!
EXCLUSIVE LIVE PRE-SHOW EVENT from the 2017 Comedy Celebration:
Co-hosted by Miss Black USA Daphne Lee and TV personality Alie Ward
IMF live stream offers…
Videos
In this week's video, Dr. Brian G.M. Durie explains why amyloidosis may occur in some multiple myeloma patients.
BOTTOM LINE:
Both special tests for amyloidosis and bone scans are important for diagnosis. If amyloidosis is diagnosed, then novel…
News Article
This #MyelomaVoices story was submitted on March 9, 2017 by Rene Hicks.
When diagnosed with smoldering multiple myeloma, my oncologist told me that because I was so healthy and had such a positive outlook, I would likely die of old age, not myeloma.
Because I didn’t expect…
News Article
On Thursday, October 12, 2017, President Trump made two major moves on healthcare. In the morning, Trump signed an executive order directing an overhaul of major federal regulations. The primary area of change is with what are known as association health plans (AHPs), which allow small-business…
Videos
In this week’s video, Dr. Brian GM Durie talks about benefits and risks of the combination therapies of Kyprolis and dexamethasone (Kd), and Kyprolis, Revlimid, and dexamethasone (KRd).
BOTTOM LINE:
Kyprolis as a doublet or as a triplet is an…
Videos
click on the image above to watch the teleconference
(to view the webinar in fullscreen, click on the bottom right square icon beside the YouTube logo)
Join the IMF’s Nurse Leadership Board members, Beth Faiman and Charise Gleason, for a Living Well with Myeloma webinar on…
News Article
In October 2017, the Clinical Journal of Nursing Oncology published a “Multiple Myeloma” supplement authored by the International Myeloma Foundation’s Nurse Leadership Board. This supplement provides downloadable PDFs of research-…
Videos
In this week's video, Dr. Brian GM Durie suggests ways to manage side effects if you are on a triplet combination.
BOTTOM LINE:
Make dose adjustments before stopping the combination of Rev, dara, and dex; or use pomalidomide instead of Revlimid…
News Article
Selinexor is a novel, first-in-class, orally administered “Selective Inhibitor of Nuclear Export” (SINE™) compound. Selinexor blocks the ability of cancer cells to export tumor suppressor proteins from their cell nuclei. This restores the tumor suppressor proteins’ ability to detect cancerous DNA…
Videos
In this week’s video, Dr. Brian GM Durie explains why myeloma protein spikes after an ASCT are most likely not cause for alarm.
BOTTOM LINE:
If your myeloma protein spikes after ASCT, monitor closely and test further.…
News Article
The 8th annual Summit of the International Myeloma Working Group (IMWG) took place in Madrid, Spain, from June 19th-21st. More than 100 of the world’s top myeloma specialists gathered to review the IMWG’s recent achievements, address problems, and set an agenda for the coming year’s research.…