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Take a front seat at the most sought-after satellite symposium at the annual Oncology Nursing Society meeting. Members of the IMF’s exclusive Nurse Leadership Board (NLB) address the most important issues in multiple myeloma nursing. In these Nurse Leadership Board videos from the Oncology Nursing…
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To show your support for the IMF year-round, visit the IMF online store to stock up on our branded merchandise, such as Myeloma Warrior T-shirts, sweatshirts, coffee mugs, baseball caps, and more. You can look great…
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What Is the International Myeloma Foundation's (IMF) Global Myeloma Action Network, or GMAN?
The Global Myeloma Action Network® (GMAN®) is a global coalition of myeloma patient organizations representing over 40 countries.
GMAN works in collaboration with patients,…
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Welcome to Veterans Against Myeloma (VAM)A Growing Team of Veterans Battling Multiple Myeloma (MM).Over the years, the IMF has been a resource for veterans seeking information about myeloma. Talking with vets has made us aware that many are in need of resources to better understand their diagnosis…
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Multiple myeloma (MM) is one of the most common hematologic malignancies, with 114,252 new cases and 80,119 deaths worldwide annually in 2012, comprising 0.8% and 1% of all cancers, respectively[1]. Its incidence is known to vary by ethnicity, with Asians showing a relatively lower incidence than…
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The Asian Myeloma Network (AMN) has developed their own clinical trial network to facilitate early access to drugs in Asian countries and to conduct clinical trials/studies that answer questions relevant to Asians.
How the IMF's Asian Myeloma Network Conducts Its Studies
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Learn about the members of the IMF's Nurse Leadership Board, a professional partnership that represents nurse experts caring for multiple myeloma patients at leading medical centers.
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IMF’s Senior Director, Member Events talks about how easy it is to organize a Member FUNraiser for the IMF.
-->The IMF's Community Fundraising Program What sets our Community Fundraising Program apart from all the others? Two words: Support and Guidance. You can fundraise for…
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Join an Event to Help Improve Lives, Find the Cure
This calendar includes upcoming multiple-myeloma-related events attended by members of or hosted by the International Myeloma Foundation.
Educational events such as IMF Regional Community Workshops and Patient & Family Webinars…
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A gift to the IMF is an investment in our mission. It is trust in the work we do every day to advance research and care for myeloma patients. With your help, we can continue to develop effective solutions for something that is as life-altering and devastating as myeloma. Together, we can make life…
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Kidney function tests are part of the Comprehensive Metabolic Panel (CMP)—a key test in the diagnosis and monitoring of multiple myeloma and a part of a routine physical exam. The International Myeloma Working Group (IMWG) and…
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Advocacy is one of the four core pillars of the International Myeloma Foundation. We are committed to improving the quality of the lives of myeloma patients, raising myeloma awareness, assisting those in the U.S. and abroad to navigate healthcare policies, and to increase access to multiple myeloma…
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When you're diagnosed with multiple myeloma (MM), the first step is frontline, or first-line, treatment. First-line treatment for MM is the first step in managing the disease and improving your quality of life. This initial therapy aims…
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Black Swan Research…
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Call us. We’re here for you.
The InfoLine is the IMF's multiple myeloma cancer information line. The IMF’s InfoLine is here for you for your myeloma-related questions and concerns. …
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Why Assistance for Cancer Patients MattersTravel and housing support make care more accessible and manageable for people living with multiple myeloma and other cancers. These services help address both practical and emotional challenges during treatment: Access to…
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From monthly giving to member events, there are many ways to donate to the International Myeloma Foundation and pledge your support. As a registered 501(c)3 nonprofit organization, the IMF relies on your gifts to continue growing and improving our core programs and research initiatives. To…
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CYTOXAN® (cyclophosphamide) was first approved by the U.S. Food and Drug Administration (FDA) in 1959, and is still widely used to treat multiple myeloma, as well as many other types of cancers and autoimmune diseases. It belongs to the class of drugs known as alkylating agents, which inhibit DNA…
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This multiple myeloma FAQ page answers some of the most commonly asked questions about this illness. Learn more about multiple myeloma, what causes it, and what you can do if you or a loved one is diagnosed with the disease.
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Multiple myeloma (MM) patients must undergo a careful diagnostic workup to stage their disease. Before developing active myeloma, patients pass through two earlier disease stages — monoclonal gammopathy of undetermined significance (MGUS) and smoldering multiple…
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What Are Steroids?A steroid is a type of hormone. Steroidal hormones are produced by the body. The synthetic equivalents of some steroids can be manufactured in a laboratory. DexamethasoneDexamethasone is often referred to as “dex” for short. Some brand names for dexamethasone are …
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Myeloma is a cancer of the plasma cells. Normal plasma cells live in the bone marrow and produce normal polyclonal (many types) antibodies that can fight different types of infections. For example, when you are vaccinated, the plasma cells learn to produce the antibodies needed to protect you…
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Multiple myeloma is not a single, uniform disease. It includes several types, distinguished by the proteins produced by cancerous plasma cells. Learning about the different types of multiple myeloma will help you better understand your diagnosis and the treatment options available to you. What…
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Multiple myeloma (MM) is a cancer of the plasma cells. This medical condition causes an individual's bones to progressively break down. The cancerous plasma cells significantly impact bone balance, leading to bone disease in multiple myeloma (MM), also known as myeloma bone disease (MBD).…
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Palliative Care for Multiple MyelomaThe World Health Organization defines palliative care as specialized medical care focused on enhancing the quality of life for patients facing the challenges associated with terminal illnesses. It…
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As a multiple myeloma patient, you may be treated with steroids. It is important to know the benefits, side effects, and possible withdrawal issues associated with steroid use. Always follow your healthcare team's advice in adhering to steroid treatment. Steroids As a Treatment for…
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What Is Autologous Stem Cell Transplant (or Bone Marrow Transplant)?The medical term for autologous stem cell transplant (ASCT) is “high-dose therapy (HDT) with stem cell rescue.” In myeloma, the use of HDT was introduced in the 1990s. In the 2000s, the FDA approved novel treatment options for…
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The International Myeloma Working Group® (IMWG) has published dozens of research studies and treatment guidelines on multiple myeloma and its related disorders.
From doctors to patients, the goal of these publications is to help anyone better understand aspects of myeloma. The information…
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Bone disease is a common symptom of multiple myeloma: 70%–80% of patients are found to have bone disease at diagnosis.For these patients, and for those who develop bone disease in the course of their myeloma, imaging studies are helpful to assess the amount and distribution of myeloma lesions…
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Myeloma cells grow in the bone marrow, and the only way to assess their properties is to remove a sample of these cells and to analyze them. Some of these tests can be done by a pathologist looking through a microscope and others require sophisticated computers with customized software programs.…
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This important group of blood and urine tests is used to assess the amount and activity of myeloma. These tests measure the monoclonal protein that myeloma cells secrete into the blood and/or urine.Serum Quantitative Immunoglobulins (QIg)REFERENCE RANGE for patients ≥ 18 years old…
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by Teresa Miceili, RN, BSN, OCN (Mayo Clinic-College of Medicine,…
News Article
Know your risks
Black men and women are diagnosed with myeloma at…
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Diagnosed with multiple myeloma in 2012, Frank Morelli shares how he and his wife went from being overwhelmed with their own situation to helping others at their support group.
News Article
Celebrate Your Milestone: Donate Your Event to Support Myeloma Research Donate Your EventAre you hosting an event to celebrate a milestone occasion – birthday, wedding, anniversary, retirement, baby or wedding shower? Let the IMF be part of your celebration, by adding a public awareness…
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Are You Newly Diagnosed?If you've recently received a myeloma cancer diagnosis, you're not alone. This condition affects thousands of people every year. At the International Myeloma Foundation (IMF), we're here to help you from diagnosis to long-…
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Does Multiple Myeloma Show Up in Blood Tests?A blood test can detect markers and products of abnormal plasma cells, such as M-proteins and free light chains, which are indicators of multiple myeloma. It can also detect the effects of the disease, including low blood counts due to bone marrow…
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In Memoriam
The IMF was saddened to learn that John Auerbacher passed of myeloma in September of 2020. Here, he shares his journey of living with the disease.
News Article
At the International Myeloma Foundation, we work with people like you to create and produce fundraisers that benefit myeloma research, support, education, and advocacy.
…
News Article
How to Organize a Successful Golf Fundraiser for Myeloma AwarenessDo you want to give back to the multiple myeloma community, but you aren’t quite sure how to do so? The International Myeloma Foundation (IMF) is here to help you give back in a way that is fun and fruitful for everyone…
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How to Host a Bake Sale or Afternoon Tea to Support Myeloma ResearchWhat could be better than knowing you're helping a great cause while sipping on tea or biting into a pastry? Hosting an afternoon tea or a bake sale to raise funds for multiple myeloma is a light-hearted way to make a serious…
Videos
In this video, Dr. Brian G.M. Durie explains how high-dose melphalan therapy that precedes an ASCT may cause some side effects and how an ASCT itself may result in some low-risk complications.
BOTTOM LINE:
Autologous stem cell transplant is still a recommended therapy,…
News Article
At the IMF, our goal is to help others better understand multiple myeloma. That’s why we host educational outreach events. With the IMF’s Patient & Family Seminars (P&FSs) and Regional Community Workshops (RCWs), we work to arm patients, families, and caregivers with the most up-to-date…
News Article
Dr. Brian G.M. Durie explains the new and exciting current trends in myeloma treatment and research with this update from the three major medical meetings held in June 2018 – the American Society of Clinical Oncology (ASCO), the European Hematology Association (EHA), and the International Myeloma…
News Article
If you or someone you love is diagnosed with multiple myeloma, the journey ahead may seem confusing. Fortunately, there are people who can help you understand what you are facing; many of those people are attendees of IMF support groups.
IMF support groups are groups held for patients to learn…
Videos
click on the image above to watch the teleconference
(to view the webinar in fullscreen, click on the bottom right square icon beside the YouTube logo)
In this video, Dr. Noopur S. Raje and Beth Faiman, PhD, RN, MSN, APRN-BC, AOCN discuss the importance of bone health and treatment…
Videos
In this video, Dr. Brian G.M. Durie explains which lifestyle choices can improve myeloma patients’ outcomes.
BOTTOM LINE:
Live as healthy a lifestyle as possible to slow the progression of myeloma.
Videos
Ambitious iStopMM Study Screens Iceland's Population For Myeloma Precursor MGUS
The goal of the study is to to identify and treat monoclonal gammopathy of undetermind significance (MGUS) at its earliest stage, before it has a chance to develop into full-blown multiple myeloma.
As the…