At the International Myeloma Foundation (“IMF”, “Company”, “we” or “us”), your privacy is important. We provide you this Privacy Policy (the “Policy”) to explain how we treat your Personal Information provided to us either offline or online at this this website (the “Site”). The IMF is committed to protecting the security of your personal and health information as well as maintaining your privacy. Your information is encrypted when transmitted over the Internet. It is stored on computer servers with limited access in controlled facilities. Your personal and health information is never shared without your permission. For more information about how the IMF protects the privacy of your personal and health information, please contact Jennifer Scarne, CFO, at 800-452-CURE or via e-mail at [email protected].

This Policy is intended to help you understand the kinds of information we may gather about you when you visit the Site or use certain of the services offered on the Website, how we may use and disclose the information, and how you can control, correct and/or update the information. We also have implemented a Donor Privacy Policy that explains how we treat information relating to our donors.

By visiting this Site, you are accepting the policies and practices described in this Policy. Each time you visit the Site, you expressly consent to our collection, use and disclosure of the information that you provide as described in this Policy and our Terms of Use

Information We Collect 

When you visit the Site, we may collect and use personally identifiable information about you, as well as other information.  “Personally Identifiable Information” may include your name, address, email address, and other similar information that can be used to identify you.  We may also collect and/or track usage information, which is information generated automatically as you navigate through the Site.  More specifically, when you use the Site, we may collect and/or track:

•    Details of your visit to the Site and the resources you access, including, but not limited to, traffic data, location data, and other communication data, including your Internet Protocol address, browser type, the date and time you accessed or left the Site, and which pages you viewed.  
•    Information that you provide directly to us by filling in forms on our Site, including your name, email address, street address, telephone number, or other information. 
•    Information provided when you communicate with us for any reason, including information you provide in any emails to us.  

We and our vendors, consultants, agents, and other service providers (collectively, “Service Providers”) may collect and store your usage information in log files as well as through the use of cookies, web beacons, pixel tags, embedded scripts, and other tracking technologies now and hereafter developed (“Tracking Technologies”).  We use Tracking Technologies to, among other things, better serve you with more tailored information for our services, and for those of third parties, facilitate your ongoing access to and use of the Site, and collect and store information about your use of the Site.  Users may decline the use of cookies by resetting their web browser.  However, please be aware that if you block cookies, some Site functionality may be lost.  

Use of Your Information

We use the information we collect from you primarily to enable us to provide our service to you in the best possible manner.  Personally Identifiable Information may be added to our database and used for future calls and mailings regarding Site updates, new information and services, fundraising requests, and other announcements.  In addition, your information may be used for the following purposes: 

•    To protect our rights, property, or to enforce the Terms and Conditions of this Site;
•    To comply with laws, regulations, court orders, or other legal processes;
•    To contact you or otherwise respond to your requests and/or inquiries;
•    For editorial and feedback purposes;
•    For marketing and promotional purposes;
•    For a statistical analysis of user behavior;
•    To improve the content of our Site;
•    To customize the content and layout of the Site;
•    To administer the Site, including by monitoring and analyzing our Site traffic and usage patterns.  

Sharing Your Information

We believe that you should have control over who receives the personal information you provide to us as a donor (such as your name, address, zip/postal code, e-mail address, telephone number). Therefore, we do not trade, sell or share your personal information with third parties unless they are carrying out business activities, operations or functions on our behalf.  Further, we do not send donor mailings on behalf of other organizations.

We may share your Personally Identifiable Information with trusted third parties or our affiliates to: 

•    Assist us in providing our services to you, including by acting on our behalf to send postal mail and email, remove repetitive information from mailing lists, analyze data, provide marketing assistance, process credit card payments, and provide website assistance; 
•    Compile statistics and reports regarding our audience and the visitors of our Site and services; or
•    Deliver interest-based emails. 

Such third parties have access to Personally Identifiable Information as needed to perform their functions, but they are not allowed to use it for other purposes.  

Other Circumstances: We may disclose your Personally Identifiable Information to third parties if we have a good faith belief that disclosure is necessary to: 

•    Comply with applicable laws, regulations, legal process (such as a subpoena), or enforceable government request; or 
•    Protect against harm to our rights, property, or safety, our visitors, or the public as required or permitted by law; or 
•    Fulfill our obligations as part of any actual or proposed purchase, merger or acquisition of any part of our business, provided that use of such Personally Identifiable Information shall be limited to those purposes disclosed in this Privacy Policy.


We place great importance on the security of all Personally Identifiable Information associated with our customers.  We use commercially suitable physical, electronic, and managerial procedures to safeguard and secure the information we collect on our Site.  These procedures include, but are not limited to, firewalls, intrusion detection, and Site monitoring.  We also limit access to any Personally Identifiable Information we receive to authorized personnel that need access in order to perform their jobs.  However, no data protection procedures are entirely infallible.  As a result, while we strive to protect your Personally Identifiable Information, we cannot guarantee that it will be 100% secure. Your use of our Site, and therefore your transmission of data to our Site, is done entirely at your own risk. 

Donor Policy

It our policy to maintain the highest level of confidentiality with respect to donor information. We value your support and respect your privacy rights. The IMF will only share or sell personal information once the donor has given the IMF specific permission to do so.  We will use and protect your information in accordance with this Privacy Policy. 

Third Party Websites 

Our Site may contain links to other sites, including those of third parties or business partners.  While we seek to link only to sites that share our high standards and respect for privacy, we cannot be responsible for the privacy practices other websites use.  By accessing other third party websites or applications through our Site, you are consenting to the terms and privacy policies of those websites.  It is possible that other parties may collect Personally Identifiable Information about your online activities over time and across different web sites when you use our Site. 

Access to Personally Identifiable Information

Upon request via email ([email protected]), we will provide to users a summary of any Personal Information retained by us. Users may modify, correct, change, or update their Personal Information or cause their Personal Information to be removed from our database. We will only send personal records to the email address on file for the user name associated with it.  For California residents, please consult the “California Privacy Rights” section above for additional considerations.  For European citizens, please consult the “International Visitors and European Citizen Privacy Rights” section below for additional considerations.

International Visitors and European Citizen Privacy Rights 

Our Site is hosted and operated in the United States (“US”).  By using the Site, you are consenting to the transfer of your Personally Identifiable Information to the US.  If you are accessing our Site from outside the US, please be advised that US law may not offer the same privacy protections as the law of your jurisdiction. 

If you are a European citizen, you have the right to request that we: 

•    Provide you with information regarding whether we process your data, including any details relating to such processing;
•    Correct any inaccurate data we may have about you without undue delay;
•    Complete any incomplete information that we may have about you;
•    Under certain circumstances, erase your Personal Data without undue delay;
•    Under certain circumstances, be restricted from processing your data;
•    Under certain circumstances, furnish you with the Personal Data which you provide us within a structured, commonly used and machine-readable format.

Where we process your Personal Data solely on the basis of your consent, European citizens have the right to withdraw consent to our processing Personal Data at any time.  This will not affect the lawfulness of our processing before the withdrawal.  European citizens also have the right to lodge a complaint with their data protection supervisory authority at any time.  

The exercise of the above rights might be subject to certain conditions and we might require further information before we can respond to your request.

California Visitors 

If you reside in California, you have the right to ask us one (1) time each year if we have shared Personal Information with third parties for their direct marketing purposes.  At the present time we do not release information to third parties for marketing purposes.  To make a request, please send us an e-mail ([email protected]).  Indicate in your e-mail that you are a California resident making a “Shine the Light” inquiry.  

Children’s Online Privacy Protection Act of 1998 (“COPPA”) Compliance 

We are concerned about the safety of children who use the Internet. We want you and your family to feel secure when visiting the Site. We comply with COPPA. We do not collect or post information from children under the age of 13 (“child” or “children”) unless we have verifiable consent from a parent or guardian. If we have collected information from a child, the child’s parents may access information at any time by contacting us at [email protected]. If the parent requests that we delete their child’s information, we will delete it. We do not and will not provide any personally identifying information collected from children, regardless of its source, to any third party for any purpose whatsoever. No information collected from children is used for any marketing or promotional purposes whatsoever.

Opting Out 

You may unsubscribe from our marketing communications by clicking on the “unsubscribe” link located on the bottom of our emails or by sending us an email at the address provided below.

Privacy Policy Updates

This Privacy Policy was last updated on June 25, 2019

We update the Privacy Policy from time to time, so please review it regularly.  If we materially change our Privacy Policy, we will notify you by posting a notice on the Site.  Your continued use of the Site will be deemed your agreement that your information may be used in accordance with the new policy.  If you do not agree with the changes, then you should stop using the Site and notify us that you do not want your information used in accordance with the changes.

Contacting Us 

We welcome any questions, comments, or concerns you may have regarding this Privacy Policy.  Please do not hesitate to contact us by email ([email protected])

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