News Article
September 10, 2018 (Los Angeles, CA) – The International Myeloma Foundation (IMF), the first and largest myeloma-specific foundation in the world, announced today the all-star lineup for the IMF 12th Annual Comedy Celebration taking place on…
News Article
The International Myeloma Foundation (IMF) has earned the highest, four-star rating from online charity evaluator, Charity Navigator, for the 14th time.
Charity Navigator praised the IMF for its excellent fiscal management and its unwavering commitment to transparency and accountability. Based…
Videos
If you have myeloma, should you undergo tests for DNA sequencing?
BOTTOM LINE:
For myeloma patients, DNA sequencing is helpful in research trials, but it is not necessary for the day-to-day management of the disease.
News Article
NORTH HOLLYWOOD, CA, September 13, 2018– Michael Tuohy, who was diagnosed 18 years ago with the blood cancer multiple myeloma, will throw the ceremonial first pitch at the Houston Astros baseball game on September 16 as fellow patients cheer him on. Michael is representing the…
Page
A person living with myeloma needs support to reduce the physical and emotional impact of the diagnosis and to promote living well with this illness. The IMF encourages a parallel approach — treating myeloma and managing side effects. Early use of supportive care measures is just as…
Page
Due to new therapeutic options, patients with newly diagnosed and relapsed multiple myeloma are living longer than they did just one decade ago. Therefore, patients' general health must also be maintained throughout the course of their disease. Proper maintenance of pre-existing or co-morbid…
Page
Multiple myeloma patients are living longer than ever before. Therefore, mobility, fall-risk assessment, and planned activity are important for these patients’ long-term care plans. Given the risks of injury and/or skeletal issues, multiple myeloma patients should have regular assessments…
Page
Overview of Staging and Classification Systems in Myeloma Key TakeawaysStaging measures the aggressiveness of your myeloma.Risk stratification predicts how your myeloma…
Page
Bone disease is a common symptom of multiple myeloma: 70%–80% of patients are found to have bone disease at diagnosis.For these patients, and for those who develop bone disease in the course of their myeloma, imaging studies are helpful to assess the amount and distribution of myeloma lesions…
Page
Myeloma cells grow in the bone marrow, and the only way to assess their properties is to remove a sample of these cells and to analyze them. Some of these tests can be done by a pathologist looking through a microscope and others require sophisticated computers with customized software programs.…
Page
Donor-advised funds allow you to donate to the IMF with gifts of stock, securities, or IRA distributions. These options are the best ways to receive additional tax benefits through your philanthropic giving. Should you or your financial advisor have additional questions, please contact the…
Page
Doctors order a range of tests to diagnose and stage myeloma accurately. They also use testing to determine the type of myeloma a patient has and to monitor how the patient responds to treatment. Find…
Page
International Myeloma Foundation:
4400 Coldwater Canyon Ave., Suite 300
Studio City, CA 91604, USA
818-487-7455
[email protected]
www.myeloma.org
Media Contact:
Peter Anton
Vice President, Marketing
panton@…
Page
Tribute or memorial gifts are a touching way to honor a loved one living with myeloma or remember those who have passed while continuing to make a difference in the lives of so many.Tribute/Memorial GiftsA tribute gift offers a meaningful way to celebrate a special person, while contributing…
Page
Receiving a multiple myeloma diagnosis can feel overwhelming. The International Myeloma Foundation (IMF) recommends consulting a myeloma specialist to determine the best course of action. The next steps may include baseline testing, staging…
Page
Give back to the multiple myeloma community and help the IMF with our mission of Improving Lives, Accelerating the Cure. Learn about our member FUNdraisers, our Amazon shopping program, our IMF Merchandise store, and more.Community FundraisersCommunity Fundraisers are created from…
Page
You can live well with multiple myeloma! Thanks to advances in treatment, people with multiple myeloma are living longer and fuller lives. While myeloma is incurable, there are many things you can do…
Page
Government Health Insurance and BenefitsIf you're living with multiple myeloma, supporting a loved one or providing care, these government programs offer valuable assistance with health insurance, prescription coverage and financial benefit advice. Explore these links for information about…
Page
Facing a multiple myeloma diagnosis can be overwhelming, but clinical trials offer hope for new and better treatments. If you're exploring your treatment options, this page will help you understand what clinical trials are, how they work, and how to find one that may be right for you.
What Is a…
Page
Our International Partners and AffiliatesKorea Blood Disease & Cancer Association The Korea Blood Disease & Cancer Association (KBDCA) is a “non-profit organization that helps patients to cope with the disease through…
Page
The International Myeloma Foundation: Improving Lives, Finding the Cure Founded in 1990, the International Myeloma Foundation (IMF) is the world’s leading organization dedicated to multiple myeloma. Our Mission: Improving the quality of life of myeloma patients…
Page
The International Myeloma Foundation, 501(c)(3) not-for-profit charity, began operations in 1990. Research to find a cure is paramount to our mission, while patient support, education, and advocacy are our core values. Thanks to YOU—our generous donors, advocates, and…
Page
The International Myeloma Working Group Summit is held annually each June, between two of the year’s largest cancer conferences, the American Society of Clinical Oncology (ASCO) in Chicago and the European Hematology Association (EHA).
Report from the 2018 Summit of the International Myeloma…
Page
Cancer Pain
Learn more about cancer-related pain and how it can be managed and treated at the American Cancer Society.…
Page
Do you want to receive the latest myeloma news and research for free, directly in your email inbox? You can with the Myeloma Minute!
Subscribe below to receive weekly email newsletters with up-to-the 'minute' information about multiple myeloma.
The Myeloma Minute includes:
blogs…
Page
A quarterly publication of myeloma research from our medical editors
The IMF’s quarterly journal features scientific and clinical news and stories about education and awareness programs, patient meetings, and advocacy activities. Available online and by mail.
Do you want to read about the…
Page
The International Myeloma Working Group® (IMWG) emerged from the IMF’s Scientific Advisory Board which was established in 1995. It became clear that there was a need to conduct collaborative research and produce consensus guidelines for the myeloma community. The first consensus guideline was…
Page
Established by the International Myeloma Foundation (IMF) at a meeting in Singapore in 2011, the Asian Myeloma Network® (AMN) is the first of its kind in the region and is comprised of myeloma experts from China, Hong Kong, Malaysia, Taiwan, Japan, Philippines, Singapore, South Korea, Vietnam, and…
Page
When multiple myeloma is diagnosed, the stage of the disease varies from patient to patient. The most commonly used clinical staging system, the Durie-Salmon Staging System, demonstrates the correlation between the amount of myeloma and the damage it has caused, such as bone…
Page
Shared Experiences Help To Better Understand the Myeloma Journey
Support groups empower patients and care partners with information, insight, and hope. The IMF provides educational guidance to a network of over 160 myeloma-specific groups. We are happy to connect you with other survivors and…
Page
The IMF has teamed up with CARS (Charitable Adult Rides & Services) to facilitate our vehicle donation program. Please click below for more information on how you can donate your car, truck, motorcycle, RV, boat, heavy equipment or farm machinery to benefit myeloma programs and research.…
Page
1UpOnCancerThis gaming community-based nonprofit 501(c)(3) organization is dedicated to direct financial assistance for adults in the United States undergoing cancer treatment.…
Page
Novel therapies used to treat multiple myeloma may be associated with gastrointestinal problems (e.g., nausea, vomiting, diarrhea, and constipation). Do not stop or adjust medications without discussing it with your healthcare provider. He or she may change your dose or schedule of medication…
Page
Myelosuppression, also called bone marrow suppression, is a common challenge for people living with multiple myeloma. It occurs when your bone marrow is affected, slowing or reducing the production of new blood cells — white blood cells, red blood cells, and platelets. Both myeloma and its…
Page
What Are the Symptoms of Neuropathy? Neuropathy, by definition, occurs when nerves are damaged or inflamed, or when nerve tissue has degenerated, leading to changes in nerve function. Neuropathy symptoms can occur symmetrically (on both sides of the body, e.g., both hands and both feet).…
Page
Cardiovascular problems and lung complications are serious and potentially life-threatening conditions that may affect multiple myeloma patients. Many multiple myeloma patients, as is true of the general U.S. population, already have conditions such as high blood pressure, high…
Page
What Is Kidney Failure or Renal Impairment in Multiple Myeloma?The kidneys are crucial for filtering waste from the blood, regulating fluid balance, and producing hormones. When the kidneys are unable to perform these functions at full capacity, it's called renal impairment or kidney failure. In…
Page
Key Terms Associated with Clinical Trial Phases
The following terms are often used in discussions of a clinical trial and its phases.
Accrual – The process of enrolling patients in a clinical trial, or the number of patients already enrolled or…
Page
A multiple myeloma relapse occurs when the cancer returns after a period of remission or becomes resistant to treatment. While relapse can be disheartening, remember that many effective treatment options are available, including innovative therapies that can extend remission and…
Page
The Coalition to Improve Access to Cancer Care (CIACC) has been hard at work ensuring patients have access to the treatments that are recommended by their physicians through the oral…
Page
The Global Myeloma Action Network® (GMAN®) developed a patient bill of rights (the International Myeloma Patient Charter) to ensure that no matter where in the world a person lives, the following principles apply to people affected by multiple myeloma and those involved in their lives and…
Page
Through the efforts of the Global Myeloma Action Network (GMAN), these key points on the European (EU) drug approval and reimbursement policy were presented by Mait Raava from the Estonian Myeloma Society, during the GMAN meeting held in Copenhagen on June 11, 2016.
The…
Page
What Did We Accomplish?
The Global Myeloma Action Network (GMAN) summit had three main issue items that required definitive next steps.
Global Awareness
During day one of the summit, members were divided into three small groups and each given a different topic focused on global awareness.…
Page
Consolidation therapy is generally defined as treatment given for a short duration (i.e., 2 to 4 cycles), usually with the same regimen used for induction therapy, following high-dose therapy with autologous stem cell transplant (ASCT). The goal of…
Page
What Is Maintenance Therapy in Myeloma?
Maintenance therapy is treatment that may be given after autologous stem cell transplant (ASCT) to prolong response. Currently, Revlimid® (lenalidomide) is the only myeloma treatment approved by the FDA for maintenance after…
Page
Multiple myeloma pain is an unfortunate and frequent component of having the disease. Prevention and management of pain are essential to patients' quality of life. Be proactive about reporting your discomfort; it can interfere with your sleep, mood, and general activity level.
Sources of…