Susie Novis Durie founded the IMF in 1990 with her late husband, Brian Novis, and Brian G.M. Durie. M.D., as a means to advance myeloma research and to develop and implement patient and physician educational programs in myeloma.
In 1992, Novis Durie was elected Executive Director of the IMF and today holds the title of President. Under her direction, the IMF has continued to experience impressive growth, and the programs that she has developed have become models for other organizations worldwide.The program she is proudest of is the Patient & Family Seminars. Attending a physician conference in London, she saw doctors “meeting the professors” and thought patients should also have the opportunity to meet the professors, learn about
Cancer of the bone marrow plasma cells, which are a type of white blood cell that make antibodies. The cancerous plasma cells are called myeloma cells.
, and share experiences with other patients. In 1994 she held the first ever Patient & Family Seminar which was held in Los Angeles, and shortly thereafter began holding seminars across the US. In 1997 she expanded seminar program to the UK. Today patient seminars are held around the world.
Susie Novis Durie has testified before the United States Congress on behalf of greater resources for
Cancer of the bone marrow plasma cells, which are a type of white blood cell that make antibodies. The cancerous plasma cells are called myeloma cells.
research. In 2002, she was presented with the Joseph Michaeli Award for her outstanding contributions to the understanding, advancement and treatment of
Cancer of the bone marrow plasma cells, which are a type of white blood cell that make antibodies. The cancerous plasma cells are called myeloma cells.
. Investor’s Business Daily featured Susie Novis Durie in its Leaders & Success column, and she has been recognized in many articles worldwide for the important work that she has done on behalf of
Cancer of the bone marrow plasma cells, which are a type of white blood cell that make antibodies. The cancerous plasma cells are called myeloma cells.
patients and their families.
Christine Battistini is the President of the International Myeloma Foundation Latin America and President, Instituto Espaço de Vida.
Yelak Biru believes that through research advocacy
Cancer of the bone marrow plasma cells, which are a type of white blood cell that make antibodies. The cancerous plasma cells are called myeloma cells.
patients will be able to better balance quality of life with treatment outcome while helping accelerate both translational and basic myeloma research. Yelak understands the need and is passionate about improving access to life-saving cancer drugs globally and advancing the innovation pipeline through research and patient participation. He is a member of the IMF Global Myeloma Action Network (GMAN), a patient adviser for pharmaceutical companies, a liaison for the Smart Patients myeloma community, and the leader of the North Texas Myeloma Support Group.
Prof. Mario Boccadoro is the Head of the Hematology Section of the Oncology Division at the University of Torino. He is the founder of the Italian Myeloma Study Group, the first research consortium in Italy and one of the first in Europe. He is the recipient of the Sixth Annual Robert A. Kyle Lifetime Achievement Award.
Loraine Alterman Boyle joined the IMF board after her husband, famed actor Peter Boyle, passed away from myeloma in 2006. She began chairing the IMF’s annual Comedy Celebration benefiting the Peter Boyle Research Fund in 2007. She enlisted his Everybody Loves Raymond co-star, Ray Romano, as the host of the comedy show. A former rock journalist for publications like Rolling Stone and The New York Times, she has also co-produced Broadway shows like Memphis, Beautiful, Mothers & Sons and Ain’t Too Proud: The Life & Times of the Temptations.
Martine Elias is the Executive Director at Myeloma Canada, the only patient-driven, grassroots organization bringing the Canadian myeloma community together and promoting a strong, unified national voice for people living with
Cancer of the bone marrow plasma cells, which are a type of white blood cell that make antibodies. The cancerous plasma cells are called myeloma cells.
. In addition, Martine is Chair of the Collective Oncology Network for Exchange, Cancer Care Innovation, Treatment Access and Education (CONECTed), a Canadian based organization.
Martine started her career in clinical research in the pharmaceutical industry and has since dedicated her professional life to patient advocacy, empowering the patient voice, and helping patients gain access to essential medical treatments. She is passionate about ensuring that the patient voice is included in all aspects of health policy decisions.
Previously, Martine was Director Access, Advocacy, and Community Relations at Myeloma Canada where she developed, led, and executed all advocacy strategies and programs.
Before that, Martine held roles as National Patient Engagement Strategy at Janssen as a member of an international working team to advance a global patient advocacy strategy, and as National Director of Community Relations, as well as a Market Access and Health Economics team leader. Martine and her husband live in Quebec, Canada, have three children, three dogs, a cat, and a horse!
George T. Hayum graduated from Princeton University with honors from its Woodrow Wilson School of Public and International Affairs. He continued his work in this area on a Fulbright Fellowship in France. Mr. Hayum obtained his law degree from Yale Law School, where he served as Professor Alexander Bickel’s head teaching assistant in Yale College. For the past approximately 40 years, his practice has been in the field of entertainment law. He represents actors, directors, writers, producers, rights holders, production, and distribution entities in film, television, legitimate stage, video games, film distribution, remake rights, and the acquisition of literary properties. His practice includes many international clients. His pro bono work has included Doctors Without Borders, Board of Trustees of Antioch University, and the eQuinoxe writing/producing program. He is a member of the bars of California, New York, and the District of Columbia, and speaks French fluently.
Jason S. Katz is Head of Marketing Technology at Shutterstock and Founder of Growth Marketing Advisors LLC. As a creative executive, he brings with him ~20 years of marketing and technology experience in both Fortune 100 and startups. As a member of the IMF Board of Directors, Jason carries on the tradition of his father, Michael S. Katz, longtime IMF Director, highly accomplished and widely respected myeloma patient advocate, and beloved member of the IMF family.
Benson Klein is a Principal Member of the law firm Ward & Klein, Chartered. He received his JD from Georgetown University College of Law in 1970 and is a member of the Maryland State Bar Association, the District of Columbia Bar Association, and the Montgomery County Bar Association. He has served and continues to serve on the board of organizations such as Eagle Bank, Chairman of the Eagle Bank Healthcare Advisory Board, President of the Shady Grove Adventist Hospital Foundation, Shady Grove Adventist Hospital Governance Board, and other organizations in both the business and nonprofit sectors.
Mr. Kuzneski is currently active in the insurance, investment, and banking industries. He is a Principal at Kuzneski Financial Group, an insurance broker, and President of Greyhawk Capital, a provider of equity capital and advice to seed and early stage growth companies. He is also President and board member of Berkshire Securities, a private investment company that has invested in Pennsylvania-based community and regional banks for over 30 years.
Dr. Kyle is Professor of Medicine and Laboratory Medicine at the Mayo Medical School, Rochester, Minnesota. He received his M.D. with Distinction from Northwestern University Medical School. Dr. Kyle has published over 800 articles relating to hematology and oncology, along with an additional 1100 abstracts and editorials. He has served both as a Guest Lecturer and as a Visiting Professor throughout the world. Dr. Kyle currently serves as a director and member of the Scientific Advisory Board for the International Myeloma Foundation. He has been Chairman of the Myeloma Committee of the Eastern Cooperative Oncology Group, a member of the Editorial Board of Leukemia, and Secretary General of International Society of Hematology, Inter-American Division.
Dr. Heinz Ludwig is the Director of the Department of Medicine I, Center of Oncology and Hematology at Wilhelminenspital, Vienna. He is a former president of the European Society for Medical Oncology (ESMO) and the recipient of the Fifth Annual Robert A. Kyle Lifetime Achievement Award.
Dr. Edith Mitchell is a clinical professor at Jefferson Medical College in Philadelphia, Pennsylvania. She is Board Certified in both Internal Medicine and Medical Oncology. After receiving her M.D. from the Medical College of Virginia, Dr. Mitchell served first active duty, then reserve duty, as a physician with the United States Air Force for a total of nine years. She was honored with several prestigious military decorations during her time of service, and was subsequently honored with the Distinguished Service Award from the Air National Guard`
Mr. Newman has been an entrepreneur since starting his first company while a college undergraduate in 1961. He has been instrumental in the development of the secondary user market for used wireless handsets and founded a company that collected over 50,000,000 used cellular phones. He is currently Chairman of the Board of ContentOro, a content marketing company. In addition, Mr. Newman founded Protectors of Equality in Government, a non-profit, non-partisan organization, and was a founder and member of the Board of Directors of the Bank of Ann Arbor. Mr. Newman received his Bachelor of Science in 1963, and his M.S. in 1964, both from the University of Michigan.
Dr. S. Vincent Rajkumar is Professor of Medicine at the Mayo Clinic in Rochester, Minnesota, and Chair of the Mayo Clinic Myeloma,
A group of systemic diseases characterized by the deposition of amyloid protein in various organs and/or tissues. One type (AL amyloidosis) is related to multiple myeloma; other types include hereditary amyloidosis, AA amyloidosis, wild-type ATTR amyloidosis, ALECT2 amyloidosis, and AB2M amyloidosis.
, and Dysproteinemia Group. He is also Chair of the Eastern Cooperative Oncology Group (ECOG) Myeloma Committee. He has published more than 230 peer-reviewed papers primarily in the field of
Cancer of the bone marrow plasma cells, which are a type of white blood cell that make antibodies. The cancerous plasma cells are called myeloma cells.
and related plasma cell disorders. Dr. Rajkumar is the Section Editor for
Cancer of the bone marrow plasma cells, which are a type of white blood cell that make antibodies. The cancerous plasma cells are called myeloma cells.
and related disorders for Leukemia and is an Associate Editor for the Mayo Clinic Proceedings.
Mr. Robinson is the Founder and Managing Partner of The Mid Atlantic Company, a Los Angeles-based consultancy which provides strategic and operational advice to both public and private companies with a focus in the Television, Film, and Online spaces. Prior to founding Mid Atlantic, he spent more than 25 years in senior executive posts in the entertainment industry at Twentieth Century Fox in Los Angeles and Paris, Warner Bros. in Los Angeles, and The Walt Disney Company in London. Before his work in the entertainment industry, Mr. Robinson had a successful career in investment banking, working in the mergers and acquisitions group of Smith Barney Harris Upham and UK firm Kleinwort Benson. He holds a Bachelor of Arts cum laude in Economics from Harvard University and an MBA from London Business School.
Mr. Scott is the founder of an independent strategic ideation and healthcare communications firm – Ex Archa -- in the Commonwealth of Pennsylvania. He is a former Chairman and board member of the National Organization for Rare Disorders (NORD), a co-founder and president of Prostate Cancer International, a member of the American Society of Hematology (ASH), an affiliate member of the American Urological Association, and an associate member of the American Society for Clinical Oncology (ASCO). He graduated from the University of Sussex, where he earned an honors degree in biochemistry
Dr. Durie is the Medical Director for AMyC and Specialist in
Cancer of the bone marrow plasma cells, which are a type of white blood cell that make antibodies. The cancerous plasma cells are called myeloma cells.
and Related Disorders for Cedars-Sinai Outpatient Cancer Center in Los Angeles, California. He is Co-Chair of the Myeloma Committee for SWOG, and Chairman of the International Myeloma Foundation.
Susie Novis Durie founded the IMF in 1990 with her late husband, Brian Novis, and Brian G.M. Durie. M.D., as a means to advance myeloma research and to develop and implement patient and physician educational programs in myeloma.
In 1992, Novis Durie was elected Executive Director of the IMF and today holds the title of President. Under her direction, the IMF has continued to experience impressive growth, and the programs that she has developed have become models for other organizations worldwide.The program she is proudest of is the Patient & Family Seminars. Attending a physician conference in London, she saw doctors “meeting the professors” and thought patients should also have the opportunity to meet the professors, learn about
Cancer of the bone marrow plasma cells, which are a type of white blood cell that make antibodies. The cancerous plasma cells are called myeloma cells.
, and share experiences with other patients. In 1994 she held the first ever Patient & Family Seminar which was held in Los Angeles, and shortly thereafter began holding seminars across the US. In 1997 she expanded seminar program to the UK. Today patient seminars are held around the world.
Susie Novis Durie has testified before the United States Congress on behalf of greater resources for
Cancer of the bone marrow plasma cells, which are a type of white blood cell that make antibodies. The cancerous plasma cells are called myeloma cells.
research. In 2002, she was presented with the Joseph Michaeli Award for her outstanding contributions to the understanding, advancement and treatment of
Cancer of the bone marrow plasma cells, which are a type of white blood cell that make antibodies. The cancerous plasma cells are called myeloma cells.
. Investor’s Business Daily featured Susie Novis Durie in its Leaders & Success column, and she has been recognized in many articles worldwide for the important work that she has done on behalf of
Cancer of the bone marrow plasma cells, which are a type of white blood cell that make antibodies. The cancerous plasma cells are called myeloma cells.
patients and their families.
In her role as Chief Financial Officer, Jennifer Scarne manages the finances and operations of the Foundation. Having served in the public and private sectors, Jennifer has over 20 years of financial, accounting, and operational experience. Prior to the Foundation, she was the Controller of Morgan Creek Productions, a successful independent film company. Earlier in her career, Jennifer served in public accounting in the business and audit assurance areas at Ernst & Young LLP and KPMG, primarily serving clients in the entertainment, technology, and not-for-profit industries. She has a background as a certified public accountant, and received a Bachelor of Science degree in Accounting with a minor in Psychology from Loyola Marymount University. Jennifer previously served on the board of the Good Shepherd Center for Homeless Women and Children serving as Vice President of Finance. She joined the Foundation in March 2007. Her deep commitment to the IMF’s mission makes her a strong leader in the fight to cure
Cancer of the bone marrow plasma cells, which are a type of white blood cell that make antibodies. The cancerous plasma cells are called myeloma cells.
.
Diane Moran, R.N., M.A., EdM, is an experienced nurse with advanced degrees in education and organizational management, and a highly accomplished healthcare executive with more than two decades in the pharmaceutical industry prior to joining the IMF in April 2006.
Diane is the Senior Vice President of Strategic Planning for the IMF and reports directly to the President and Chairman of the Board.
Lisa Paik joined the IMF in June 2001 as Director of Meeting Services, bringing with her extensive public relations and special events planning experience. Previously, Lisa was an Account Executive with Ogilvy Public Relations in Washington, DC. At Ogilvy, she specialized in consumer education programs and disease-awareness campaigns. At the IMF, Lisa currently oversees the IMF's research grant awards process, as well as all of the Foundation's CME & CE programs. She is the point person for the Health Medical companies accrediting clinical meetings and coordinates workshops for the International Myeloma Working Group (IMWG), a collaborative group of leading
Cancer of the bone marrow plasma cells, which are a type of white blood cell that make antibodies. The cancerous plasma cells are called myeloma cells.
specialists that is charting the course to a cure, mentoring the next generation of innovative investigators, and improving lives through better care.
Dan Navid is an American lawyer now based in Thailand, and prior to that in Europe, for 35 years. He has extensive experience in the fields of international law, diplomacy, capacity building, as well as management in the environment, development, and health fields. Dan coordinates IMF's Asian Myeloma Network and helps promote the Foundations's international initiatives. Dan served for several years as a diplomat in the United Nations at Geneva, was the Chief Executive Officer for the Swiss-based International Osteoporosis Foundation, and has helped to establish several international NGOs including the Fragility Fracture Network, a scientific society dedicated to supporting osteoporosis patients. Dan has also enjoyed a long career as a legal expert in the environment field, serving as the First Secretary General to the Convention on Wetlands of International Importance, and working as a legal officer and Executive Officer at the International Union for Conservation of Nature and Natural Resources. Dan has worked on the elaboration of several international nature conservation agreements and has assisted governments throughout the world in the elaboration of environmental legislation. Most recently, he has been active assisting the National Parks Department of the government of the Kingdom of Thailand as an advisor for policy and legal matters.
Dr. Joseph Mikhael is a world-renowned
Cancer of the bone marrow plasma cells, which are a type of white blood cell that make antibodies. The cancerous plasma cells are called myeloma cells.
expert. In his position with the IMF, he works closely with the Board Chairman, Dr. Brian G.M. Durie, to advance the mission of the organization in research, education, advocacy, and patient care to improve lives of patients with myeloma. Dr. Mikhael has conducted dozens of clinical trials in the field of
Cancer of the bone marrow plasma cells, which are a type of white blood cell that make antibodies. The cancerous plasma cells are called myeloma cells.
and has contributed to the development of many novel drugs.
Dr. Mikhael is a Professor of Applied Cancer Research and Drug Discovery at the Translational Genomics Research Institute (TGen), which is an affiliate of the City of Hope Cancer Center. He continues to see myeloma patients in consultation at the HonorHealth Research Institute in Scottsdale, Arizona where he is the director of Myeloma Research.
He has served as a Professor of Medicine at the Mayo Clinic, an Associate Dean at the Mayo Clinic School of Graduate Medical Education, and as the Deputy Director of Education at the Mayo Clinic Cancer Center. Dr. Mikhael also serves as a councilor on the American Society of Hematology (ASH) Executive Committee and is involved in mentoring the next generation of hematologists. He did his medical training in Canada, having completed medical school at the University of Ottawa, his hematology training at the University of Toronto, and a
Cancer of the bone marrow plasma cells, which are a type of white blood cell that make antibodies. The cancerous plasma cells are called myeloma cells.
Fellowship at Princess Margaret Hospital. He also has a master’s degree in education from the University of Toronto.
Lynn Green joined the IMF in May 2018, bringing with her more than 13 years of fundraising and nonprofit management experience. She has successfully increased individual and foundation funding for both high-level academic and medical research institutes, where she participated in major capital campaigns and personally raised close to $30 million. Her experience includes raising major gifts for myeloma and lymphoma research at the Dana-Farber Cancer Institute, as well as for student and faculty support at Stanford University. Lynn has worked extensively with leadership and advisory boards to shape philanthropic strategy and funding priorities. She holds Doctorate and Master of Education degrees from Auburn University, and a Bachelor of Science degree from Mississippi State University. Lynn, her husband Michael, and their son live in Houston, Texas.
Dr. Mimi Choon-Quinones joined the IMF in 2018, bringing with her more than 20 years of experience in the pharmaceutical industry, her strategic leadership in 88+ countries focusing on Medical and Clinical Operations. Mimi was raised in the US, has lived and worked in Canada, and currently resides in Switzerland. She is working diligently with the i2TEAMM initiative to gain approval of
Minimal Residual Disease
Peter Anton is a seasoned digital media and marketing veteran whose experience spans more than 25 years across large and small companies, including several startups. He has a rich background in media and entertainment, with long tenures at business units across Sony Music and Sony Pictures Digital, and TMINUS10, a Sony Broadband venture, where he was co-founder, president, and CEO. Peter also served as VP of Digital Strategy and Digital Marketing for The Grammys, where he built the department from the ground up and advised the Grammy Foundations (MusiCares and Grammy in the Schools). Peter also conceptualized and executive-produced “Grammy Live,” a multi-day behind-the-scenes participatory online experience throughout “Grammy Weekend.” He also worked with Brammo Electric Motorcycles, where he helped build the Brammo consumer brand and launch Brammo electric motorcycles internationally. Most recently, Peter ran global marketing and creative services for homeexchange.com, the world’s largest and most established home-sharing/swapping network.
Betty Arevalo is a licensed vocational nurse (LVN). For three years prior to joining the IMF, she provided patient care at CHA-Presbyterian Medical Center and at a convalescent home for disabled and subacute patients in Los Angeles. At the IMF, Betty helps maintain the computer database and stock inventory and prepares materials for all IMF meetings, seminars, and conferences. In addition, she answers Spanish-language IMF Hotline calls, assists Spanish-speaking participants at IMF Patient & Family Seminars, and coordinates Spanish
Cancer of the bone marrow plasma cells, which are a type of white blood cell that make antibodies. The cancerous plasma cells are called myeloma cells.
support group meetings.
Suzanne joined the IMF in January 1997, bringing with her 20 years of experience in theatrical and event experience. In her capacity as Producer of Special Events, Suzanne spearheaded the IMF’s first four Ribbon of Hope Anniversary Galas, and produced the annual Robert A. Kyle Lifetime Achievement Award dinners from 2003 until 2011. She also created and implemented the “Mail For the Cure” campaign, Myeloma 200, and the IMF’s veteran’s resource web site, Veterans Against Myeloma.
In 2003, in a time when there was no such thing as crowd-funding, and after years of talking with patients and their families, Suzanne decided to create a program for them that would help them in being proactive in both public awareness and fundraising. This resulted in today’s peer-to-peer Member Fundraising Program, which asks members to think of and create their own events, supported all along the way by the IMF. These local events raise awareness, help fund myeloma research, and enable members to become proactive in the myeloma community. Suzanne is proud of her contribution in helping to make the IMF the amazing organization that it is.
Nancy Bruno has been active in Support Groups since shortly after her husband Mike was diagnosed with mulitple myeloma in late 1998. What began as comprehensive note-taking during support group meetings led to her becoming a writer for the group’s newsletter. When Andy Lebkuecher’s wife, Cathy, died in December 2006, Andy asked Nancy to lead their local Atlanta group temporarily, "and I haven’t stopped." Her energy and commitment will continue as Regional Director of Support Groups.
Kelly Cox spearheads IMF’s Regional Community Workshops, events that bring the most cutting-edge research and top
Cancer of the bone marrow plasma cells, which are a type of white blood cell that make antibodies. The cancerous plasma cells are called myeloma cells. Cancer of the bone marrow plasma cells, which are a type of white blood cell that make antibodies. The cancerous plasma cells are called myeloma cells.
Kelly worked for Warner Bros. International Television for three years prior to arriving at the IMF. He specialized in marketing, product management, and international placement for shows such as “Friends,” “E.R.” and “Smallville,” among others. Prior to this Kelly was involved with fundraising for specialized research into diseases of the retina, including macular degeneration and retinitis pigmentosa.
Danielle Doheny joined IMF after a six-year career on Capitol Hill where she worked as an adviser to two members of Congress. As a Congressional staffer, Danielle’s primary focus was on healthcare and issues related to energy, the environment, science, and technology. In her role with the IMF, she advocates on behalf of the
Cancer of the bone marrow plasma cells, which are a type of white blood cell that make antibodies. The cancerous plasma cells are called myeloma cells.
community to the executive and legislative branches of the federal government. Danielle’s father is a
Cancer of the bone marrow plasma cells, which are a type of white blood cell that make antibodies. The cancerous plasma cells are called myeloma cells.
patient, and she has a unique passion for her work on behalf of patients and their families. Danielle graduated cum laude from Thiel College with a Bachelor of Arts degree in History.
Serdar joined the IMF in September 2018 with seven years of experience in the non-profit sector, specializing in corporate communications and development. For the prior four years, he was part of the business development team at the Educational Volunteers Foundation of Turkey (TEGV). Earlier in his career, Serdar spent more than 15 years working with global corporations. He is the co-founder of Living With Myeloma Initiative and Cancer Survivors Association that has organized patient and family seminars in several cities in Turkey. Serdar is also a journalist, translator, editor, content provider, and musician.
Heather Fishman was introduced to the IMF in September 2016 and became a permanent part of our development team in 2017. She works as a prospect researcher and as the silent auction coordinator for the IMF’s annual gala. Prior to the IMF, Heather spent seven years at Woodbury University working in the advancement department, where her most recent role was Associate Director of Alumni & Events. Heather received a Master of Arts in organizational leadership from Woodbury University and a Bachelor of Arts in communications from Messiah College. Heather spends her free time with her husband, Marc, a re-recording mixer for television and film, and her daughters, Katie and Alexa.
Jon Fitzpatrick worked with the IMF for several years as a volunteer before joining our team as the Support Group Coordinator. He is excited to turn his passion for helping others into a career. Jon’s interest in working closely with multiple myeloma patients and caregivers was sparked as a result of his experience in the field of emergency
How well a patient’s disease improves due to treatment. The International Myeloma Working Group (IMWG) developed criteria to determine how good or bad a patient’s response to treatment is.
Sherrie Guerrero, SHRM-SCP is an accomplished business executive who has held leadership roles in both the private and nonprofit sector. She has an extensive background in communications and specializes in human resources with a senior certification from the Society of Human Resources Management.
Prior to her career in non-profit, Sherrie served as vice president of international distribution working in the entertainment industry where she developed a strong aptitude for building productive relationships. She believes that positive work environments are built through effective communication and serve as the foundation for a happy and rewarding work experience. Sherrie holds a Bachelor of Arts degree in Communications from Cal State University, Fullerton and a Certificate of Cultural Studies from the University of Granada, Spain.
Abigail Guzman developed a strong skills set in the hospitality industry through previous work experience and coursework at the University of Johnson & Wales – School of Hospitality. In addition to organizational expertise, Abby possesses a true passion for customer service. Her work behind the scenes ensures every event’s success before the customer experience even begins.
Brenda Hawkes joined the IMF in June 2018, bringing with her more than 20 years of experience working in leadership, fundraising, and program development. For the past seven years, Brenda was Senior Manager of Patient Advocacy at Diplomat Pharmacy, where she served as the voice of the patient, regularly working with the IMF and myeloma support groups across the U.S., leading empathy training workshops, and keeping a keen eye on what patients need for better healthcare. Previously, she served as Executive Director at Our Promise Cancer Resources, an organization she helped establish to provides non-medical support to cancer patients and their families in south-central Arkansas. Brenda possesses extensive background in community relations and developing collaborative opportunities between stakeholders. Brenda has an intimate understanding of what it means to be both caregiver and patient. In 2002, she became a caregiver for her husband, David, who underwent treatment for colon cancer. In 2006, she was diagnosed with stage III triple negative breast cancer. Brenda and her husband live in Michigan and are proud parents of two daughters.
Paul Hewitt joined the IMF in 2001 and has been one of the IMF's InfoLine Coordinators since 2005. Paul is dedicated to helping patients and caregivers focus on putting a game plan in place to cope with life with
Cancer of the bone marrow plasma cells, which are a type of white blood cell that make antibodies. The cancerous plasma cells are called myeloma cells.
. That structure, coupled with the information the InfoLine provides, can alleviate fear and give confidence to those affected by
Cancer of the bone marrow plasma cells, which are a type of white blood cell that make antibodies. The cancerous plasma cells are called myeloma cells.
. Paul finds this work to be very satisfying. In addition to his work at the IMF, Paul maintains an active acting career. He has starred on Broadway and in many movies and TV shows. Paul is a graduate of the Goodman School of Drama at DePaul University.
Kevin’s responsibilities include offering individualized website assistance to the large network of IMF-affiliated
Cancer of the bone marrow plasma cells, which are a type of white blood cell that make antibodies. The cancerous plasma cells are called myeloma cells.
support groups. He graduated from Cal Poly Pomona with a degree in Business – Computer Information Systems. Kevin has diverse hobby interests, including the culinary arts. He is also in L A Jin Yin, a martial arts organization that studies and participates in Dragonboat competitions and Lion dancing during Chinese New Year celebrations. He is an avid runner, completing the Los Angeles Marathon in 2014 and 2016.
Marya Kazakova is the Senior Director, Editor-in-Chief of Publications.
Ilana Kenville became one of the IMF's first volunteers when the IMF was first founded. When the IMF supported the establishment of Myeloma UK, Ilana traveled to Scotland to work with Eric Low on launching that new organization. Ilana joined the IMF Staff in 2014 to work alongside Suzanne Battaglia in the Member Events Program. Ilana specializes in challenge events where she combines her passions of being active and fundraising in unique ways for the IMF. She holds a degree in Liberal Studies from National University, San Diego, CA. and resides in Phoenix, Arizona.
Missy Klepetar graduated from Reed College. She joined the IMF in the fall of 2006 and became part of the InfoLine team during the summer of 2008. Missy says that working on the InfoLine is the most rewarding thing she has done in a professional realm, and she feels privileged to be able to help patients and caregivers in this capacity. She understands the importance of imparting the latest and best information regarding treatment options, as well as discussing the complex issues surrounding
Cancer of the bone marrow plasma cells, which are a type of white blood cell that make antibodies. The cancerous plasma cells are called myeloma cells.
.
Missy also assists the IMF by proofing content for all IMF publications, including Myeloma Today.
She enjoys Colorado Avalanche hockey.
Sapna Kumar joined the IMF team in October 2015. She provides editorial direction for the IMF’s digital and video communications, helps expand IMF’s media outreach, and edits website content. Sapna honed her editorial skills by working in educational publishing at Encyclopedia Britannica, McGraw-Hill, and Pearson Education. She earned a Bachelor of Arts from Purdue University with a double major in creative writing and theater. She continues to further her professional development, having taken graduate-level courses in digital marketing, human-computer interaction, and search engine optimization. On the personal side, Sapna first encountered the IMF when her mother was diagnosed with multiple myeloma, and she became her mother’s caregiver.
Phil Lange brings over 20 years of accounting experience to IMF. He graduated from Loyola Marymont University in 1979. Phil has extensive accounting experience, working for a wide variety of companies in entertainment, commercial real estate development, banking, manufacturing, publishing, non-profit, and healthcare. Phil is excited about working with the incredible team at IMF. Phil and Steve, his life partner of 18 years, were legally married in California on July 24, 2008. This year, they rescued a pair of American Rat Terriers named Jocko and Oreo.
Karla joined the IMF in 2019 to assist the Senior Director of Member Events, Suzanne Battaglia, with the many projects and events supported by the IMF. Karla earned a degree in Communications from California State University, Northridge. She previously worked in the non-profit sector in the Los Angeles area, specializing in afterschool programs. Karla enjoys playing sports and music, and spending time with her family.
Robin received her Bachelor of Arts in Political Science and Jewish Studies from Stockton University in Pomona, New Jersey, and her law degree from George Mason University, School of Law in Arlington, Virginia. She has over a decade of experience in policy analysis, advocate and public outreach, and program and budget management. Robin began her career in the Executive Branch of the federal government, working in the White House Counsel's office during the Clinton Administration. She is currently the Senior Director of Public Policy and Advocacy at the International Myeloma Foundation. Prior to this, Robin was the Director of Public Policy and Advocacy for the Lymphoma Research Foundation as well as the Assistant Regional Director of the Anti-Defamation League, both where she managed the policy and advocacy portfolio.
As a member of the IMF’s Medical Education Department, Amirah’s responsibilities include coordination of the Brian D. Novis Research Grant program; Asian Myeloma Network (AMN), International Myeloma Working Group (IMWG), Black Swan Research Initiative® (BSRI®) projects; and IMF trademark protection. Prior to joining the IMF, she worked in the nonprofit sector for more than 10 years, providing program support to a wide range of health, education, arts, and cultural projects. Amirah also has experience in grant writing with a proven track record of identifying, researching, and obtaining grants. She holds a master’s degree in public administration (MPA) with a Graduate Certificate in Nonprofit Sector Management.
Jason joined the IMF’s Marketing team in 2019. His diverse background includes working on grassroots social campaigns in the Los Angeles area for Cadillac Concierge, WeCeed, and Premiere Events. In addition to his work at the IMF, Jason is a digital content creator, producing short films, webseries, and other online media. His knowledge of digital asset management and passion for creating emotionally connective messaging makes him a valuable member of the IMF team.
Jim Needham is responsible for assisting the IMF with graphic design and production of the IMF's vast array of printed materials. He was born and raised in Southern California, graduated from UCLA in Design, and has worked in that field ever since. He is experienced as an art director, graphic designer, illustrator, photographer, copywriter and copy editor, and has done a wide range of projects in a spectrum of industries. After joining the IMF staff, he exclaimed, "Over the years I've done a lot of work to help companies successfully sell products and make money. In 2005, I had a strong desire to use my experience, skills, and talents to help people who needed help. I wanted to work for a nonprofit organization, and marvelously, this job at IMF has made my wish come true."
Meghan joined the IMF in 2019, bringing with her a strong background in administrative work in the healthcare sector, coordinating patient care with physicians and nurses. Meghan lives in Rhode Island and works at the local IMF Meetings Department office in Barrington, RI. She is the mother of an amazing 12 year old son, Brennan, and enjoys spending time with her family. Meghan’s grandmother lost her life to myeloma in May 2013, and Meghan is honored to be part of a team that supports the IMF’s mission.
Selma has spent more than 25 years working in the non-profit sector for organizations providing humanitarian services nationwide. She joined the International Myeloma Foundation in 2009 and is currently the Director of Operations. Selma is a native Californian, a mother, loves animals and enjoys helping others.
Annabel Reardon has previously worked with the IMF Events team on planning their various events and meetings. From floor plans to menu selections and restaurant reservation, she ensured that each event ran smoothly and all logistical details were taken care of. In 2013, she decided to work full-time for the IMF as its Meeting Coordinator. Aside from planning and managing the multiple year-round national and international meetings the IMF holds and attends, she also manages the auction of the IMF's Annual Gala.
She holds a degree in International Hospitality Management from Northern Arizona University and studied International Management at the London Metro University.
Joy’s background in the field of entertainment includes working in client services at BFM Digital and at Shapeshifter Inc. She is a graduate of Eastern Michigan University in Ypsilanti with a degree in Film Studies and a minor in Art. She is an avid reader, writer, singer, and hiker.
Miko Santos has extensive experience in mass media and news organizations. A graduate of De La Salle University, he holds a dual degree in Marketing and Behavioral Science. He started out as a photojournalist for Manila Times and Sun Star, covering everything from community events to coups d'etat and eventually becoming the New Media Editor for Asian Journal, one of the largest Filipino-American news organizations in the US. He has also worked as a stringer for Philippine-based broadcast networks ABS-CBN and GMA-7. No stranger to the cancer cause, he once biked a thousand miles for three weeks around the Philippines with the Cancer Warriors Foundation to raise awareness and funds for children afflicted with cancer.
Kelley Sidorowicz joined the IMF’s Support Group team in 2019 after previously being part of the Advocacy team since 2016, working on federal and state policy issues as well as helping the IMF to grow our grassroots network. Previously, she worked in the health and wellness community as a certified health and wellness educator, personal trainer, and yoga instructor. Kelley holds a Bachelor of Science degree in Exercise Physiology from Frostburg State University. She resides in Southern Maryland.
Sarah joined the IMF in November 2019 as a member of the Development team. She recently earned a Masters of Arts Degree in Nonprofit Management from Antioch University Los Angeles. She previously worked in both the private and public sector, most recently at the YMCA of Metropolitan Los Angeles. She enjoys hiking, music and spending time with her dog.
A Los Angeles native, with the IMF for 5 plus years. Work in both the Accounting and Distribution departments doing a variety of tasks. Assist with payables, invoices and many other financial operations to make sure all details and activities have been accounted for and allocated correctly. Assist in distribution preparing shipments, deliverables and materials necessary for our larger meetings and events throughout the year. Am a proud member of team IMF and could not be happier for all the success and growth the foundation has seen over the years.
Rafi Stephan comes to the IMF from the world of entertainment, where he last served as an executive assistant in International Television Distribution at Warner Brothers. He was at Warner Brothers from 2006 to 2014, during which time he also served as special events director for the business resource group Network for Asian Pacific Americans (NAPA). Rafi’s film industry experience includes being a producer and production manager for independent films, including Sundance selection Must Be the Music and Gus Van Sant’s Speedway Junky. He is a graduate of Texas Christian University in Fort Worth with a degree in Film/Television and a minor in History.
Robin Tuohy worked as a paralegal for over 10 years at a Fortune 500 company before marrying Michael, who was diagnosed with
Cancer of the bone marrow plasma cells, which are a type of white blood cell that make antibodies. The cancerous plasma cells are called myeloma cells.
in 2000, and having children Ally and Mikey. She became involved with the IMF and attended Advocacy Days in Washington, DC, in 2001, and then began the first support group for
Cancer of the bone marrow plasma cells, which are a type of white blood cell that make antibodies. The cancerous plasma cells are called myeloma cells.
patients in Connecticut with the help of the IMF. She feels her experience as Michael's caregiver gives her a unique perspective on
Cancer of the bone marrow plasma cells, which are a type of white blood cell that make antibodies. The cancerous plasma cells are called myeloma cells.
. The Tuohy family carried their message of life after diagnosis across the country in 2007 on the Myeloma Mobile. Robin's motto is "The purpose of life is a life of purpose," and she hopes that she is able to help others dealing with
Cancer of the bone marrow plasma cells, which are a type of white blood cell that make antibodies. The cancerous plasma cells are called myeloma cells.
.
Originally from Boston, Massachusetts, Judy Webb is a veterinarian who lives in Los Angeles with her husband, their two cats and two Golden Retrievers. She comes to the IMF after practicing for 10 years, followed by 14 years in the animal health industry working for IDEXX Reference Laboratories.
Jonathan enjoys one-on-one interaction with patients and caregivers, both over the phone and at IMF seminars and community workshops. His background as an entrepreneur includes more than 22 years as owner and operator of an independent pet supply business. He is an avid collector of vinyl records, and has traveled across the United States, visiting record shops and collector trade shows. He also loves attending live concerts by legendary pop and R&B vocalists