Diagnosed with multiple myeloma in 1989 at age 33, Brian D. Novis founded the IMF in 1990, along with wife Susie, and Brian’s then-physician, Dr. Brian G.M. Durie. Together, the three join forces and set out to educate patients about the little-known blood cancer and available treatment options.
A former executive headhunter, Brian started the IMF with humble beginnings in a garage— armed only with high hopes and a borrowed typewriter while sitting on a lawn chair. By 1991, the disease took an enormous physical toll on Brian — extensive bone damage forced him to work from his bed at home.
Brian passed away in July 1992, but his dream continues to live on.
Each day since then, the IMF has pushed ahead — with compassion, innovation, and urgency— to improve the lives of myeloma patients and, ultimately, to find a cure for this disease.
Susie Durie: Founder and Advocate for Myeloma Patients
In 1990, Susie Novis Durie founded the International Myeloma Foundation (IMF) along with her late husband, Brian Novis and Dr. Brian G.M. Durie, with these key objectives in mind: advancing myeloma research; and developing and implementing patient and physician educational programs in myeloma.
Novis Durie was elected Executive Director of the IMF in 1992. For 31 years, under her careful direction, the IMF experienced remarkable growth—programs she developed became models for other organizations worldwide.
While attending a physician conference in London, Novis Durie saw doctors “meet the professors.” She strongly felt that myeloma patients should be afforded the same opportunity so they can learn more about the disease and share their experiences with other patients.
In 1994, Novis Durie held the first ever Patient & Family Seminar in Los Angeles—the program that she is most proud of conceiving. Shortly after, the IMF began holding Patient & Family Seminars across the US, then expanded to the UK in 1997. To date, Patient & Family Seminars are being held around the world.
Novis Durie has also testified before the United States Congress to acquire greater resources for multiple myeloma research.
In 2002, Novis Durie was presented with the Joseph Michaeli Award for her outstanding contributions to the understanding, advancement, and treatment of multiple myeloma.
Novis Durie was featured by Investor’s Business Daily in its Leaders & Success column and has since been recognized by worldwide media for important work she has done for multiple myeloma patients and their families.
In April 2019, Novis Durie received a joint honorary doctorate for scientific excellence at Vrije Universiteit Brussel (VUB) in Brussels, Belgium.
After successfully leading the IMF for 31 years, Novis Durie passed the baton to Yelak Biru, who became the organization’s new President & CEO in 2021. She is confident that “Yelak will put his talent and experience as a patient advocate to good use in leading the organization I founded, nurtured, grew, and love so much."
Currently working as the IMF’s Founder & Director of Global Initiatives, Novis Durie is focused on improving the lives of myeloma patients on a global scale.
Dr. Brian G.M. Durie is a co-founder of the International Myeloma Foundation and a Hematologist/Oncologist specializing in multiple myeloma and related disorders at the Cedars-Sinai Medical Center in Los Angeles. He was former Medical Director of Myeloma Research for the Academic Myeloma Consortium and co-chairman of the myeloma committee for the SWOG Cancer Research Network. Previously, he was a professor at the University of Arizona, College of Medicine, and the Charing Cross and Westminster School of Medicine at the University of London.
Dr. Durie is known for his notable research on multiple myeloma and blood disorders, most especially for developing the Durie-Salmon Staging System which continues to be used worldwide for clinically staging myeloma.
One of his key BSRI® projects, iStopMM (Iceland Screens, Treats, or Prevents Multiple Myeloma) is the first large-scale screening study in the field of myeloma aimed at preventing myeloma before it develops. His other key projects include the i2TEAMM (International Independent Team for Endpoint Approval of Myeloma MRD) Initiative and the BSRI® ASCENT Cure Trial.
Dr. Durie has received numerous accolades for his outstanding contributions in the field of myeloma: an Honorary Doctor of Medicine award from the Vrije Universteit Brussel in 2019, the Waldenström's Award in 2009, and the Robert A. Kyle Lifetime Achievement Award in 2006. He is also a Leukemia Society of America Scholar and a U.S. Hematologic Research Foundation Annual Awardee.
He has written over 700 research papers, 16 book chapters, and 5 books. He also holds an international patent for scintillation autoradiography.
Dr. Durie is actively involved in global congress events in Europe, which include the annual Heidelberg Myeloma Workshop and annual conferences hosted by the Eurasian Hematology-Oncology Group.
He has produced over 200 videos for his weekly series, “Ask Dr. Durie,” where he addressed patient questions about multiple myeloma and provides information on the latest developments in myeloma treatments. Complementing the video series was his weekly blog, where he also featured highlights of annual events including the ASH Educational Program, IMWG Summit, AMN Summit, GMAN Summit, and the Support Group Leaders Summit.
Dr. Durie hosted hundreds of IMF Patient & Family Webinars and Regional Community Workshops, providing up-to-date and direct information from leading myeloma experts to myeloma patients and their families.
Born in Scotland, Dr. Durie received his medical degree from the University of Edinburgh Medical School. He completed residencies and fellowships at Mayo Clinic and the University of Minnesota. He is board certified by the American Board of Internal Medicine with subspecialties in both medical oncology and hematology.
Dr. S. Vincent Rajkumar is Professor of Medicine at the Mayo Clinic in Rochester, Minnesota, and Chair of the Mayo Clinic Myeloma, Amyloidosis, and Dysproteinemia Group. He is also Chair of the Eastern Cooperative Oncology Group (ECOG) Myeloma Committee. He has published more than 230 peer-reviewed papers primarily in the field of multiple myeloma and related plasma cell disorders. Dr. Rajkumar is the Section Editor for multiple myeloma and related disorders for Leukemia and is an Associate Editor for the Mayo Clinic Proceedings.
Mr. Robinson is the Founder and Managing Partner of The Mid Atlantic Company, a Los Angeles-based consultancy which provides strategic and operational advice to both public and private companies with a focus in the Television, Film, and Online spaces. Prior to founding Mid Atlantic, he spent more than 25 years in senior executive posts in the entertainment industry at Twentieth Century Fox in Los Angeles and Paris, Warner Bros. in Los Angeles, and The Walt Disney Company in London. Before his work in the entertainment industry, Mr. Robinson had a successful career in investment banking, working in the mergers and acquisitions group of Smith Barney Harris Upham and UK firm Kleinwort Benson. He holds a Bachelor of Arts cum laude in Economics from Harvard University and an MBA from London Business School.
Christine Battistini is the President of the International Myeloma Foundation Latin America and President, Instituto Espaço de Vida.
Loraine Alterman Boyle joined the IMF board after her husband, famed actor Peter Boyle, passed away from myeloma in 2006. She began chairing the IMF’s annual Comedy Celebration benefiting the Peter Boyle Research Fund in 2007. She enlisted his Everybody Loves Raymond co-star, Ray Romano, as the host of the comedy show. A former rock journalist for publications like Rolling Stone and The New York Times, she has also co-produced Broadway shows like Memphis, Beautiful, Mothers & Sons and Ain’t Too Proud: The Life & Times of the Temptations.
Martine Elias is the Executive Director at Myeloma Canada, the only patient-driven, grassroots organization bringing the Canadian myeloma community together and promoting a strong, unified national voice for people living with multiple myeloma. In addition, Martine is Chair of the Collective Oncology Network for Exchange, Cancer Care Innovation, Treatment Access and Education (CONECTed), a Canadian based organization.
Martine started her career in clinical research in the pharmaceutical industry and has since dedicated her professional life to patient advocacy, empowering the patient voice, and helping patients gain access to essential medical treatments. She is passionate about ensuring that the patient voice is included in all aspects of health policy decisions.
Previously, Martine was Director Access, Advocacy, and Community Relations at Myeloma Canada where she developed, led, and executed all advocacy strategies and programs.
Before that, Martine held roles as National Patient Engagement Strategy at Janssen as a member of an international working team to advance a global patient advocacy strategy, and as National Director of Community Relations, as well as a Market Access and Health Economics team leader. Martine and her husband live in Quebec, Canada, have three children, three dogs, a cat, and a horse!
George T. Hayum graduated from Princeton University with honors from its Woodrow Wilson School of Public and International Affairs. He continued his work in this area on a Fulbright Fellowship in France. Mr. Hayum obtained his law degree from Yale Law School, where he served as Professor Alexander Bickel’s head teaching assistant in Yale College. For the past approximately 40 years, his practice has been in the field of entertainment law. He represents actors, directors, writers, producers, rights holders, production, and distribution entities in film, television, legitimate stage, video games, film distribution, remake rights, and the acquisition of literary properties. His practice includes many international clients. His pro bono work has included Doctors Without Borders, Board of Trustees of Antioch University, and the eQuinoxe writing/producing program. He is a member of the bars of California, New York, and the District of Columbia, and speaks French fluently.
Jason S. Katz is Head of Marketing Technology at Shutterstock and Founder of Growth Marketing Advisors LLC. As a creative executive, he brings with him ~20 years of marketing and technology experience in both Fortune 100 and startups. As a member of the IMF Board of Directors, Jason carries on the tradition of his father, Michael S. Katz, longtime IMF Director, highly accomplished and widely respected myeloma patient advocate, and beloved member of the IMF family.
Benson Klein is a Principal Member of the law firm Ward & Klein, Chartered. He received his JD from Georgetown University College of Law in 1970 and is a member of the Maryland State Bar Association, the District of Columbia Bar Association, and the Montgomery County Bar Association. He has served and continues to serve on the board of organizations such as Eagle Bank, Chairman of the Eagle Bank Healthcare Advisory Board, President of the Shady Grove Adventist Hospital Foundation, Shady Grove Adventist Hospital Governance Board, and other organizations in both the business and nonprofit sectors.
Mr. Kuzneski is currently active in the insurance, investment, and banking industries. He is a Principal at Kuzneski Financial Group, an insurance broker, and President of Greyhawk Capital, a provider of equity capital and advice to seed and early stage growth companies. He is also President and board member of Berkshire Securities, a private investment company that has invested in Pennsylvania-based community and regional banks for over 30 years.
Dr. Sagar Lonial is Professor and Chair of the Department of Hematology and Medical Oncology at the Emory University School of Medicine. He is the Chief Medical Officer of the Winship Cancer Institute at Emory University and is internationally recognized as a leading authority in multiple myeloma treatment and research. A medical oncologist at the Winship Cancer Institute, Dr. Lonial treats patients with multiple myeloma and is a lead member of the bone marrow transplantation and clinical trials teams. He is board-certified in hematology and medical oncology. Dr. Lonial is involved in numerous professional organizations including the American Society of Clinical Oncology, the American Society of Hematology, and the American Society for Blood and Marrow Transplantation. Dr. Lonial is Vice Chair of the Finance Committee of the International Myeloma Society, and Vice Chair of the Myeloma Committee in the Eastern Cooperative Oncology Group. He also serves as President and Chair of the Society of Hematologic Oncology. Upon appointment to the IMF Board, Dr. Lonial said, “I am hopeful that a cure is just around the corner for many patients, and I am certain that the IMF will be there, leading the way."
Dr. Nikhil Munshi is a world-renowned leader in translational research for multiple myeloma. He is a Professor of Medicine at Harvard Medical School, holding the Kraft Family Chair, and serves as Director of Basic and Correlative Science and Associate Director of the Jerome Lipper Multiple Myeloma Center at Dana-Farber Cancer Institute. Dr. Munshi’s pioneering research focuses on genomic changes and molecular mechanisms driving genomic instability in cancer, advancing diagnostics, prognostics, and therapeutics. He has developed innovative approaches in integrative oncogenomics, RNA-based therapies, and antigen-directed immunotherapies, including CAR T-cell therapy. His work bridges the gap between laboratory discoveries and clinical applications, enhancing patient outcomes through groundbreaking clinical trials.
With over 600 peer-reviewed publications and mentorship of more than 80 emerging scientists and clinicians, Dr. Munshi has significantly shaped the field. He is the immediate past President of the International Myeloma Society and a key member of the International Myeloma Foundation’s Scientific Advisory Board. His accolades include the Dr. B.C. Roy National Award, the IMF Robert A. Kyle Lifetime Achievement Award, and the Giants of Cancer Care Award. As co-chair of the IMF i2TEAMM initiative, he leads efforts to establish minimal residual disease (MRD) as a critical marker for drug development, accelerating advancements in myeloma treatment.
Mr. Newman has been an entrepreneur since starting his first company while a college undergraduate in 1961. He has been instrumental in the development of the secondary user market for used wireless handsets and founded a company that collected over 50,000,000 used cellular phones. He is currently Chairman of the Board of ContentOro, a content marketing company. In addition, Mr. Newman founded Protectors of Equality in Government, a non-profit, non-partisan organization, and was a founder and member of the Board of Directors of the Bank of Ann Arbor. Mr. Newman received his Bachelor of Science in 1963, and his M.S. in 1964, both from the University of Michigan.
Kent Oliver, Director of Strategic Growth at Raanes & Oliver Capital Advisors, is a dedicated advocate, philanthropist, and myeloma survivor. Diagnosed with multiple myeloma at just 34 in 2015, he has devoted his life to supporting the myeloma community. His initiatives include developing Myelo™, the International Myeloma Foundation’s (IMF) AI-powered chatbot, and organizing the annual “Laughs 4 Life” fundraiser in Hattiesburg, MS, which has contributed over $320,000 to IMF’s research grants.
A marketing graduate from the University of Georgia, Mr. Oliver serves on the University of Mississippi’s Cancer Center campaign committee. He and his wife Candace have two young daughters. As an IMF board member, Mr. Oliver values “the opportunity to help the IMF continue to evolve and grow in achieving the vision of helping all myeloma patients and their families to live a full life, unburdened by the disease.”
Poornima is passionate about the application of science, technology, and data towards building a healthier planet. She is a tenacious entrepreneur, skilled at leading dynamic teams through transformative changes and transitions.
As CEO, Board Director, and Co-founder of Trace Genomics, she leads the Company's efforts in DNA mapping to unlock the hidden potential of soil for transformative change in sustainable agriculture. Under Poornima’s leadership, Trace Genomics has developed a sophisticated soil engine and has earned several accolades—the FoodShot Global’s Innovating Soil 3.0 Challenge; Forbes Top 25 Most Innovative AgTech; 2020 Technology Pioneer at the World Economic Forum; Agfunder’s Most Innovative U.S. Startup Pre-Series A; THRIVE Top 50 AgTech; and more.
With a Postdoctoral Fellowship from the University of California at Berkeley, a Ph.D. in Microbiology and Immunology from Stanford University, and a B.S. degree in Molecular Biology from the University of Texas at Austin, Poornima has pioneered breakthroughs to make genomics more affordable and accessible.
She taught the first-ever class on applications of genomics at Stanford, led successful partnerships and collaborations across academia, government, and industry, and has authored a dozen highly referenced publications in the genomics space. She is also an inventor on several microbiome patents.
As a multiple myeloma patient, Poornima will bring a unique perspective to her new role on the International Myeloma Foundation (IMF) Board. Her experiences equip her to serve as a strategic thought partner—advocating for patient-centric approaches and helping guide the IMF’s strategic directions for continued success and innovation in therapies and cures.
Sanjay Singh is a global finance and strategy leader who leverages his broad financial expertise to shape and influence business strategy and drive transformation. He is currently a Consultant and Board Member. He has worked as a Chief Financial Officer and Senior VP for Business Planning and Analysis at Qurate Retail Group (parent company of QVC Inc.); as Senior VP of Finance at Abercrombie & Fitch; and has had 22 years of experience in progressively senior financial leadership positions at Procter & Gamble.
As Managing Partner at ZS Associates, Maria Whitman oversees global commercialization strategy and solutions, driving transformation across industries. She played a key role in creating Myelo, the IMF’s AI-powered chatbot for patients, care partners, and healthcare professionals. With nearly 25 years of experience, she specializes in oncology, cell and gene therapy, and rare diseases.
A founding leader of ZS’s strategy and transformation practice, Ms. Whitman has guided numerous organizations in enhancing healthcare impact. Her expertise is widely recognized, with her insights featured in “The Wall Street Journal” and industry publications. As an IMF board member, Ms. Whitman is committed to “dedicating her time and expertise to advancing the goals and mission of the IMF and being a strong representative for the IMF’s values” while supporting patients globally. She holds an MBA from Wharton and a BS from La Salle University.
In Memoriam — Past Board Members
During their lifetimes, the following people served as members of the IMF's Board of Directors. The IMF mourns the loss of each of these individuals, and they will always be with us in spirit:
Jack Aiello, Aldo Del Col, Mark DiCicilia, Mike Katz, John O'Dwyer, and Dr. Edith Mitchell
Diane Moran, RN, MA, EdM, is an experienced nurse with advanced degrees in education and organizational management, and a highly accomplished healthcare executive with more than two decades in the pharmaceutical industry prior to joining the IMF in April 2006.
Peter Anton is a global marketing and communications leader with over 30 years of experience driving strategy, brand growth, and audience engagement across startups and major corporations. He currently leads global marketing and communications for the International Myeloma Foundation (IMF), leveraging his deep expertise in marketing, branding, and team leadership.
Peter has an extensive background in media and entertainment, having held key leadership roles at Sony Music, Sony Pictures Digital, and TMINUS10—a Sony Broadband venture he co-founded and led as President & CEO. He also served as VP of Digital Strategy & Marketing for The Grammys, where he built the department from the ground up, advised Grammy Foundations (MusiCares and Grammy in the Schools), and conceptualized Grammy Live, a pioneering multi-day interactive digital experience.
Peter also played a pivotal role in shaping the Brammo Electric Motorcycles brand and successfully launching its products internationally. More recently, he led global marketing and creative services at HomeExchange.com, the world’s largest home-swapping network, where he spearheaded brand growth and global expansion.
A visionary marketing strategist, Peter is also known for building and leading exceptional teams, fostering collaboration, and empowering talent to drive innovation and success.
Sylvia is a strategic fundraiser with a diverse background bringing more than a decade of experience in developing and implementing principal and planned gift strategies; managing principal gifts and planned giving events, meetings, and engagements while working in prestigious institutions such as RAND Corporation, Pardee RAND Graduate School, the University of Southern California (USC), and University of California, Los Angeles (UCLA). Sylvia comes to the IMF with a proven track record of implementing best practices to strengthen donor engagement and expertise in building a culture of philanthropy. Sylvia earned her M.P.A. from the University of Southern California and a B.A. in communication studies from the University of California, Los Angeles
Dr. Joseph Mikhael is a Professor in the Applied Cancer Research and Drug Discovery Division at the Translational Genomics Research Institute (TGen), an affiliate of City of Hope Cancer Center. He is also the Chief Medical Officer of the International Myeloma Foundation (IMF).
Dr. Mikhael is a consultant hematologist and Director of Myeloma Research at the HonorHealth Research Institute where he conducts phase 1 clinical trials. He just completed a term as Councilor on the American Society of Hematology Executive. He also recently led the ASCO guidelines for multiple myeloma.
Dr. Mikhael was recently a hematologist at Mayo Clinic Arizona where he served as a Professor at the Mayo College of Medicine, Associate Dean of Graduate Medical Education, and Deputy Director - Education of the Mayo Clinic Cancer Center. He has been recognized with numerous awards in education including being in the Mayo Clinic Resident and Fellow Association Hall of Fame as Educator of the Year. He was also recently named in the Top 100 Doctors in the United States.
Dr. Mikhael did his initial medical school training in Ottawa, Canada, followed by his Hematology Residency at Princess Margaret Hospital in Toronto. He then did a Multiple Myeloma Fellowship there along with a master’s degree in Education from the University of Toronto. He was on staff at PMH until being recruited to Mayo Clinic in 2008.
He specializes clinically in plasma cell disorders, namely multiple myeloma, amyloidosis, and Waldenström's macroglobulinemia. Dr. Mikhael is currently the principal investigator of many clinical trials, primarily in multiple myeloma. His other clinical research interests also include pharmaco-economics, communication skills, and media relations. He has published more than 150 peer-reviewed articles in these fields. He lectures internationally on a regular basis. He is an active member of the IMF’s International Myeloma Working Group and serves on the editorial board of the Journal of Clinical Oncology.
Dr. Mikhael is leading the IMF’s M-Power Project, which seeks to improve the care delivered to African Americans with myeloma – a disease with double the incidence in African Americans than white people. Dr. Mikhael also spends about twenty percent of his time in the developing world, seeking ways to enhance access to myeloma therapies in underprivileged countries.
Lisa Paik is currently Executive Vice President of Research & Operations for the IMF and serves as the point person for the International Myeloma Working Group's (IMWG) projects and programs, including the Immune Therapy Database Registry and Retrospective Historical Control Projects. In her capacity as Executive VP, Lisa oversees multiple research projects and sub-projects with the Asian Myeloma Network (AMN), as well as the Brian D. Novis Junior Senior Grant Program. She is an Executive Staff Member of the Asian Myeloma Network and the IMF Scientific Advisory Board (ex officio). Lisa joined the IMF in 2001.
In her role as Chief Financial Officer, Jennifer Scarne manages the finances and operations of the Foundation. Having served in the public and private sectors, Jennifer has over 20 years of financial, accounting, and operational experience. Prior to the Foundation, she was the Controller of Morgan Creek Productions, a successful independent film company. Earlier in her career, Jennifer served in public accounting in the business and audit assurance areas at Ernst & Young LLP and KPMG, primarily serving clients in the entertainment, technology, and not-for-profit industries. She has a background as a certified public accountant, and received a Bachelor of Science degree in Accounting with a minor in Psychology from Loyola Marymount University. Jennifer previously served on the board of the Good Shepherd Center for Homeless Women and Children serving as Vice President of Finance. She joined the Foundation in March 2007. Her deep commitment to the IMF’s mission makes her a strong leader in the fight to cure multiple myeloma.
Robin Tuohy - Vice President, Patient Support
25-Year Care Partner | Advocate | Support Group Leader
Robin has been a passionate and dedicated advocate in the myeloma community for 25 years. Her journey began in 2000 when her husband was diagnosed with myeloma at the age of 36. This personal experience motivated her to join the International Myeloma Foundation (IMF) in 2005, where she focused on supporting patients, care partners, and expanding the IMF’s network of myeloma support groups.
As Vice President, Patient Support, Robin leads the IMF’s Support Group Team, providing educational resources and guidance to over 150 local and special interest support groups across the U.S. She plays a key role in IMF cornerstone programs, such as Patient & Family Seminars, Regional Community Workshops, and Living Well webinars all designed to provide critical information and support to those impacted by myeloma. Internationally, Robin is involved in the IMF’s Global Myeloma Action Network, helping advocate for the global myeloma community.
My "why" is rooted in a deeply personal understanding of myeloma and a profound compassion for patients and their families—shaped both by my own experience as a care partner and my professional commitment to the cause. Every step of my journey has been guided by a singular mission: to educate, empower, and unite the myeloma community. My purpose is clear: to ensure that no one faces the myeloma journey alone. Working with the International Myeloma Foundation (IMF), I am honored to contribute to the IMF’s vision of "a world where every myeloma patient can live life to the fullest, unburdened by the disease."
Betty Arevalo is a licensed vocational nurse (LVN). For three years prior to joining the IMF, she provided patient care at CHA-Presbyterian Medical Center and at a convalescent home for disabled and subacute patients in Los Angeles. At the IMF, Betty helps maintain the computer database and stock inventory and prepares materials for all IMF meetings, seminars, and conferences. In addition, she answers Spanish-language IMF Hotline calls, assists Spanish-speaking participants at IMF Patient & Family Seminars, and coordinates Spanish multiple myeloma support group meetings.
Becky Bosley, BSN, RN - Director, Support Groups
Oncology Nurse Since 2006 | Breast & Ovarian Cancer Survivor | Support Group Leader
Becky has been an oncology nurse since 2006, and for the last eight years, has primarily focused on myeloma. Since 2018, she has led the MidAtlantic Myeloma Support Group and co-leads the Living with High-Risk Myeloma virtual special interest group, which she founded in 2023. Passionate about empowering patients with education, she leverages her oncology nursing expertise to support myeloma patients and their care partners. As a breast and ovarian cancer survivor, she brings a deeply personal understanding of the challenges faced by those diagnosed with cancer.
“Having volunteered with the IMF for several years prior to coming on staff allowed me to see a glimpse into the passion of every single person on staff. I felt the same passion while working with the myeloma coMMunity. The longevity and impact of the IMF is so inspiring in itself and I wanted to be a part of continuing that legacy. Patients know that they can count on the IMF for support and I am proud to contribute!”
Brittnay Brandon joins the IMF after 12 years of hospitality in hotels where she was involved in the planning and execution of many events from small medical meetings to large scale social galas. She has a background in planning many social events outside of the hotels including weddings, fundraisers, and personal parties.
Brittnay was raised with a “heart of service” which included volunteering at many community events, being a mentor to youth through the Tarik Glenn Foundation (Dream Alive). Also heavily involved in community outreach and social justice forums Brittnay hopes to continue her service at IMF. Brittnay lost her father to Non-Hodgkin’s Lymphoma in January 2014 and currently has an aunt battling Multiple Myeloma so the IMF’s mission resonates with her.
With 20 years of nonprofit experience, Michelle is passionate about philanthropy and helping organizations grow their impact. As the Director of Prospect Development for the IMF, she brings a deep understanding of fundraising strategy, campaign planning, and making the most of data to support meaningful giving. She is excited to join the IMF and work alongside a passionate team dedicated to advancing its mission
Lisette joined the IMF mid-2024, bringing with her a strong background in administrative work. Lisette lives in Nevada with her husband, 3 amazing kids and a dog. She enjoys spending time with her family. Lisette is honored to be part of a team that supports an important mission such as the IMF’s.
Danielle Doheny joined IMF after a six-year career on Capitol Hill where she worked as an adviser to two members of Congress. As a Congressional staffer, Danielle’s primary focus was on healthcare and issues related to energy, the environment, science, and technology. In her role with the IMF, she advocates on behalf of the multiple myeloma community to the executive and legislative branches of the federal government. Danielle’s father is a multiple myeloma patient, and she has a unique passion for her work on behalf of patients and their families. Danielle graduated cum laude from Thiel College with a Bachelor of Arts degree in History.
Jon Fitzpatrick worked with the IMF for several years as a volunteer before joining our team as the Support Group Coordinator. He is excited to turn his passion for helping others into a career. Jon’s interest in working closely with multiple myeloma patients and caregivers was sparked as a result of his experience in the field of emergency response.
Kimberly, a distinguished alumna of the University of California, Davis, holds a Bachelor of Arts in English and Linguistics accompanied by a minor in Education. With a wealth of experience in nonprofit management and fundraising, Kimberly brings both expertise and passion to her role as Assistant Director of Development, Peer to Peer Fundraising.
As an experienced philanthropy coordinator, Kimberly’s ability to develop and nurture strong donor relationships and her involvement in numerous fundraising events underscore her understanding of philanthropic endeavors. Her prior experiences in the nonprofit sector allow her to understand the missions of the organizations she has served, fostering a commitment to conceptualize and execute impactful fundraising campaigns that have driven her success.
In 2008, Kimberly lost her grandfather, Bob, to multiple myeloma. This personal experience has driven her commitment to improving the lives of those affected by myeloma and supporting efforts towards finding a cure. She looks forward to joining the International Myeloma Foundation team and is excited to contribute to innovative fundraising strategies and advancing the organization’s mission.
Esther Garnica worked in Asset Management/IT for 24 years prior to joining the IMF Family. Esther is excited to have joined the IMF’s Operations Team and is currently assisting with IMF gift processing, translations for the Las Voces de Mieloma Spanish support group and other operational administrative needs.
Esther enjoys spending time with her family and loves gardening, cooking, and collecting recipes from all over the world.
Simona Grace is the Director of Development, Major Gifts at the International Myeloma Foundation, with over a decade of experience in fundraising and development across the private, public, and nonprofit sectors. She previously led major gifts at Chrysalis, building relationships with high-net-worth donors and furthering the organization’s mission. Before that, she managed a $2 million revenue portfolio at Pearson, the world’s largest publishing company, working with higher education institutions. She also launched and led a successful initiative that raised six figures to support women stepping into leadership roles. Appointed by the Mayor of Los Angeles, she serves as Vice President of the LA Commission on the Status of Women, advocating for gender equity. Outside of work, she is a mom and enjoys long walks with her Labrador, Oliver.
Sherrie Guerrero, SHRM-SCP is an accomplished business executive who has held leadership roles in both the private and nonprofit sector. She has an extensive background in communications and specializes in human resources with a senior certification from the Society of Human Resources Management.
Prior to her career in non-profit, Sherrie served as vice president of international distribution working in the entertainment industry where she developed a strong aptitude for building productive relationships. She believes that positive work environments are built through effective communication and serve as the foundation for a happy and rewarding work experience. Sherrie holds a Bachelor of Arts degree in Communications from Cal State University, Fullerton and a Certificate of Cultural Studies from the University of Granada, Spain.
Paul Hewitt joined the IMF in 2001 and has been one of the IMF's InfoLine Coordinators since 2005. Paul is dedicated to helping patients and caregivers focus on putting a game plan in place to cope with life with multiple myeloma. That structure, coupled with the information the InfoLine provides, can alleviate fear and give confidence to those affected by multiple myeloma. Paul finds this work to be very satisfying. In addition to his work at the IMF, Paul maintains an active acting career. He has starred on Broadway and in many movies and TV shows. Paul is a graduate of the Goodman School of Drama at DePaul University.
Kevin’s responsibilities include offering individualized website assistance to the large network of IMF-affiliated multiple myeloma support groups. He graduated from Cal Poly Pomona with a degree in Business – Computer Information Systems. Kevin has diverse hobby interests, including the culinary arts. He is also in L A Jin Yin, a martial arts organization that studies and participates in Dragonboat competitions and Lion dancing during Chinese New Year celebrations. He is an avid runner, completing the Los Angeles Marathon in 2014 and 2016.
Katie joined the IMF in early 2023, bringing in a strong background in event planning and client management. Katie was born and raised in Iowa, competing in many sports starting at a very early age. This led to a successful soccer career at the collegiate level, where she also studied communications and digital media. She is the mother to an amazing boy named Jaxon and spends a lot of her free time with him and traveling to new places. Katie loves what the IMF stands for and can’t wait to continue to be a part of the further education of all Myeloma patients and families.
Marya Kazakova is the Senior Director, Editor-in-Chief of Publications.
Missy Klepetar graduated from Reed College. She joined the IMF in the fall of 2006 and became part of the InfoLine team during the summer of 2008. Missy says that working on the InfoLine is the most rewarding thing she has done in a professional realm, and she feels privileged to be able to help patients and caregivers in this capacity. She understands the importance of imparting the latest and best information regarding treatment options, as well as discussing the complex issues surrounding multiple myeloma.
Missy also assists the IMF by proofing content for all IMF publications, including Myeloma Today.
She enjoys Colorado Avalanche hockey.
For six years, Sapna Kumar served as the IMF's Manager, Marketing and Communications. She brings editorial expertise from the publishing industry, from roles at companies including McGraw-Hill, Pearson Education, and Encyclopedia Britannica. In 2021, she served as a Digital Learning Manager with the American Academy of Physical Medicine & Rehabilitation, where she worked with medical professionals to develop Continuing Medical Education courses. She holds a B.A. in Writing from Purdue University and certificates in digital marketing, Google Analytics, and web-based communications. In the fall of 2022, she rejoined the IMF team to return to focusing on mission-driven work, always with the patients, caregivers, and the myeloma community at top of mind.
Phil Lange brings over 20 years of accounting experience to IMF. He graduated from Loyola Marymont University in 1979. Phil has extensive accounting experience, working for a wide variety of companies in entertainment, commercial real estate development, banking, manufacturing, publishing, non-profit, and healthcare. Phil is excited about working with the incredible team at IMF. Phil and Steve, his life partner of 18 years, were legally married in California on July 24, 2008. This year, they rescued a pair of American Rat Terriers named Jocko and Oreo.
With over 7 years of experience in marketing and communications, I am currently leading the development and execution of effective marketing and communications strategies at the International Myeloma Foundation (IMF), a nonprofit organization dedicated to improving the lives of people affected by multiple myeloma. I have helped grow tent pole campaigns to a reach of 40+ million across 46 countries, raising awareness and funds for the organization's mission and programs.
My core competencies include creating compelling content that engages and informs target audiences, producing and editing various digital media content, including video series, webinars, and social media posts, and building strong relationships with stakeholders, partners, and donors. I am also Google Analytics certified and skilled in WordPress and digital strategy. I am passionate about storytelling and creating impactful marketing and communications strategies that help organizations achieve their goals.
Jim Needham is responsible for assisting the IMF with graphic design and production of the IMF's vast array of printed materials. He was born and raised in Southern California, graduated from UCLA in Design, and has worked in that field ever since. He is experienced as an art director, graphic designer, illustrator, photographer, copywriter and copy editor, and has done a wide range of projects in a spectrum of industries. After joining the IMF staff, he exclaimed, "Over the years I've done a lot of work to help companies successfully sell products and make money. In 2005, I had a strong desire to use my experience, skills, and talents to help people who needed help. I wanted to work for a nonprofit organization, and marvelously, this job at IMF has made my wish come true."
Meghan joined the IMF in 2019, bringing with her a strong background in administrative work in the healthcare sector, coordinating patient care with physicians and nurses. Meghan lives in Rhode Island and works at the local IMF Meetings Department office in Barrington, RI. She is the mother of an amazing 12 year old son, Brennan, and enjoys spending time with her family. Meghan’s grandmother lost her life to myeloma in May 2013, and Meghan is honored to be part of a team that supports the IMF’s mission.
Selma has spent more than 25 years working in the non-profit sector for organizations providing humanitarian services nationwide. She joined the International Myeloma Foundation in 2009 and is currently the Director of Operations. Selma is a native Californian, a mother, loves animals and enjoys helping others.
Joy’s background in the field of entertainment includes working in client services at BFM Digital and at Shapeshifter Inc. She is a graduate of Eastern Michigan University in Ypsilanti with a degree in Film Studies and a minor in Art. She is an avid reader, writer, singer, and hiker.
Cecilia Romero , Program & Technology Manager
Public Health Advocate | Technology Educator | Project Management Expert
Cecilia has more than 10 years of experience in project management and is passionate about keeping projects, programs and initiatives running smoothly through effective processes and procedures. Her background has been in been in higher education with a focus on improving the health and wellbeing in the communities we serve. She enjoys working with such a passionate team focused on improving the quality of life of myeloma patients while working toward prevention and a cure.Shape
Miko Santos has extensive experience in mass media and news organizations. A graduate of De La Salle University, he holds a dual degree in Marketing and Behavioral Science. He started out as a photojournalist for Manila Times and Sun Star, covering everything from community events to coups d'etat and eventually becoming the New Media Editor for Asian Journal, one of the largest Filipino-American news organizations in the US. He has also worked as a stringer for Philippine-based broadcast networks ABS-CBN and GMA-7. No stranger to the cancer cause, he once biked a thousand miles for three weeks around the Philippines with the Cancer Warriors Foundation to raise awareness and funds for children afflicted with cancer.
As the Senior Research Project Coordinator, Narmeen Shammami facilitates all aspects of contract management and research projects. Narmeen's diverse experience as Director of Operations in digital media enhanced her leadership roles within research and development. She specializes in innovative medical strategies.
Narmeen earned her Master of Science from Barry University, where she graduated cum laude, and obtained her Bachelor of Arts in Anthropology and Women and Gender Studies from the University of Michigan-Dearborn.
A Los Angeles native, with the IMF for over 5 years. Work in both the Accounting and Distribution departments doing a variety of tasks. Assist with financial analysis, payables, invoices and many other financial operations to ensure all details and activities have been accounted for and allocated correctly. In addition to fulfilling daily order requests, assist in distribution preparing shipments, deliverables and materials necessary for IMF’s larger meetings and events throughout the year. "I am a proud member of team IMF and could not be happier for all the success and growth the foundation has seen over the years."
Rafi Stephan comes to the IMF from the world of entertainment, where he last served as an executive assistant in International Television Distribution at Warner Brothers. He was at Warner Brothers from 2006 to 2014, during which time he also served as special events director for the business resource group Network for Asian Pacific Americans (NAPA). Rafi’s film industry experience includes being a producer and production manager for independent films, including Sundance selection Must Be the Music and Gus Van Sant’s Speedway Junky. He is a graduate of Texas Christian University in Fort Worth with a degree in Film/Television and a minor in History.
Based in St. Petersburg, Florida, Daria Tabota joins the IMF with a wealth of digital marketing, social media, and public relations experience. As the IMF’s MarCom Associate, she is responsible for helping manage the organization’s digital assets and works with the MarCom team on social media and email campaigns. Daria also helps coordinate MarCom projects with a variety of stakeholders to support timely delivery.
With 17 years of expertise in continuing medical education, Joi joined the IMF in December 2023. Her extensive background includes invaluable contributions to project management teams, delivering excellence in outcomes and insights. Joi is driven by a profound commitment to project success, ensuring seamless operations from project inception to fruition. Her decision to join the IMF reflects her eagerness to align with a dedicated group of people who are focused on improving the quality of life of myeloma patients while working toward prevention and a cure.
In addition to her professional pursuits, Joi is currently pursuing a degree in Political Science at Howard University in Washington, DC. This academic endeavor exemplifies her commitment to continuous learning and intellectual growth.
Jenn Wieworka, DNP, RN, AGCNS-BC, OCN - Director, Support Groups
Doctorate-Prepared Nurse | Clinical Nurse Specialist | Support Group Leader
With over a decade of experience in the oncology field, Jenn is passionate about improving patient outcomes and reducing health disparities. Her journey started in inpatient oncology (2012-2017), where she gained hands-on experience in providing compassionate care to patients facing life-changing diagnoses. From 2017 to 2024, she practiced as a Clinical Nurse Specialist (AGCNS-BC) in radiation oncology, where she streamlined processes and improving patient experiences through process improvement and health literacy initiatives. As a proud Oncology Certified Nurse (OCN), her work is centered on education, patient advocacy, and making complex medical concepts more accessible to patients. Jenn's goal is always to meet patients where they are, creating a supportive and empathetic environment where they can feel informed and empowered throughout their treatment journey. Now, with a Doctorate in Nursing Practice, Jenn is dedicated to advancing evidence-based practices and continuing to champion the role of nurses in shaping the future of oncology care.
“I’m driven by the belief that every patient deserves not only the best medical care but also the emotional support and understanding that allows them to navigate their health journey with confidence. Having witnessed the impact of cancer on my loved ones, I understand the fear, uncertainty, and need for clear communication in ways that empower patients to take control of their care. Being at the forefront of science and constantly learning helps me stay committed to the latest advancements in oncology care. In my work, I strive to make a meaningful impact by improving processes and policies, while creating an environment where patients feel supported at every step. I’m dedicated to helping people through some of the most challenging moments in their lives with the knowledge, empathy, and dedication they deserve.”
Sandy is a seasoned grants manager with extensive experience in project management and leading effective and compliant solutions for sponsorship funding processes as well as experience in public opinion research. Prior to joining the IMF, Sandy worked at Karyopharm Therapeutics, a pharmaceutical company focused on developing novel drugs to help treat patients with blood cancers and solid tumor malignancies. She comes to the IMF highly skilled in budget, compliance, and database management and was recognized for her outstanding contributions and commitment to supporting operational needs. Sandy earned a B.A. in Psychology from Johns Hopkins University and Master of Education, Guidance and Counseling from Frostburg State University.
Yara William, DrPH, MHA Associate Director, Support Groups
Doctor of Public Health | Community Engager | Patient Advocate
Yara has a background in public health and health administration, with experience in nonprofit, government, and university settings. She is passionate about health equity, community engagement, and patient advocacy. Her work has focused on bridging the gap between the community and health and social services. In her current role, she strives to break down barriers to resources, making sure every patient and care partner feels supported. Through education and connection, she helps empower individuals and strengthen support networks.
“No one should have to face myeloma alone. Too often, patients and families struggle—not because resources don’t exist, but because they’re hard to find or access. I believe in the power of community, in listening, and in making sure everyone feels seen and valued.”