Shared Experiences Help To Better Understand the Myeloma Journey
Support groups empower patients and care partners with information, insight, and hope. The IMF provides educational guidance to a network of over 150 myeloma-specific groups. We are happy to connect you with other survivors and care partners, through an existing support group or by forming a new one.
Find a Local Group
The IMF can help you start one. Contact IMF Vice President of Support Groups Robin Tuohy at [email protected] or 203-206-3536.


Robin Tuohy worked as a paralegal for over 10 years at a Fortune 500 company before marrying Michael, who was diagnosed with multiple myeloma in 2000, and having children Ally and Mikey. She became involved with the IMF and attended Advocacy Days in Washington, DC, in 2001, and then began the first support group for multiple myeloma patients in Connecticut with the help of the IMF. She feels her experience as Michael's caregiver gives her a unique perspective on multiple myeloma. The Tuohy family carried their message of life after diagnosis across the country in 2007 on the Myeloma Mobile. Robin's motto is "The purpose of life is a life of purpose," and she hopes that she is able to help others dealing with multiple myeloma.


Kelly Cox spearheads IMF’s Regional Community Workshops, events that bring the most cutting-edge research and top multiple myeloma doctors to patients, caregivers, and healthcare workers across the country. Kelly also works closely with 40 support groups nationwide, carrying the IMF’s mission directly to those affected by multple myeloma. Kelly brings enthusiasm and energy to multiple myeloma awareness and outreach wherever he travels for personal visits, as well as via phone calls and emails.
Kelly worked for Warner Bros. International Television for three years prior to arriving at the IMF. He specialized in marketing, product management, and international placement for shows such as “Friends,” “E.R.” and “Smallville,” among others. Prior to this Kelly was involved with fundraising for specialized research into diseases of the retina, including macular degeneration and retinitis pigmentosa.


Nancy Bruno has been active in Support Groups since shortly after her husband Mike was diagnosed with mulitple myeloma in late 1998. What began as comprehensive note-taking during support group meetings led to her becoming a writer for the group’s newsletter. When Andy Lebkuecher’s wife, Cathy, died in December 2006, Andy asked Nancy to lead their local Atlanta group temporarily, "and I haven’t stopped." Her energy and commitment will continue as Regional Director of Support Groups.

Support groups bring together myeloma patients, caregivers, family members & friends. Patients involved in a support group experience more positive outcomes due to their understanding of treatment options and enables them to have key conversations with their healthcare team.

The IMF hosts over 100 myeloma support group leaders at the annual Support Group Leaders Summit. This gathering inspires, informs, and empowers both experienced and novice support group leaders to gain a fresh perspective on all that they do for their local myeloma communities.
The IMF Summit provides educational opportunities that include updates on the latest myeloma research; advocacy issues that impact patients; technology tools; social media outreach; resilience for patients and care partners; along with other vital topics.

In the Mind, Body, and Wellness section of myeloma.org, you will find accessible and inclusive wellness resources for myeloma patients and caregivers. Here, members of the myeloma community find support and empowerment through education, community, and the practice of self-care.

The International Myeloma Foundation has joined forces with Atrium Health Levine Cancer Institute’s Disparities & Outreach program to empower people in the Charlotte, North Carolina area to help change the course of myeloma. M-Power Charlotte is dedicated to removing barriers to care and improving outcomes in the disease.

Smart Patients is an online community where patients and caregivers affected by complex illness learn from each other about treatments, challenges, and how it all fits into the context of their experience.

Two-day educational patient, family, and caregiver support in your hometown.

These one-day workshops offer families a condensed version of the full Patient & Family Seminar at no charge.
Contact the InfoLine
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