Twin Cities

Covid Update

The IMF applauds the efforts of the volunteer leaders that conduct local and virtual myeloma support group meetings.  We are cautiously optimistic for local support groups to return back to in-person or hybrid meetings (combination of in-person and virtual) when it is safe in each community.

Leaders and groups are encouraged to use this updated tool and guidance from the CDC to help each group to decide when and how to transition to in-person or hybrid meetings.  The IMF will continue to provide Zoom licenses to all myeloma support groups that continue to meet virtually or have hybrid meetings.

CLICK HERE to search by State and County for Covid-19 community levels

If you are immunocompromised or high risk for severe disease, learn more about how to protect yourself 

Visit the CDC website for more information at https://www.cdc.gov/

twin cities support group

Attention: Our group is currently meeting monthly online via Zoom, email Viki or Kevin at [email protected] to get the link. Thank you!

Twin Cities SG Flyer

For more information contact

Viki Kimsal or Kevin Veenstra
Email: [email protected]

Our group is currently meeting monthly online via Zoom, email Viki or Kevin at [email protected] to get the link.

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twin cities support group collage

 

Upcoming events

IMF Events

Jul 07
Best of 2022 ASCO & EHA Webinar
July 7, 2022 4:00 pm PST

Support Group Events

Jul 09
Topic: Cancer Legal Care
July 9, 2022 10:00 am to 12:00 pm CST
Aug 13
Risk Status in Multiple Myeloma-Personalizing Your Care
August 13, 2022 10:00 am to 12:00 pm CST
Sep 10
Picnic
September 10, 2022 10:00 am to 12:00 pm CST
Oct 08
Topic: Insurance and vaccinations
October 8, 2022 10:00 am to 12:00 pm CST
Nov 12
Nurse Leadership Board presentation
November 12, 2022 10:00 am to 12:00 pm CST
Dec 10
Alumni and Group Sharing
December 10, 2022 10:00 am to 12:00 pm CST

View our past meetings here.

2020
January EQ/ EI and MM, Kara Johnson, Park Nicollet
February Targeted therapies: Variability in Patient Responses, Dr. Brian van Ness, U of MN
March Cancelled
April Small group discussion
May Small group discussion
June Health /Wellness of Patients w/ Relapsed Refractory MM, Rebecca Bean, R.N., Karyopharm
July Small group discussion
August Emerging Therapies in MM, Dr. Dingli, M.D. PhD, Rochester Mayo
September Diet and Nutrition for MM patients, Angela Stephens, MN Oncology, Clinical Dietician
October MM Open Discussion with Dr. Lacy, M.D., Rochester Mayo
November Choosing your insurance, Kari Mallone, Twin City Underwriters
December Holiday Pot-Luck and sharing
2019
January Neuropathy Management, Dr. Timothy Helm, Realief Centers of MN
February Co-Pay Assistance. Brian Arnold, Walgreen’s Specialty Pharmacy and Small group discussion/ sharing
March Personal reflections on his history with MM, Mayo, Latest Treatment Trends, Dr. Kyle, Mayo Clinic
April Living with Myeloma, Julie West, RN, BSN, OCN, Celgene
May IMF Regional Conference, no TCMMSG meeting
June Role of muscle strength training in reversing biological aging processes and improving self-efficacy Dr. Shernan Holtan, U of MN
July Senior Linkage Line Resources, Kersch Cooks
August Understanding your lab results, Melanie Smerillo, MSN, Takeda
September Small group discussions
October Insurance, Co-Pay Assistance and Vaccinations. TCU, Walgreen’s Specialty Pharmacy
November Living with MM discussion, Teresa Micelli, RN, BSN OCN, Mayo
December Annual Pot-Luck and group sharing
2018
January Drug Therapy -Daratumumab (Darzalex)
February Understanding Your Lab Values
March Car-T cell therapy
April Cancelled due to snow storm
May Patient Legal Issues
June Intro & Tour of Frauenshuh Cancer Center
July Open Discussion
August Radiology
September UofIA treatment regimen / MM101
October How to Choose the Right Insurance & Vaccinations
November Medical Cannabis
December Open Discussion
2017
January Neuropathy
February 3rd Party Payment Support
March Open Discussion/ Sharing
April New Drug Therapy - Empliciti (elotuzumab)
May Lab Values and Tests, how to interpret
June IMF annual meeting
July Myeloma and Diet
August UMN Myeloma Overview and Transplants
September IMF overview of support for research, education
October Emotional support, coping skills and community resources
November Insurance overview and common misconceptions
December Alumni meeting/ general sharing
2016
January Open Discussion/ Sharing
February Mayo Transplant Coordinator/ open questions
March Metropolitan Area Agency on Aging resources
April Dr. Lacey open Myeloma discussion
May New Drug Therapy - Ninlaro
June Transplant overview, allogeneic & autogenic
July IMF annual meeting
August Genetics, biology of myeloma cells & new treatment approaches
September IMF support for research, education
October Drug Therapy Celgene (Thalidomide, Revlimid, Pomalyst)
November Open Discussion/ Sharing
December Alumni meeting/ general sharing
Ask doctor durie title card
Ask Dr. Durie Videos
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Week in Review by Dr. Brian G.M. Durie
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imf multiple myeloma informational publications
IMF Publications
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A group of scientists review a test sample in a medical research lab
Research
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Multiple myeloma support group members meet in a group circle to chat
Support
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Advocacy
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Our group mission is to Inspire, Inform and Support. Our meetings are a mix of presentations from experts and sharing from patients, caregivers and friends. Some topics we discuss include the latest in medical treatments, understanding test results, living better with myeloma, coping with side effects, choosing the right medical insurance and overall sharing how we all are doing. Take advantage our breadth of the knowledge and experience! Ask us, we’ve been there . . . Together we all grow stronger!

For more information contact Viki Kimsal, Pat Harwood or Kevin Veenstra at [email protected] to:

-get on our distribution list so you can receive our meeting announcements, minutes and other information

-have someone contact you if you need to someone to talk to. Please leave your contact name, phone number and best time/ day to reach you

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