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EDIT 3/27/2013: Over the past few weeks I have received many comments on my two most recent blogs. I apologize for not responding to your comments and questions. Please know that they are very important to me. I am traveling to the International Myeloma Workshop in Kyoto, Japan, and will…
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Black Swan Opens a New Pathway to Cure MyelomaEDIT 3/27/2013: Over the past few weeks I have received many comments on my two most recent blogs. I apologize for not responding to your comments and questions. Please know that they are very important to me. I am…
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The personal stories of toxic exposures potentially linked to myeloma just keep on coming! I am grateful to all who shared them with me. And once again, the 9/11 compensation fund was in the…
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My recent blog, "New Study Provides Clues to What Causes Myeloma," clearly struck a chord with many myeloma patients. The heartfelt comments and questions are noted and really appreciated. A first point is that New York residents…
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Six months ago, cancer was added to the list of illnesses covered by the $3.4 billion World Trade Center fund. Now, as reported on December 19th in the…
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As I paged through the second edition of Dan Buettner's "The Blue Zones," pondering the benefits of goat's milk, beans, garden vegetables and the like, I suddenly noticed a sentence with the word "cookies" in it! His personal interviews with the centenarians…
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Ikaria Blue Zone Diet and Longevity In the October 28, 2012 issue of the New York Times Sunday Magazine, Dan Buettner discusses "The Blue Zones": places in the world where an unexpectedly…
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After the teleconference on "10 Steps To Better Nutrition," numerous comments, questions, and helpful suggestions came into the International Myeloma Foundation (IMF). It is clear that many details about food and drinks are of great interest. So I will start with some of the…
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We have just returned from a series of meetings in Kyoto, Japan: July 6-8, 2012. Kyoto is the site for the IMW (International Myeloma Workshop) meeting in April 2013 so it was especially helpful to have a preview of the city and International Conference Center (ICC) venue. The ICC is a large center…
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This may sound like a skit from "Saturday Night Live," but unfortunately, the connection is real. The first thing to emphasize is that, although it is real, further investigation is required before cookies are added to the "do not eat" list.
Acrylamide
The concern comes…
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Whether or not to seek a second opinion is a key question and a concern for all patients with myeloma. This 10-step summary attempts to answer the "ifs, whens, and hows" related to seeking a second opinion.
1.) Should you consider a second opinion?
It is…
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A return visit to Asia by the IMF team of me, Susie Novis and Senior Global Analyst Dan Navid this past week was an exhilarating blur of activities that instructed, impressed and touched us deeply.
On Thursday morning we visited the sponsoring institution--Shanghai Changzheng University…
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A recent publication in the New England Journal of Medicine brought to attention the fact that tumors do not have a single genetic type or signature. Multiple biopsies revealed diverse genetic patterns within the same cancer samples in the same patients. No longer can we rely upon a…
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Caring Enough to Find and Sustain a Myeloma CureThe United States is running out of Methotrexate®, which is part of a drug cocktail that cures acute lymphatic leukemia in children. Why? Because there is not…
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Last year, the IMF experienced a first at the Boca Raton Patient & Family Seminar. Part of the way through the Friday night dinner, Bob and Cindy Feltzin - longtime supporters of the IMF and leaders in the South Florida…
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Myeloma patients need access to information about their disease to get the best care. The IMF has been enhancing educational activities in Europe for over 15 years. In 2011, there were 10 Patient & Family seminars (PFS), 7 Community Workshops, and 7 Doctor Community…
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This Sunday marks the 10th anniversary of the 9/11 attacks on the World Trade Center towers in New York. Among the casualties sustained that day, were a number of first responders who, instead of running away from dangerous ash clouds that enveloped the streets of Manhattan, ran toward them in the…
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Last weekend, the IMF held our fourth and final Patient & Family Seminar of the year in Philadelphia, PA. We had an uninvited guest make her presence known in the form of Hurricane…
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China: A New Frontier in the Search for a Myeloma CureI have just returned from the IMF's visit to China where there are more myeloma patients than anywhere else in the world. It is with this in mind that the IMF has established the Asian Myeloma Network,…
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Ever since carfilzomib, made by ONYX Pharmaceuticals, began progressing through the clinical trials process from Phase I forward, it has been a regular topic of interest on the IMF Hotline. The recent…
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Quantum Effects in DNA: What They Could Mean for Cancer Research Reading about the newly re-discovered Rainbow Toad in Borneo reminded me of my January 27,…
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Exploring Innovative Approaches in the Quest for a Myeloma Cure
At this month's Patient & Family Seminar in Dallas, TX, I posed this question to the panel of myeloma experts: "What myeloma…
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At the end of every month, the International Myeloma Foundation Newsroom will feature a wrap-up of some of the most fascinating studies about multiple myeloma from medical journals. Here is the August 2026 edition.The IMF team of medical editors has provided overviews of key studies. Yet, we…
The International Myeloma Foundation Wants You to #KnowMyeloma for Blood Cancer Awareness Month 2026
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The International Myeloma Foundation Wants You to #KnowMyeloma for Blood Cancer Awareness Month 2026 STUDIO CITY, CA, August 27, 2026 – Designated in 2010 by U.S. Congress, September Blood Cancer Awareness Month aims to create awareness, increase fundraising, and support…
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Personal view article on 'Redefining plasma cell leukemia,' co-authored by IMF Chairperson of the Board Dr. S. Vincent Rajkumar and IMF Scientific Advisory Board Member Dr. Shaji Kumar, was recently published in The Lancet Haematology. Published in The Lancet Haematology and co-authored by…
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DOWNLOAD SLIDES Learn how to navigate relapsed multiple myeloma with three of the world's leading myeloma specialists — covering CAR T cell therapy, bispecific antibodies, antibody drug conjugates, supportive care, and the future…
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European Commission Approves Tecvyali (teclistamab) in Combination with Daratumumab for Relapsed/Refractory Multiple MyelomaAugust 21, 2026—According to a press release from Johnson & Johnson, "the European Commission (EC) has approved an indication extension for…
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Register NOW for the FREE IMF Virtual Myeloma Community Workshop November 16, 20263:00 PM PT / 4:00 PM MT5:00 PM CT / 6:00PM ET
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FDA-accelerated approval of iberdomide with this combination based on efficacy results from EXCALIBER-RRMM, using MRD as a clinical trial endpoint On Thursday, August 13, the…
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Multiple Myeloma Health Disparities Explained Health disparities in multiple myeloma can affect who develops the disease, how quickly it is diagnosed, and patient outcomes. In this Myeloma in a Minute video, Dr. Joseph Mikhael explains why people of African descent have twice the risk of…
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IMWG Awards Dinner Celebrates Two Luminaries in Myeloma Research Hermann Einsele and Noopur Raje are honored by the International Myeloma Working Group By Heather Cooper Ortner, IMF President & CEOThe 17th Annual…
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How Multiple Myeloma Can Affect Sexual HealthMultiple myeloma sexual health concerns are common and valid. Symptoms from myeloma, such as fatigue and pain, can affect desire and comfort. Stress surrounding a new diagnosis can also contribute, leading to changes in mood,…
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Stem Cell Transplant for Multiple Myeloma ExplainedWhat is a stem cell transplant, and why is it used to treat multiple myeloma? In this Myeloma in a Minute video, Beth Faiman, PhD, MSN, APN-BC, AOCN®, BMTCN®, FAAN, FAPO, explains how autologous stem cell transplant works, why it can help…
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Can Multiple Myeloma Be Cured? Dr. Joe Answers Your Biggest Myeloma QuestionsWhy might someone need CAR T-cell therapy while already in remission? And why are some people with MGUS or smoldering myeloma told to wait and watch? In this Q&A, Dr. Joseph Mikhael answers patient questions about…
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Positive topline results from the randomized three-arm Phase 3 MonumenTAL-6 trial announced: Tec-Tal and Tal-P investigational arms showed improved PFS and OS vs standard of care (EPd or PVd) control arm in RRMM On Thursday, July 23, Johnson & Johnson announced positive topline results…
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New CAR T Therapy, MRD Testing & More: Dr. Joe Answers Your Myeloma QuestionsIs a new CAR T-cell therapy coming for people with multiple myeloma? In this Q&A from the International Myeloma Foundation, Dr. Joseph Mikhael answers questions from the San Fernando Valley Support Group about…
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At the end of every month, the International Myeloma Foundation Newsroom will feature a wrap-up of some of the most fascinating studies about multiple myeloma from medical journals. Here is the July 2026 edition.The IMF team of medical editors has provided overviews of key studies. Yet, we…
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WASHINGTON, D.C. July 21, 2026 – The Coalition to Improve Access to Cancer Care (CIACC), convened by the International Myeloma Foundation (IMF), applauds Senators Tina Smith (D-MN) and Jerry Moran (R-KS) for reintroducing the bipartisan Cancer Drug…
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Frequently asked questions on the FDA's approval of Sarclisa SC (isatuximab-irfc), in combination with multiple myeloma indications On Thursday, July 9, the U.S. Food and Drug Administration (FDA) approved subcutaneous Sarclisa (isatuximab-irfc) for multiple myeloma indications.…
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The Most Searched Multiple Myeloma Questions, Answered by a Patient and Care PartnerLiving with multiple myeloma brings many questions for patients, care partners, and families. In this video, 17-year myeloma patient Malcolm Katz and his care partner Sally Weber answer the most searched…
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Landmark ECOG-ACRIN ENDURANCE Study Co-Authored by International Myeloma Foundation Leaders Provides Evidence for Optimal Duration of Maintenance Therapy STUDIO CITY, CA, July 15, 2026 — Study results from the …
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What Is Anticipatory Grief?Anticipatory grief, also called pre-loss grief, affects family members, care partners, and even the person living with multiple myeloma. It's different from traditional grief because the loss hasn't occurred yet, creating a complex emotional state where hope and despair…
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Your legal rights in the workplaceSeveral federal laws in the United States protect your rights in the workplace when living with multiple myeloma. These laws prohibit discrimination and provide job-protected leave for treatment and recovery.The following section breaks down some of the primary…
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FDA accepts new drug application for mezigdomide combination based on SUCCESSOR-2 trial results; Prescription Drug User Fee Act target action date set for May 13, 2027 On Monday, July 13, the U.S. Food and Drug Administration (FDA) accepted Bristol Myers Squibb's (BMS) New Drug Application (…