How We Do It
Our four pillars of Research, Education, Support, and Advocacy allow us to better serve the myeloma community.
The IMF is dedicated to finding a cure for those living with multiple myeloma. We have a range of initiatives to make this happen.
Black Swan Research Initiative
The signature project of the IMF’s Research division, Black Swan Research Initiative®, is a groundbreaking and collaborative effort to develop the first definitive cure for myeloma.
Brian D. Novis Grants
Established in 1995 in memory of its co-founder, these grants are awarded annually to promote research into all areas of myeloma in an effort to improve patient outcomes.
International Myeloma Working Group
Formed by the IMF to encourage dialogue and collaboration among the world’s leading myeloma experts, International Myeloma Working Group® (IMWG) members are divided into workgroups that examine such topics as frontline therapy, MRD assessment, the role of transplant, genetic risk stratification, renal impairment, and new treatments on the horizon.
Nurse Leadership Board
Founded in 2006 by the IMF, the Nurse Leadership Board® is a professional partnership to represent nurse experts caring for myeloma patients at leading medical centers. The NLB improves nursing care and self-care of patients with myeloma through consensus publications, symposiums, multimedia presentations, and research.
Because "Knowledge Is Power," the IMF brings educational seminars and workshops to communities near you, and provides a library of publications on myeloma care.
IMF Patient & Family Seminars and Regional Community Workshops
Are you looking for educational patient and caregiver support in your hometown? The IMF hosts Patient & Family Seminars in the U.S. and Europe. These seminars provide vital information on new treatment options in the pipeline and the latest clinical trials, access to myeloma experts, and camaraderie among attendees. Also, for those seeking support in smaller communities, the IMF hosts frequent Regional Community Workshops, which offer families a condensed version of the full Patient & Family Seminar at no charge.
IMF Publication Library
The IMF produces and maintains an extensive library of up-to-date educational publications for patients and caregivers, as well as for health care professionals. IMF publications are available free of charge online and in printed copy by mail. Core booklets and key medical articles are translated into multiple languages.
Since our inception in 1990, the IMF has supported and met in-person with more than 3,000 myeloma patients globally.
In the U.S., the IMF has helped launch and/or facilitate 150+ myeloma-specific support groups that hold regular meetings. These support groups provide forums for patients, family members, and caregivers to benefit from their shared experiences.
Training for Support Groups
The IMF provides facilitation support and technology resources for support group leaders and members.
Email and Phone InfoLine
The IMF’s InfoLine is there for your myeloma-related questions and concerns. The InfoLine team consistently provides callers with the most up-to-date information about myeloma in a caring and compassionate manner. Call or email today at 1 (800) 452-CURE (2873) in the U.S. & Canada / 1-818-487-7455 worldwide, or [email protected].
The IMF’s Advocacy team has educated and empowered thousands of individuals who make a positive impact each year on issues critical to the myeloma community in the U.S. and worldwide.
IMF Advocacy Program
Working in the U.S. at both federal and state levels, we lead coalitions to advocate for parity in insurance coverage. We also represent the myeloma community’s interests before the U.S. Congress and agencies such as the National Institutes of Health, the Food and Drug Administration, the Centers for Medicare and Medicaid Services, and the Veterans Administration.
Global Myeloma Action Network
Outside the U.S., the IMF’s Global Myeloma Action Network (GMAN) works to help patients gain access to treatment.
The people of the IMF — our Board of Directors, our management, and our staff — are here to help you. We invite you to learn more about our team.
We partner with organizations all over the world. Together, we promote awareness of myeloma, encourage measures to prevent and combat the disease, and advocate for health issues that affect the myeloma community.
Resources and information for the media
To ensure accountability and transparency of our Foundation, our annual reports and audit reports illustrate our fiscal responsibility. We invite you to review how donations are applied.