Caregiver Resources

As a caregiver, it is easy to be overwhelmed by caring for a cancer survivor. An important point to remember is that you, as a caregiver, are also a survivor because you, too, are surviving the challenges, responsibilities, and life-changing effects of this disease and its treatment. 

We have compiled a comprehensive list of agencies, organizations,and websites providing emotional and psycho-social support, access to supportive care communities, and helpful resources especially for families and caregivers.

Publications

Now You Are a Caregiver

This publication is a PDF, part of the Caregiver Resource Directory, which also includes important forms, such as a Daily Pain Journal, a Medication Schedule, and a Fatigue Journal. 

Facing Forward: When Someone You Love Has Completed Cancer Treatment 

This booklet from the National Cancer Institute was written to share common feelings and reactions that many caregivers have had after treatment ended. It also offers some practical tips to help through this time. 

Caring for The Caregiver 

Caring for the Caregiver “You need to learn ways to take care of yourself. Because if you’re not taking care of yourself, you can’t take care of anyone else. Don’t be afraid to ask questions. Don’t be afraid to ask for help.” — Jane, a caregiver 

Caregiver Stress - 10 symptoms

Know the top symptoms of caregiver stress.

Coping with the Cost of Care

The Frankly Speaking About Cancer: Coping with the Cost of Care eBook is for people who want to know more about managing the cost of cancer care. It can be difficult to find one place where people affected by cancer could learn about practical matters such as insurance coverage, Medicare and Medicaid, co-pay assistance, Patient Assistance Programs, Social Security, health care reform, and other resources to help manage cancer-related finances.

Links to Caregiver Information and Organizations

Help for Cancer Caregivers

Help for Cancer Caregivers is a unique collaboration of organizations with a shared goal of improving the health and well-being of the people who care for people with cancer. Please be sure to tell any caregivers you know about this site. 

American Cancer Society - Caregivers 

Learn about what to expect if you become a caregiver for a person with cancer, as well as find suggestions and tips for making sure that you take care of yourself as well. 

Cancer.net

American Society of Clinical Oncology (ASCO) site defines the role of caregiver and the potential challenges caregivers face. 

Caregiver Action Network

CAN (formerly the National Family Caregivers Association) is a non-profit organization providing education, peer support, and resources to family caregivers across the country free of charge. 

Caring Bridge

A nonprofit providing free websites that connect family and friends—and ease the burden of keeping family and friends informed—during a serious health event, care and recovery. Authors add health updates and photos to share their story while visitors leave messages of love and support in the guestbook. 

Coping with Cancer: For Caregivers, Family and Friends

Information from the National Cancer Institute to help caregivers cope while caring for a loved one with cancer, as well as help someone with cancer talk about and cope with the illness. 

Family Caregiver Alliance

Founded in 1977, FCA was the first community-based nonprofit organization to address the needs of families and friends providing long-term care at home. FCA now offers programs at national, state and local levels to support and sustain caregivers. 

Strength for Caring

Strength for Caring, a program of the Johnson & Johnson Caregiver Initiative, is a comprehensive website designed to provide family caregivers with a broad range of expert content and information, an emerging on-line community, daily inspiration, and much needed support. 

Well Spouse Association

The Well Spouse Association advocates for and addresses the needs of individuals caring for a chronically ill and/or disabled spouse/partner. They offer peer to peer support and educate health care professionals and the general public about the special challenges and unique issues "well" spouses face every day.