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High-Risk Smoldering Myeloma & New Frontline Treatments: What Patients Need to Know | IMS Part 2 of 2In this video, IMF Chief Medical Officer Dr. Joseph Mikhael breaks down the most important research updates from the International Myeloma Society (IMS) annual meeting with a focus on what these…
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2025 Global Myeloma Action Network (GMAN) Summit Report   The Global Myeloma Action Network (GMAN) Summit  A summary report from the 2025 GMAN Annual Meeting, which took place in person from June 6-8, 2025, in Milan, Italy.    The Global Myeloma Action Network® (GMAN…
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International Myeloma Working Group Summit The 2025 IMWG annual meeting took place in-person from June 9-11, 2025, in Milan, Italy.Emerging from the IMF Scientific Advisory Board (est. 1995), the International Myeloma Working Group’s (IMWG) mission is to identify and implement the most…
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Dr. Joseph Mikhael, Chief Medical Officer, talks about the IMF’s ongoing efforts and future goals in the fight against myeloma. He heads the IMF’s M-Power Project, which aims to improve care for African Americans—who are diagnosed with myeloma at twice the rate of white individuals…
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On Thursday, October 23, 2025, the U.S. Food and Drug Administration (FDA) announced its approval of…
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One of the ways the IMF's Global Myeloma Action Network® (GMAN®) accomplishes its mission is by awarding Susie Novis Durie (SND) Educational Grants to patient advocacy organizations to elevate their work. Here are the 2025 SND Grant Recipients:Armenia: Armenian Hematology Association“Myeloma…
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IMS Highlights: Frontline Wins, High-Risk Insights, and What’s Next in Myeloma | Part 1 of 2Dr. Joseph Mikhael (IMF Chief Medical Officer) breaks down the biggest takeaways from the International Myeloma Society meeting. He discusses what matters now for patients and care partners. In this…
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At the end of every month, the International Myeloma Foundation Newsroom will feature a wrap-up of some of the most fascinating studies about multiple myeloma from medical journals. Here is the October 2025 edition.The IMF team of medical editors has provided overviews of key studies. Yet, we…
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According to Johnson & Johnson, results of the Phase 3 MajesTEC-3 study reveal TECVAYLI® plus DARZALEX FASPRO® combination significantly improves PFS and overall survival.   On Thursday, October 16, Johnson & Johnson announced “positive topline results from the…
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Dr. James Chim to Receive Asian Myeloma Network Distinguished Service Award at the 9th AMN Summit in Nagoya  International Myeloma Foundation (IMF) to hold AMN Awards Ceremony at the 9th AMN Summit in Nagoya, Japan on Saturday, October 18.  NAGOYA, JAPAN, October 16, 2025…
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This educational webinar from the International Myeloma Foundation featured Dr. Beth Faiman (Cleveland Clinic) and Dr. Zainab Shahid (Memorial Sloan Kettering) discussing infection risks in multiple myeloma patients and prevention strategies. The presentation covered why myeloma patients face…
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Multiple Myeloma: Love, Advocacy, and 10 Years of Hope When Terrence Green was hospitalized for weeks with no improvement, doctors discovered he had multiple myeloma. His wife, Toni, became his strongest advocate, asking questions, keeping records, and standing beside him through every step.…
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The Global Myeloma Community Mourns the Passing of IMF Co-Founder Dr. Brian G.M. Durie  LOS ANGELES, October 14, 2025 — It is with great sadness that the International Myeloma Foundation (IMF) shares the news of the death of Dr. Brian G.M. Durie, co-founder of the…
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Dr. Durie was a visionary in the field of myeloma, a type of blood cancer that affects plasma cells. His 1975 pioneering work, the Durie-Salmon Staging System, shed light on the myeloma tumor burden and how it impacts other cellular functions. A prolific researcher, Dr. Durie authored over 700…
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How a Clinical Trial Changed Joan's Life How Joan Turned a Myeloma Diagnosis Into Hope Through a Clinical Trial Joan shares her inspiring journey with multiple myeloma, from her initial diagnosis with monoclonal gammopathy of undetermined significance (MGUS) to joining a clinical trial that…
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Study Finds Affordable Three-Drug Combination Improves Outcomes in Relapsed/Refractory Multiple Myeloma A new phase III study by the Asian Myeloma Network (AMN) found that adding the affordable chemotherapy drug Cytoxan® (cyclophosphamide) to the standard treatment of Pomalyst® (…
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In this interview with Editorial Lead of OncoDaily TV Emma Ter-Azaryan, IMF Chief Medical Officer Dr. Joseph Mikhael discusses "What Every Physician and Patient Should Know About Myeloma." Dr. Mikhael shares about the need for greater myeloma awareness, early warning signs patients…
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How a Clinical Trial Changed Thomas' Life At Just 34, Thomas Goode Was Diagnosed With Multiple Myeloma After Initially Being Misdiagnosed With Bursitis Facing a life-changing diagnosis, he underwent two stem cell transplants, one using his own cells and another with his brother’s and…
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The International Myeloma Foundation Welcomes Heather Cooper Ortner as New President & CEO    STUDIO CITY, CA, October 2, 2025 – The International Myeloma Foundation (IMF) announced today that Heather Cooper Ortner — President & CEO of Alzheimer’s Los…
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Replay the Facebook Live from 9/30 | Beth Faiman Discusses Frontline CAR T, Cevostamab, TrispecificsReplay Beth Faiman's, IMF Nurse Leadership Board, patient-focused recap of IMS Toronto and a live Q&A. Beth explains frontline CAR T trials, cevostamab (FcRH5) after CAR T to deepen MRD…
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At 36, Michael Tuohy was told to get his affairs in order. What began as excruciating back pain turned out to be multiple myeloma. Against the odds, 25 years later, Michael is an outspoken advocate for myeloma. Along the way, he faced many trying treatments and challenges with opioid use. Read…
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CAR T-cell Therapy & MRD Negativity in Myeloma: What Patients Need to Know    In this Q&A, Dr. Joseph Mikhael, Chief Medical Officer of the International Myeloma Foundation, answers common patient questions about CAR T-cell therapy, stem cell transplants, MRD negativity, and…
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At the end of every month, the International Myeloma Foundation Newsroom will feature a wrap-up of some of the most fascinating studies about multiple myeloma from medical journals. Here is the September 2025 edition. The IMF team of medical editors has provided overviews of key studies. Yet, we…
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What Are Bispecific Antibodies And How Are They Changing the Way We Treat Multiple Myeloma? In the past, myeloma was treated with harsh chemotherapy. Today, treatments are smarter, more targeted, and use the body’s own immune system. Here’s how bispecific antibodies work: They…
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The International Myeloma Foundation and IMF Nurse Leadership Board Inaugurate NLB Leadership and Mentorship Award  Honors IMF NLB Member Dr. Beth Faiman as First Recipient During the Inauguration and Awards Ceremony  CLEVELAND, OH, September 16, 2025 — The…
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Videos
Controversies in Myeloma: Expert Panel Discussion In this interactive Patient & Family Seminar session, a panel of leading myeloma experts including Dr. Joseph Mikhael, Dr. Shaji Kumar, Dr. Robert Vescio, Dr. Sarah Lee, Dr. Murali Janakiram, and Donna Catamero, tackle today’s most pressing…
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Closing the Gap: Addressing Health Disparities in Multiple Myeloma Myeloma is one of the most disparate cancers, with African Americans twice as likely to be diagnosed yet often facing delayed diagnosis, limited access to treatments, and poorer outcomes. In this Patient & Family Seminar…
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Symptom Management in Multiple Myeloma: Practical Tips for Patients and Families Living with multiple myeloma often means managing both the disease and the side effects of treatment. In this Patient & Family Seminar session, IMF Nurse Leadership Board member and nurse practitioner Donna…
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Advocacy Updates: Fighting for Myeloma Patients in Washington and Beyond The International Myeloma Foundation (IMF) ensures patients’ voices are heard in Washington and across the U.S. In this Advocacy Update, Danielle Doheny, IMF Director of Public Policy and Advocacy, shares the latest wins…
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Fireside Chat On The Future of Myeloma: What Patients & Families Should Expect Next In this forward-looking conversation, Dr. Joseph Mikhael and Dr. Shaji Kumar explore what’s coming next in multiple myeloma: smarter targeted screening for MGUS/smoldering, how we may treat high-risk…
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Who’s at Risk for Multiple Myeloma: Risk & Outcomes Myeloma doesn’t affect everyone equally. So, who’s most at risk—and why? Myeloma is twice as common in African Americans compared to other groups. Death rates are also twice as high in African Americans with myeloma. But there’s good…
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A Day in the Life of Mindy Fast & Mike Kastner | Navigating the Multiple Myeloma Journey In this episode of “A Day in the Life,” Mindy Fast and her husband, Mike Kastner, share their story of navigating multiple myeloma together as a patient and care partner. From the shock of…
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Understanding Clinical Trials in Multiple Myeloma Clinical trials are the reason survival in multiple myeloma has grown from just 1–2 years to over a decade today. In this Patient & Family Seminar session, Dr. Joseph Mikhael explains what clinical trials are, why they matter, and how…
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IMF Highlights: 35 Years of Impact in Myeloma Research, Education, Support, and Advocacy For 35 years, the International Myeloma Foundation (IMF) has been at the forefront of research, education, advocacy, and patient support. In this Patient & Family Seminar session, Interim CEO and SVP of…
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Q&A with Myeloma Experts: Your Questions Answered In this interactive Patient & Family Seminar Q&A session, myeloma experts including Dr. Joseph Mikhael, Beth Faiman, and others respond to real patient and care partner questions. Topics include the impact of new healthcare…
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Emotional and Physical Wellbeing in Multiple Myeloma Living with multiple myeloma means managing not only treatments, but also the emotional and physical effects of the disease. In this Patient & Family Seminar session, Michaela Hillengass, RN, ACSM-CPT from Roswell Park Cancer Center shares…
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Navigating Insurance and Medical Bills: A Guide for Myeloma Patients & Families For many myeloma patients and caregivers, navigating health insurance and medical bills is one of the most overwhelming parts of the cancer journey. In this Patient & Family Seminar session, attorney Laura…
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Myeloma 101: What Patients and Families Need to Know For patients and families affected by multiple myeloma, understanding the disease is the first step toward empowerment. In this Patient & Family Seminar session, Dr. Joseph Mikhael provides a clear overview of myeloma from what…
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Patient Empowerment in Myeloma: How Shared Decision-Making Improves Care Navigating multiple myeloma can feel overwhelming, but patients and families don’t have to face it alone. In this powerful Patient & Family Seminar session, Beth Faiman, PhD, MSN, APN-BC, AOCN®, BMTCN®, FAAN, FAPO, a…
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Hot Topics in Multiple Myeloma: What Patients and Families Need to Know Staying informed about the latest advances in multiple myeloma can make a real difference for patients and their loved ones. In this Patient & Family Seminar, IMF Chief Medical Officer Dr. Joseph Mikhael shares the most…
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From the Scope of Things Podcast: An Interview with Dr. Joseph Mikhael In this podcast, Joseph Mikhael, Chief Medical Officer of the International Myeloma Foundation (IMF), is leading efforts to find a true cure for multiple myeloma. He highlights the origins and mission of the…
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From Targeted Oncology: 'Dr Mikhael on the State of Myeloma Research Funding in 2025' Federal funding cuts could slow the remarkable progress seen in multiple myeloma treatments, yet unprecedented collaboration among researchers keeps hope alive. In this interview with Targeted Oncology, Dr.…
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Facebook Live Replay: Dr. Joseph Mikhael Answers CAR T, MRD Negativity & MyelomaCan you skip transplant if you’re already MRD negative? Is CAR T really better than triplet therapy at first relapse? And are there age limits for bispecifics? Dr. Joe tackles these tough questions from the…
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Is Multiple Myeloma Only a Disease of Older Adults? Myeloma Can Affect Younger Adults Too Multiple myeloma is often thought of as a cancer of the elderly, with the average age of diagnosis around 69–70. But younger adults (even those in their 20s, 30s, and 40s) can also be diagnosed. In fact…
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The International Myeloma Foundation Revives ‘Do You #kNOwMyeloma?’ for Blood Cancer Awareness Month 2025  STUDIO CITY, CA, August 28, 2025 – With Blood Cancer Awareness Month coming up this September, the International Myeloma Foundation (IMF) is reviving and amplifying…
Videos
Description: Learn about survivorship and self management strategies for multiple myeloma patients. Module Objectives: Understand the concept of survivorship beginning at diagnosis and continuing throughout the myeloma journey Review…
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Medspoke Interviews Multiple Myeloma Patient Donna Cunningham at the 2025 IMF Patient and Family Seminar in Los Angeles When Donna Cunningham was first diagnosed with multiple myeloma, she spent months before meeting another patient. The early days felt isolating, until she discovered the…
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Medspoke Interviews IMF Board Member and CEO of Myeloma Canada Martine Elias at the 2025 IMF Patient and Family Seminar in Los Angeles At the IMF Patient and Family Seminar, IMF Board Member and CEO of Myeloma Canada Martine Elias joined the myeloma community to learn, share, and connect. In…

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