Myeloma Minute: A Myeloma Warrior Devoted to Dolphins

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| INNOVATION | Latest Research

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Hardy Jones: A Myeloma Warrior Who Inspired Us All

“Dolphin defender” Hardy Jones devoted himself to the study and protection of the beloved creatures. IMF Chairman, Brian G.M. Durie, MD, sings the praises of the award-winning filmmaker, who passed away in December 2018, leaving a legacy of advocacy, education, and a fierce appreciation of the natural world.

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| INSPIRATION | Fundraiser

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| INNOVATION | Clinical Trials

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2019 Miles for Myeloma 5K Run/Walk in Philadelphia
IKEMA Trial Sites Now Open in the US

The Philadelphia Multiple Myeloma Networking Group hosts their annual Miles for Myeloma 5K Run/Walk on April 27, 2019, at the Memorial Hall/Please Touch Museum (4231 Avenue of the Republic) in Philadelphia. Pre-registration ends at midnight on April 24. Day-of registration is at 7:15 a.m. on April 27. The Run/Walk begins at 8:30 that day.

Now open at sites in the U.S., the IKEMA trial aims to determine the possible benefit of isatuximab in combination with carfilzomib and dexamethasone in prolonging the length of response time (progression-free survival, or PFS) as compared to the combination of carfilzomib and dexamethasone.

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| INSPIRATION | Fundraiser

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IMF Volunteer Fundraiser, Veteran, Myeloma Patient, and Rap Artist Featured on LA’s KABC

Marc Ho, or BagYo, the rap artist name for which he is known, spends a lot of time writing his own lyrics and recording rap songs despite living with two cancers—multiple myeloma and nasopharyngeal carcinoma. Mark is a former U.S. Marine first deployed during the initial invasion of Iraq in 2003. He left the Marine Corps in 2007. He suffers from PTSD and helps others with similar issues. When diagnosed with two cancers, he says, “It hits you like a brick.” Even though he has experienced “chemo brain” from treatment, he says, “When I’m in the booth, I’m spinning lyrics, I can remember all the lyrics. It’s pretty amazing.” Watch this exciting KABC video on Mark’s inspirational way of giving back through music. And, learn more on how you can give to Mark’s fundraising efforts at the link below.

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| ACTION | Veterans

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Court Victory for Blue Water Navy Vietnam Veterans

On Tuesday, January 29, 2019, the U.S. Court of Appeals for the Federal Circuit in Washington, DC, has decided a case that restores a presumption of exposure to the chemicals collectively known as Agent Orange for veterans who served off the coast of Vietnam during the war. The case, Procopio v. Wilkie, reverses the courts own ruling from 2006 in Haas v. Peake that erroneously excluded Blue Water Navy Vietnam Veterans from the Agent Orange Act of 1991.

Blue Water Navy Vietnam Veterans now have the same presumption of exposure as any other Vietnam Veteran who served between January 9, 1962, and May 7, 1975. The presumption of exposure makes it much easier for veterans to make a claim for benefits, as they no longer must definitively prove they came into contact with Agent Orange if they developed one of the diseases recognized to be caused by exposure. Multiple myeloma is one of those recognized diseases.

While this is fantastic news for the estimated 60,000 Blue Water Navy Vietnam Veterans affected by the court’s ruling, it’s still important that this benefit be legislatively reinforced as the VA may choose to appeal Procopio to the Supreme Court. With the new Congress, a new Blue Water Navy Vietnam Veterans Act (H.R. 299) has been reintroduced in the House. We urge you to contact your Representative and ask them to support this bill.

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| #ASKDRDURIE | Dr. Durie's Weekly Web Video Series

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CLINICAL TRIALS
EVENTS

BOSTON Trial Fact Sheet

New isatuximab Clinical Trial: the IMROZ Study

New isatuximab Clinical Trial: the IKEMA Study

Join the conversation about myeloma on the Smart Patients Message Board

March 15-16, 2019
IMF Patient & Family Seminar
Boca Raton, FL

March 23, 2019
Regional Community Workshop
La Jolla, CA

April 5-6, 2019
IMF Patient & Family Seminar
Short Hills, NJ

April 6, 2019
Regional Community Workshop
Seattle, WA

May 11, 2019
Regional Community Workshop
Edina, MN

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We Thank Our Sponsors:
Amgen, Celgene Corporation, Genentech, Sanofi-Genzyme, and Takeda Oncology
and individuals like you who supported the IMF this year

Give Where Most Needed

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