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In this week’s blog, the International Myeloma Foundation talks about the state of myeloma in 2025 through statistical data from the National Cancer Institute’s Surveillance, Epidemiology, and End Results (SEER) Program. In terms of treatments, significant advancements have emerged for myeloma in 2025—with newer therapies such as CAR T-cell therapy and bispecific antibodies being used in earlier lines of treatment. While the disease remains incurable, the considerable expansion of treatment options has led to longer survival and improved quality of life for myeloma patients. Find out more about the current state of myeloma. READ THE BLOG.

In case you missed it, you can still watch the replay of the June 17th IMWG Conference Series 2025 webinar. We have segmented the entire presentation into short videos by topic: Screening for Myeloma; Smoldering Multiple Myeloma; Frontline Therapy; Early Relapse; Late Relapse; New Definition for High-Risk Myeloma; and a word from the IMWG Committees.

Hear from myeloma experts including IMF Nurse Leadership Board Member Beth Faiman, PhD, MSN, APRN-BC, AOCN, FAAN (Cleveland Clinic, Taussig Cancer Institute — Cleveland); Sagar Lonial, MD, FACP (Winship Cancer Institute, Emory University School of Medicine — Atlanta); María-Victoria Mateos, MD, PhD (University of Salamanca — Salamanca, Spain); and IMF Chief Medical Officer Joseph Mikhael, MD, MEd, FRCPC, FACP, FASCO (TGen at the City of Hope — Phoenix). To view all the videos from this exciting webinar, VISIT THIS PAGE.

Along with patient advocates and support group leaders, IMF Chief Medical Officer Dr. Joseph Mikhael will discuss Top Myeloma Research presented at the June 2025 American Society of Clinical Oncology (ASCO) Annual Conference, the IMF International Myeloma Working Group (IMWG) Summit, and the European Hematology Association (EHA) Annual Conference on Tuesday, July 1, at 3:00 p.m. PST | 6:00 p.m. EST. Dr. Mikhael will highlight scientific abstracts from ASCO, the IMF IMWG Summit, and EHA and will explain data in approachable terms that patients can use in their everyday care decision-making. To provide insights on the patient perspective of this data, the webinar’s panelists will include Myeloma Research Advocate and City of Hope Support Group Leader Todd Kennedy, President of Myeloma Patients Europe and Patient Advocate Barbara Leonardi, and Founder and Support Group Leader of the Connecticut Myeloma Fighters Information Group Michael Tuohy. SAVE MY SEAT.

Don’t miss IMF M-Power NYC Juneteenth 2025: Heritage, Health, and Hope—a powerful in-person event on Saturday, June 21, from 10:00 a.m - 12:15 p.m. EST. This workshop is designed to empower Black patients and families facing multiple myeloma. Hear directly from leading experts, including IMF Chief Medical Officer Joseph Mikhael, MD, MEd, FRCPC, FACP, FASCO (TGen, the City of Hope — Phoenix); Gail Panton, BSN, RN, CPN (Memorial Sloan Kettering Cancer Center  — New York); myeloma patient advocate Kathy Small Wrice; and IMF Scientific Advisory Board Member Saad Usmani, MD, MBA, FACP, FASCO (Memorial Sloan Kettering Cancer Center  — New York) Get your questions answered and connect with community. LEARN MORE. 

Join the IMF for a Seattle Community Workshop on August 9, 2025, at the Graduate by Hilton (4507 Brooklyn Ave NE).  Don’t miss this unique opportunity to connect with leading myeloma specialists in a supportive, in-person setting. 

During the event, experts will cover key topics, including myeloma basics, upfront treatments at diagnosis, maintenance therapy, and what to know about relapse. A member of the IMF Nurse Leadership Board will also provide insights on managing side effects and symptoms. Plus, attendees will have the opportunity to ask questions directly to the specialists. Click on the following link for updates on this event: REGISTER NOW.

The International Myeloma Foundation (IMF) will host our 2025 Los Angeles Patient and Family Seminar at the Hilton Los Angeles/Universal City (555 Universal Hollywood Drive) on August 15-16, 2025. Our panel of myeloma experts has been announced. These speakers include Laura Beilke, Esq. (Triage Center); IMF Chief Medical Officer Joseph Mikhael, MD, MEd, FRCPC, FACP, FASCO; IMF Nurse Leadership Board Member Donna Catamero, ANP-BC, OCN®, CCRC (Mount Sinai Hospital — New York); IMF Director of Public Policy and Advocacy Danielle Doheny; IMF Nurse Leadership Board Member Beth Faiman, PhD, MSN, APN-BC, AOCN®, BMTCN®, FAAN, FAPO (Cleveland Clinic, Taussig Cancer Institute — Cleveland); IMF Nurse Leadership Board Member Michaela Hillengass, RN, ACSM-CPT (Roswell Park Comprehensive Cancer Center — Buffalo, NY); Murali Janakiram, MD, MS (City of Hope — Duarte, CA); IMF Scientific Advisory Board Member Shaji Kumar (Mayo Clinic — Rochester, MN); and Robert Vescio, MD (Cedars-Sinai, Samuel Oschin Cancer Center — Los Angeles).  IMF Team members who will speak at this seminar include IMF Vice President of Development Sylvia Dsouza; IMF Vice President of Support Groups Robin Tuohy; and twenty-five-year myeloma survivor Michael Tuohy. The seminar is FREE, but in-person seating is LIMITED. REGISTER NOW.