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In this week’s blog, the International Myeloma Foundation discusses key points of a recent study published in Scientific Reports: Trends and projections of the global and regional burden of multiple myeloma in adults aged 40 and over, 1990-2044. The study takes a deep dive into data from the global burden of disease (GBD) 2021 to analyze global, regional, and national trends in incidence, prevalence, mortality, and disability-adjusted life years (DALYs) of multiple myeloma in adults ages 40 and older. In conclusion, the study states that multiple myeloma is becoming more common globally, especially in poorer countries. Find out why countries need to focus more on treating and preventing myeloma, especially in older patients and in places with fewer resources. READ THE BLOG.

On May 20, 2025, Johnson & Johnson announced a pivotal moment in the treatment of high-risk smoldering multiple myeloma (HR-SMM). The U.S. Food and Drug Administration’s Oncologic Drugs Advisory Committee (ODAC) voted 6-2 in favor of the benefit-risk profile of DARZALEX FASPRO® (daratumumab and hyaluronidase-fihj) as a single-agent therapy for adults with HR-SMM. If approved, Darzalex Faspro would become the first therapy available to delay (or potentially prevent) progression to active multiple myeloma. Read the full press release to learn more. READ THE PRESS RELEASE.

The International Myeloma Foundation (IMF) is excited to announce that an in-person Community Workshop will take place on June 21, 2025, at the Renaissance Hotel & Convention Center (3801 Quebec Street) in Denver. As always, the IMF’s Regional Community Workshops provide condensed educational sessions for smaller communities for FREE. The event’s speakers include IMF Vice President of Patient Support Robin Tuohy; Daniel Sherbenou, MD, PhD (University of Colorado Hospital — Aurora, CO); IMF Chief Medical Officer Joseph Mikhael, MD, MEd, FRCPC, FACP, FASCO ((TGen, City of Hope — Phoenix); Peter Forsberg, MD (Colorado Blood Cancer Institute —Denver); IMF Vice President of Development Sylvia Dsouza; IMF Nurse Leadership Board Member Beth Faiman, PhD, MSN, APN-BC, AOCN®, BMTCN®, FAAN, FAPO; and Martha Lacy, MD (Mayo Clinic — Rochester, MN). Myeloma patient Pat Sullivan and care partner Mark Cerda, PE, will host a session on ”Living the Myeloma Life.” In-person seating is limited, so be sure to save your seat today! REGISTER NOW.

Join the IMF for a Seattle Community Workshop on August 9, 2025, at the Graduate by Hilton (4507 Brooklyn Ave NE).  Don’t miss this unique opportunity to connect with leading myeloma specialists in a supportive, in-person setting. 

During the event, experts will cover key topics, including myeloma basics, upfront treatments at diagnosis, maintenance therapy, and what to know about relapse. A member of the IMF Nurse Leadership Board will also provide insights on managing side effects and symptoms. Plus, attendees will have the opportunity to ask questions directly to the specialists. Click on the following link for updates on this event: LEARN MORE.

The International Myeloma Foundation (IMF) is excited to announce that the 2025 Los Angeles Patient and Family Seminar will take place at the Hilton Los Angeles/Universal City (555 Universal Hollywood Drive) on August 15-16, 2025. The seminar is FREE, but in-person seating is LIMITED. Visit this link for announcements of speakers for the event: LEARN MORE.

Tee up for a cause: The Czerkies Memorial Golf Outing honors the lives of Carolyn and Edward Czerkies while raising funds for the International Myeloma Foundation. This golf outing takes place on Saturday, June 7, 2025, with a shotgun start at 12:30 p.m. at the Bolingbrook Golf Club at 2001 Rodeo Drive in Bolingbrook, IL  With over $530,000 raised and five IMF research grants funded, this event has become one of the largest charity golf outings for multiple myeloma research.

Whether you're swinging a club, volunteering, or sponsoring, your support fuels hope and progress. Spots are limited to 144 golfers, so don't wait: Register today and be part of something truly meaningful.

For details, sponsorship, or to reserve your place, contact Craig Czerkies at [email protected] | 630-721-0557. Visit the event page to learn more. LEARN MORE.