Harnessing the Power of Data for the Future of the International Myeloma Foundation
Imagine being served up content that met you where you are in your patient journey. You visit the IMF website (myeloma.org) and learn what clinical trials you qualify for, or which myeloma experts can best help you in your region. To better serve its patient community, the International Myeloma Foundation (IMF) has deployed Data Lakes for Nonprofits – powered by Amazon Web Services (AWS) and offered by AWS and Salesforce. The goal is to create a more patient-focused digital ecosystem and advance the IMF’s data strategy.
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The Myeloma Knowledge Platform offers several features designed to support patients throughout their myeloma journey:
- Personalized Recommendations: Provides tailored information and resources based on where patients are in their myeloma journey.
- Clinical Trials Information: Helps patients learn about and qualify for relevant clinical trials.
- Expert Connections: Connects patients with myeloma experts in their region.
- Support Resources: Offers access to local support groups and the IMF Infoline for additional assistance.
- Educational Content: Delivers personalized topics such as financial aid, treatment pathways, and emotional wellness.
These features aim to create a patient-friendly digital ecosystem that enhances the support and information available to myeloma patients.
The Myeloma Knowledge Platform provides personalized recommendations to patients based on their specific stage in the myeloma journey. These recommendations include:
- Clinical Trials: Information on clinical trials that patients qualify for.
- Myeloma Experts: Connections to myeloma experts who can best help patients in their region.
- Support Resources: Guidance on local support groups and scheduling calls with the IMF Infoline.
- Educational Content: Tailored information on topics such as financial aid, treatment pathways, and emotional wellness.
These personalized recommendations aim to support patients with relevant and timely information to help them navigate their myeloma journey.
The Myeloma Knowledge Platform assists healthcare professionals by providing:
- Patient Interaction Management: Tools for managing patient interactions, such as dashboards that notify healthcare professionals of new patients actively using IMF resources.
- Treatment Recommendations: Access to the IMF's portal, which recommends treatment paths and specific drugs for patients, along with information on relevant clinical trials.
- Educational Resources: Access to educational content and updates on the latest research and treatment strategies in myeloma care.
These features help healthcare professionals offer more personalized and informed care to their myeloma patients.

Myelo is an AI-powered chatbot designed to act as the International Myeloma Foundation's virtual assistant for patients, care partners, and healthcare professionals. Myelo has extensive knowledge on multiple myeloma, including symptoms, diagnosis, treatment options, clinical trials, and management strategies. In a compassionate and caring manner, Myelo addresses frequently asked questions, offers explanations on complex medical terminology, and provides guidance for patients through various stages of the disease—from diagnosis to treatment and follow-up care.
Beyond patient support, Myelo also serves as a valuable resource for healthcare providers and professionals—disseminating the latest research findings, clinical guidelines, and treatment protocols; and ensuring that physicians and medical staff remain informed about the latest developments in the field.

The Clinical Trials Matching Engine, powered by SparkCures, is an online platform designed specifically for cancer patients, with a focus on multiple myeloma and related blood cancers. It aims to simplify the process of finding relevant clinical trials, thereby empowering patients with information about their treatment options. Key features of the platform include a clinical trial search engine, personalized trial matching, and educational resources on clinical trials. This tool helps patients navigate the complex landscape of clinical trials, making it easier for them to find and participate in studies that could potentially benefit their treatment and care.

MyeProfile is a mechanism that allows users to authenticate once and gain access to multiple applications or systems without needing to re-enter credentials. For patients, MyeProfile enhances the user experience by eliminating the need for multiple login credentials, simplifying the authentication process, and providing seamless access to various services such as Zoom Webinars, donation pages, and digital downloads. It also allows users to authenticate using existing credentials from trusted identity providers like Google and Facebook. Additionally, MyeProfile ensures that user data is up-to-date by feeding profile changes back to the CRM, thereby enhancing security and reducing the risk of unauthorized access. This streamlined approach not only improves convenience but also bolsters the overall security posture of the Myeloma Knowledge Platform (MKP).

The Myeloma Manager is a patient-centric app designed to centralize, personalize, and enhance the myeloma patient experience. It helps patients track trends in their health data, provides interactive support information, and highlights what is truly important for their care. The app includes prompts and reminders to aid in treatment adherence and offers personally relevant educational support. Additionally, it centralizes support around comorbidities, treatment, and financial needs, and features multi-language AI search and responses using curated support data. By simplifying complex knowledge and providing tools and materials, the Myeloma Manager empowers patients to actively participate in their care, ultimately improving disease management and quality of life.