In 2013, the International Myeloma Foundation led the development of the Global Myeloma Alliance, which became the Global Myeloma Action Network (GMAN) in 2014. GMAN is a group of multiple myeloma leaders' patient organizations around the world whose aim is to support myeloma patients’ needs. While each member organization executes its own mission and vision, GMAN works to convene members and partners to share best practices, address mutual areas of concern, and elevate awareness of multiple myeloma.
To improve the rights of multiple myeloma patients around the world
The goals set forth are those that GMAN can aspire to work on collaboratively. The goals will be revisited in three years at which time they will be revised, according to what has been successfully achieved, or maintained based on the need for continued focus.
- Raise the profile and enhance the capabilities of patient advocacy groups around the globe through best practice sharing and capacity building
- Elevate global awareness of multiple myeloma
- Ensure access to new and effective treatment for patients around the world
- Improve patient outcomes through earlier diagnosis
- Advance innovation in blood cancer through advocacy and policy engagement
- Promote education and information to patients, physicians and policy makers
Achieving Our Goals with Global Patient Advocacy
In order to achieve the goals of GMAN, members must fulfill their stated roles, agree upon core success factors and be willing to support the execution in identified strategies in a collaborative way.
Core success factors
GMAN must establish a number of critical success factors in order to effectively execute its goals.
Maintain at least one IMF staff person dedicated to overseeing the operations of the GMAN with additional support from IMF staff as needed.
Cultivate additional funding from a diverse base of external stakeholders supportive of the multiple myeloma patient population. Donation perimeters should be developed and agreed upon by members and/or the steering committee.
Members must meet identified criteria and agree to the Member Requirements to realize full member benefits.
Synergistic external partnerships
Identify collaborative initiatives, programs and activities of value with strategic partners to help empower and broaden audience reach, build credibility and/or sustain/develop financial support.
Execute a modest marketing initiative to generate awareness and begin to build the brand of the GMAN among key audiences.