Are You Newly Diagnosed?


You are not alone. We are here to help you. Myeloma is a disease that can very often be treated successfully and many patients live long and productive lives after being diagnosed. We encourage you to learn as much as possible and to seek out the best care possible. The IMF is here to help you do that while we work towards better treatments and a cure. For that reason, we have created the 10 STEPS TO BETTER CARE®. It is your guide through the myeloma journey, from diagnosis to long-term survival. Start by understanding the disease and diagnosis, and proceed through the steps to learn the best tests, treatments, and supportive care currently available.


 

One of the most daunting aspects of being diagnosed with multiple myeloma (MM) is learning about – and understanding – an unfamiliar disease that is quite complicated. 

Your guide through the myeloma journey, from diagnosis to long-term survival. Start by understanding the disease and diagnosis, and proceed through the steps to learn the best tests, treatments, and supportive care currently available

From our weekly series “Ask Dr. Durie” to comprehensive news from key cancer medical conferences around the world, IMF-TV is your all-access ticket to critical myeloma research, patient education, and guidance. Check back often for regularly updated content. 

The IMF produces an extensive library of educational materials, which are offered free of charge both in print and on the IMF website. The IMF library of publications provides up-to-date information on all issues affecting the myeloma community, including innovations in treatment, information on clinical trials, updates on policy issues, and more.

The following guide identifies commonly used myeloma terms and definitions. 

The following guide identifies commonly used myeloma abbreviations and acronyms. 

The IMF  helps to maintain a global network of more than 150 support groups, and offers training for the hundreds of dedicated patients, caregivers, and nurses who volunteer to lead these groups. Find a support group near you.  

If you have questions about myeloma and its treatment, a call to the IMF InfoLine, 800-452-CURE, toll-free in the US and Canada, puts you in immediate contact with an IMF Information Specialist who can provide information and support. InfoLine hours are 9 am to 4 pm PST. 

Full of our informative publications, including our Patient Handbook and selections from the popular Understanding Series, the Info Pack will bring you up to speed on myeloma and its treatment. 

Smart Patients is an online community where patients and caregivers affected by complex illness learn from each other about treatments, challenges, and how it all fits into the context of their experience. 

Myeloma Manager™ provides a tool to capture laboratory results and display and print tables and charts to show how those results change over time. Other features include automatic backup of your data each time you shut down the program, calendars, and graph features such as plotting multiple tests on one graph and time-scaled graphs.