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With Myeloma Action Month (MAM) taking place this March, the International Myeloma Foundation is excited to share a series of blogs from those who have completed the first course of the Legislative Advocacy Master Class (LAMC). This week’s blog was written by Diane Kennedy, a 7-year care partner to her husband of 35 years, who was diagnosed in December 2017 but is currently in remission. Diane shares her story of having a passion-filled purpose—taking care of her husband, enjoying time together as a family, and living life to the fullest while helping other patients and families do the same. The Legislative Advocacy Master Class is a collaboration between the International Myeloma Foundation and Patients Rising—an ongoing effort to train advocates for the IMF to tell their stories, write a letter to Congress, and make an impact in changing healthcare laws and policies. For more information on the Advocacy Master Class, please email Michael Riotto at [email protected]. READ THE BLOG.

An IMF Myeloma Community Workshop will take place online on Tuesday, March 4, 2025, from 3:00 p.m. – 6:00 p.m. PST | 4:00 p.m. – 7:00 p.m. MT | 5:00 p.m. – 8:00 p.m. CT | 6:00 p.m. – 9:00 p.m. ET. Speakers for this meeting include IMF Chief Medical Officer Joseph Mikhael, MD, MEd, FRCPC, FACP (TGen at the City of Hope — Phoenix); Marc Braunstein MD, PhD, FACP (Fellowship Program Director at NYU Grossman, Long Island School of Medicine — Long Island, NY); Noopur Raje, MD (Director, Center for Multiple Myeloma, Massachusetts General Hospital — Boston); and IMF Nurse Leadership Board member Mary Steinbach, DNP, APRN (University of Utah, Huntsman Cancer Institue — Salt Lake City). The workshop covers an introduction to myeloma, upfront treatments at diagnosis, maintenance therapy, relapse information, and an update on clinical trials. Register from the following link: SAVE MY SEAT.

The International Myeloma Foundation (IMF) is excited to announce that the 2025 Boca Raton Patient and Family Seminar will take place on March 14-15, 2025, in Boca Raton, Florida. The seminar is FREE, but in-person seating is LIMITED.  Speakers include IMF President & CEO and 29-year myeloma patient Yelak Biru; IMF Vice President of Development Sylvia Dsouza; IMF Vice President of Patient Support Robin Tuohy; IMF InfoLine Advisor Teresa Miceli, RN, BSN, OSN; IMF Chief Medical Officer Dr. Joseph Mikhael; and IMF Support Group Leader and 24-year myeloma survivor Michael Tuohy. Many topics will be covered, including shared decision-making, financial considerations in myeloma, emotional and physical well-being, clinical trials with patient/care partner testimonials, health disparities in myeloma, and a fireside chat on the future of myeloma, to name a few. Visit the event page for more details and to register for the Boca Raton PFS. SAVE MY SEAT.

The IMF’s Miracles for Myeloma Virtual/In-Person 5K Run/Walk will take place on Saturday, March 15, 2025, at 7:00 a.m. EST in Boca Raton, Florida. We encourage you to register and join a community determined to advance the IMF’s mission.

The race starts and finishes at the Boca Raton Marriott at Boca Center (5150 Town Center Circle). All proceeds from this event will fund the IMF’s life-saving research and work to find a cure. Register to run in person, or from any location in the world. You may also choose to honor a loved one along the Remembrance Path. LEARN MORE.

Join us on Thursday, March 20, 2025, at 4:00 p.m. PST | 5:00 p.m. MST | 6:00 p.m. CST | 7:00 p.m. EST, for an insightful "Living Well with Myeloma" webinar, where experts will break down the clinical trial process, debunk common myths, and highlight why diverse participation matters.  

Hear from IMF Chief Medical Officer Dr. Joseph Mikhael and the Founder of SparkCures Brian McMahon as they discuss trial participation, the latest updates on SparkCures, and how you can take control of your treatment journey. A live Q&A will be included: Get your questions answered in real-time. Spots are limited: REGISTER NOW.

Join us for a powerful myeloma awareness short documentary, "The Iceland Cycling Expedition: A Rigorous Journey to End Myeloma." Filmed during the IMF's 2024 Iceland Cycling Expedition, where myeloma patients, care partners, and heatlhcare professionals cycled over 150 miles of rough terrain in Iceland to raise essential funds for myeloma research and a cure, this documentary will screen at the TCL Chinese Theater on Hollywood Blvd. in Los Angeles on Sunday, February 16 at 10:00 AM. For those in Los Angeles or visiting, don’t miss this chance to see it on the big screen! Be sure to select Block JJ - Theater 4: GET TICKETS.