The International Myeloma Foundation is committed to action on issues that affect patients and their families. Through our advocacy efforts, we ensure that the patient perspective is heard when legislators consider important and impactful changes to the health care systems of each state. Our advocacy team is constantly monitoring potential issue areas that could have an impact on the myeloma community.

Equally important are the efforts of our patient advocates. The advocacy team trains and guides patients and family through the pitfalls of patient activism at the state level and provides opportunities for every patient to take action from their own home. With your help, the IMF supports legislation that betters the lives of multiple myeloma patients in all 50 states. 

The IMF tracks state health policy issues that will affect the multiple myeloma community. Since 2010 we have been working to pass Oral Anticancer Treatment Access Legislation. As of April 2017, 43 States and Washington, D.C. have passed this type of law. You can learn more about our coalition at the State Patients Equal Access Coalition webpage.

State Work


NC- Urge your State Senator to help move H206 for a vote

Insured cancer patients are fighting for their lives, but being hit every single month with skyhigh out of pocket costs to get their life-saving cancer treatments, just because it comes in pill form. Move H206 for a vote this special session

Tell Your State Senator to Support Oral Parity With SB 1034

Help SB 1034 pass the Idaho State Senate by contacting your senator today!

NC- We need your help! Move the Cancer Treatment Fairness Act (HB206)

Please urge Senator Berger to move the Cancer Treatment Fairness Act (HB206) forward in January so that the out-of-pocket costs for oral and infusion chemotherapy are treated the same.

Imf signs on to guidance letter on avoiding disability-based discrimination in treatment rationing for coronavirus

On March 28, 2020, the U.S. Department of Health and Human Services issued a Bulletin entitled “Civil Rights, HIPAA, and the Coronavirus Disease 2019 (COVID-19),” stating “HHS is committed to leaving no one behind during an emergency, and this guidance is designed to help health care providers meet that goal…Persons with disabilities…should not be put at the end of the line for health services during emergencies. Our civil rights laws protect the equal dignity of every human life from ruthless utilitarianism.” The Bulletin offers broad guidance on the obligations of states and health care providers to comply with federal disability rights laws in developing treatment rationing plans and administering care in the event of a shortage of medical equipment, hospital beds, or health care personnel. This document from organizations with expertise in federal disability rights laws provides a more detailed explanation of how the requirements set forth in the HHS Bulletin would apply and how states and health care providers can take steps to modify policies and practices to avoid disability discrimination.”

 

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