The Villages

View the IMF's Monthly Support Group Newsletter

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For more information, please contact

Starr Fittante 810-820-1592

E-mail: [email protected]

Meeting timeFirst Tuesday of Month – September through June, from 1:00-2:30 PM
Meeting Location Laurel Manor Recreation Center, Madison Room
1985 Laurel Manor Drive
The Villages, FL 32162
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Locate

28.9267224, -82.0023071

Improving Lives Finding the Cure

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The Villages SG Flyer

Upcoming events

IMF Events

Jul 07
Best of 2022 ASCO & EHA Webinar
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July 7, 2022 4:00 pm PST

Support Group Events

Jul 05
The Villages Monthly Meeting
July 5, 2022 1:00 pm to 2:30 pm EST
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Aug 02
The Villages Monthly Meeting
August 2, 2022 1:00 pm to 2:30 pm EST
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Sep 06
The Villages Monthly Meeting
September 6, 2022 1:00 pm to 2:30 pm EST
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Oct 04
The Villages Monthly Meeting
October 4, 2022 1:00 pm to 2:30 pm EST
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Nov 01
The Villages Monthly Meeting
November 1, 2022 1:00 pm to 2:30 pm EST
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Dec 06
The Villages Monthly Meeting
December 6, 2022 1:00 pm to 2:30 pm EST
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Past events

Jun 07, 2022
The Villages Monthly Meeting
June 7, 2022 1:00 pm to 2:30 pm EST
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May 03, 2022
The Villages Monthly Meeting
May 3, 2022 1:00 pm to 2:30 pm EST
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Apr 05, 2022
The Villages Monthly Meeting
April 5, 2022 1:00 pm to 2:30 pm EST
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Mar 01, 2022
The Villages Monthly Meeting
March 1, 2022 1:00 pm to 2:30 pm EST
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Feb 01, 2022
The Villages Monthly Meeting
February 1, 2022 1:00 pm to 2:30 pm EST
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Jan 04, 2022
The Villages Monthly Meeting
January 4, 2022 1:00 pm to 2:30 pm EST
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Dec 07, 2021
Holiday Social Meeting
December 7, 2021 1:00 pm to 2:30 pm ET
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Dec 07, 2021
The Villages Monthly Meeting
December 7, 2021 1:00 pm to 2:30 pm EST
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Nov 02, 2021
The Villages Monthly Meeting
November 2, 2021 1:00 pm to 2:30 pm EST
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Nov 02, 2021
Topic: Survivorship  
November 2, 2021 1:00 pm to 2:30 pm EST
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Oct 05, 2021
TIME CHANGE: 2:00 PM Topic: General Discussion on Myeloma
October 5, 2021 2:00 pm to 3:30 pm EST
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Oct 05, 2021
The Villages Monthly Meeting
October 5, 2021 1:00 pm to 2:30 pm EST
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Sep 07, 2021
Topic: Making 'Music" With Your Health Care Team with Amy Pierre
September 7, 2021 1:00 pm to 2:30 pm ET
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Sep 07, 2021
The Villages Monthly Meeting
September 7, 2021 1:00 pm to 2:30 pm EST
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Aug 03, 2021
The Villages Monthly Meeting
August 3, 2021 1:00 pm to 2:30 pm EST
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Jul 06, 2021
The Villages Monthly Meeting
July 6, 2021 1:00 pm to 2:30 pm EST
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Jun 01, 2021
The Villages Monthly Meeting
June 1, 2021 1:00 pm to 2:30 pm EST
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May 04, 2021
The Villages Monthly Meeting
May 4, 2021 1:00 pm to 2:30 pm EST
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Feb 02, 2021
Group Discussion
February 2, 2021 10:00 am to 11:30 am
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Jan 12, 2021
Speaker: Kim Burney, R.N
January 12, 2021 1:00 pm to 2:30 pm
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Dec 01, 2020
Holiday Meeting
December 1, 2020 10:00 am to 11:30 am
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Nov 10, 2020
Speaker: Cindy Stewart, PsyD., PA-C
November 10, 2020 1:00 pm to 2:30 pm
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Events
What Is Multiple Myeloma?
Multiple myeloma is a cancer of the bone marrow plasma cells. It is synonymous with "myeloma" and "plasma cell myeloma." Plasma cells make antibodies against infectious agents such as viruses and bacteria. A cancerous or malignant plasma cell is called a myeloma cell. Myeloma is called “multiple” because there are frequently multiple patches or areas in bone marrow where it grows.
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Ask Dr. Durie Videos
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Week in Review by Dr. Brian G.M. Durie
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imf multiple myeloma informational publications
IMF Publications
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Research
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Multiple myeloma support group members meet in a group circle to chat
Support
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Advocacy
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Stories
History of The Villages Multiple Myeloma Support Group

The Villages Multiple Myeloma Support Group was founded by Carolyn Curtis in August 2013. It was after Carolyn’s diagnosis of Myeloma and subsequently attending the International Myeloma Foundation Patient and Family Seminar in Boca Raton in that Carolyn was inspired to begin a Patient Support Group in The Villages. With her husband, Ed, they accepted the challenge of promoting and leading the group. Dan List, with his wife Ruby, would succeed Carolyn & Ed. Since the group was founded the membership has grown to over 100 patients and caregivers.

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Stories

Links

International Myeloma Foundation
— www.myeloma.org

Myeloma Manager (Free Test Data Tracking Software)
— manager.myeloma.org

Shop and Support the IMF
–  www.shop.myeloma.org

Veterans Against Myeloma
–  www.veterans.myeloma.org

The Leukemia & Lymphoma Society
— www.LLS.org

LLS Myeloma Blog
— www.community.lls.org/tags/blog/myeloma_blog/  

LLS Myeloma Patient Eduaction Videos
—http://www.lls.org/patient-education-videos/myeloma-diagnosis-treatment-side-effects-and-support

LLS Publications
—http://www.LLS.org/booklets

Multiple Myeloma Research Foundation
—www.themmrf.org

Multiple Myeloma News
—http://www.themmrf.org/news-and-press/multiple-myeloma-news/?sortby=foundation-news,research-news,press-release

CoMMunity Gateway
—https://community.themmrf.org/

Find a Clinical Trial Near You
—https://www.themmrf.org/living-with-multiple-myeloma/search-for-clinical-trials/

Blood and Marrow Transplant Information Network
— www.bmtinfonet.org

Resource Directory
— www.bmtinfonet.org/resources

Caring Connections Program
— www.bmtinfonet.org/services/support

The Binding Site

Freelite® - www.thebindingsite.com/freelite

Hevylite® - www.thebindingsite.com/hevylite

Wikilite.com
— www.wikilite.com/wikilite/index.php?title=Main_Page

NCI Clinical Center Studies
– 1.usa.gov/X12H73

Cancer Care
– www.cancercare.org/diagnosis/multiple_myeloma

Co-Payment Assistance
– www.cancercarecopay.org

A Helping Hand for Finding Financial Resources Co-Payment Assistance
– www.cancercare.org/helpinghand?utm_source=Aug16+E-News&utm_campaign=Aug+2016+eNews&utm_medium=email

Free Publications
– www.cancercare.org/publications/order
Customized Cancer Resource
- www.cancer.com

Smart Patients (Myeloma Chat)
- www.smartpatients.com/
The Myeloma Beacon
- www.myelomabeacon.com
Patient Power with Andrew Schorr
- www.patientpower.info/multiple-myeloma

Myeloma Crowd and Myeloma Crowd Radio
- http://www.myelomacrowd.org/

Doctor Directory - Myeloma Specialists
- https://www.myelomacrowd.org/doctor-directory/
Cancer Connect
- www.cancerconnect.com

Blood – Journal of the American Society of Hematology
- www. bloodjournal.hematologylibrary.org

Blood Hubs - Multiple Myeloma
- www.multiplemyeloma.bloodjournal.org

Managing Myeloma
- www.managingmyeloma.com

Myeloma Central (Celgene)
- www.myelomacentral.com

Celgene Patient Support
- https://www.celgenepatientsupport.com/?utm_medium=Email&utm_source=MMC_CPS_Link1&utm_campaign=CRM&_aat=5b402cc380d4f9fd7c8cb3786172bf1d

inPractice® Oncology
-  www.clinicaloptions.com/inPractice/Oncology/Hematologic_Malignancies/ch42_Heme-Myeloma/Pages/Page%201.aspx

Clinical Care Options® Oncology
- www.clinicaloptions.com/Oncology/Topics/Multiple%20Myeloma.aspx

Triage Cancer
- www.triagecancer.org

Cancer Finances - A Toolkit for Navigating Finances After Cancer
- https://cancerfinances.org/

Health Insurance Resources
- https://triagecancer.org/healthinsurance?utm_source=Triage+Cancer+Newsletter+Signup&utm_campaign=0be80dabcf-Openenrollment2019&utm_medium=email&utm_term=0_f47b6fc087-0be80dabcf-43936751

Cancer Legal Resource Center
- www.disabilityrightslegalcenter.org/cancer-legal-resource-center

Senior Helpers
- www.seniorhelpers.com
Links

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