Twin Cities

twin cities support group

For more information contact

Kevin Veenstra or Robin Nelson

Email: [email protected]

Our group is currently holding hybrid meetings. Please email leaders at [email protected] to get the Zoom link. 


Unless otherwise stated in group email, we are holding meetings with the information provided below.


Meeting time2nd Saturday of the month from 10:00 AM – 12:00 PM Central Time
Meeting Location St. Louis Park Public Library
3240 Library Lane
St. Louis Park, MN 55426
Get directions

44.9436312, -93.3691843

Upcoming events

IMF Events

May 21
IMF Virtual Regional Community Workshop (RCW) - Mid Atlantic
May 21, 2024 5:30 pm EST

Support Group Events

Nov 09
Twin Cities Virtual Monthly Meeting
November 9, 2024 10:00 am to 12:00 pm CST
Dec 14
Alumni and Group Sharing
December 14, 2024 10:00 am to 12:00 pm CST
Jan 11
Twin Cities Virtual Monthly Meeting
January 11, 2025 10:00 am to 12:00 pm CST
Feb 08
Twin Cities Virtual Monthly Meeting
February 8, 2025 10:00 am to 12:00 pm CST
Mar 08
Twin Cities Virtual Monthly Meeting
March 8, 2025 10:00 am to 12:00 pm CST
Apr 12
Twin Cities Virtual Monthly Meeting
April 12, 2025 10:00 am to 12:00 pm CST

View our past meetings here.

January EQ/ EI and MM, Kara Johnson, Park Nicollet
February Targeted therapies: Variability in Patient Responses, Dr. Brian van Ness, U of MN
March Cancelled
April Small group discussion
May Small group discussion
June Health /Wellness of Patients w/ Relapsed Refractory MM, Rebecca Bean, R.N., Karyopharm
July Small group discussion
August Emerging Therapies in MM, Dr. Dingli, M.D. PhD, Rochester Mayo
September Diet and Nutrition for MM patients, Angela Stephens, MN Oncology, Clinical Dietician
October MM Open Discussion with Dr. Lacy, M.D., Rochester Mayo
November Choosing your insurance, Kari Mallone, Twin City Underwriters
December Holiday Pot-Luck and sharing
January Neuropathy Management, Dr. Timothy Helm, Realief Centers of MN
February Co-Pay Assistance. Brian Arnold, Walgreen’s Specialty Pharmacy and Small group discussion/ sharing
March Personal reflections on his history with MM, Mayo, Latest Treatment Trends, Dr. Kyle, Mayo Clinic
April Living with Myeloma, Julie West, RN, BSN, OCN, Celgene
May IMF Regional Conference, no TCMMSG meeting
June Role of muscle strength training in reversing biological aging processes and improving self-efficacy Dr. Shernan Holtan, U of MN
July Senior Linkage Line Resources, Kersch Cooks
August Understanding your lab results, Melanie Smerillo, MSN, Takeda
September Small group discussions
October Insurance, Co-Pay Assistance and Vaccinations. TCU, Walgreen’s Specialty Pharmacy
November Living with MM discussion, Teresa Micelli, RN, BSN OCN, Mayo
December Annual Pot-Luck and group sharing
January Drug Therapy -Daratumumab (Darzalex)
February Understanding Your Lab Values
March Car-T cell therapy
April Cancelled due to snow storm
May Patient Legal Issues
June Intro & Tour of Frauenshuh Cancer Center
July Open Discussion
August Radiology
September UofIA treatment regimen / MM101
October How to Choose the Right Insurance & Vaccinations
November Medical Cannabis
December Open Discussion
January Neuropathy
February 3rd Party Payment Support
March Open Discussion/ Sharing
April New Drug Therapy - Empliciti (elotuzumab)
May Lab Values and Tests, how to interpret
June IMF annual meeting
July Myeloma and Diet
August UMN Myeloma Overview and Transplants
September IMF overview of support for research, education
October Emotional support, coping skills and community resources
November Insurance overview and common misconceptions
December Alumni meeting/ general sharing
January Open Discussion/ Sharing
February Mayo Transplant Coordinator/ open questions
March Metropolitan Area Agency on Aging resources
April Dr. Lacey open Myeloma discussion
May New Drug Therapy - Ninlaro
June Transplant overview, allogeneic & autogenic
July IMF annual meeting
August Genetics, biology of myeloma cells & new treatment approaches
September IMF support for research, education
October Drug Therapy Celgene (Thalidomide, Revlimid, Pomalyst)
November Open Discussion/ Sharing
December Alumni meeting/ general sharing
Ask doctor durie title card
Ask Dr. Durie Videos
week in review logo
Week in Review by Dr. Brian G.M. Durie
imf multiple myeloma informational publications
IMF Publications
A group of scientists review a test sample in a medical research lab
Multiple myeloma support group members meet in a group circle to chat
capitol building

Our group mission is to Inspire, Inform and Support. Our meetings are a mix of presentations from experts and sharing from patients, caregivers and friends. Some topics we discuss include the latest in medical treatments, understanding test results, living better with myeloma, coping with side effects, choosing the right medical insurance and overall sharing how we all are doing. Take advantage our breadth of the knowledge and experience! Ask us, we’ve been there . . . Together we all grow stronger!

For more information contact Kevin Veenstra or Robin Nelson at [email protected] to:

-get on our distribution list so you can receive our meeting announcements, minutes and other information

-have someone contact you if you need to someone to talk to. Please leave your contact name, phone number and best time/ day to reach you

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