For more information contact
Kevin Veenstra or Robin Nelson
Email: [email protected]
Our group is currently holding hybrid meetings. Please email leaders at [email protected] to get the Zoom link.
Unless otherwise stated in group email, we are holding meetings with the information provided below.
44.9436312, -93.3691843
Upcoming events
IMF Events
Support Group Events
View our past meetings here.
| January | EQ/ EI and MM, Kara Johnson, Park Nicollet |
| February | Targeted therapies: Variability in Patient Responses, Dr. Brian van Ness, U of MN |
| March | Cancelled |
| April | Small group discussion |
| May | Small group discussion |
| June | Health /Wellness of Patients w/ Relapsed Refractory MM, Rebecca Bean, R.N., Karyopharm |
| July | Small group discussion |
| August | Emerging Therapies in MM, Dr. Dingli, M.D. PhD, Rochester Mayo |
| September | Diet and Nutrition for MM patients, Angela Stephens, MN Oncology, Clinical Dietician |
| October | MM Open Discussion with Dr. Lacy, M.D., Rochester Mayo |
| November | Choosing your insurance, Kari Mallone, Twin City Underwriters |
| December | Holiday Pot-Luck and sharing |
| January | Neuropathy Management, Dr. Timothy Helm, Realief Centers of MN |
| February | Co-Pay Assistance. Brian Arnold, Walgreen’s Specialty Pharmacy and Small group discussion/ sharing |
| March | Personal reflections on his history with MM, Mayo, Latest Treatment Trends, Dr. Kyle, Mayo Clinic |
| April | Living with Myeloma, Julie West, RN, BSN, OCN, Celgene |
| May | IMF Regional Conference, no TCMMSG meeting |
| June | Role of muscle strength training in reversing biological aging processes and improving self-efficacy Dr. Shernan Holtan, U of MN |
| July | Senior Linkage Line Resources, Kersch Cooks |
| August | Understanding your lab results, Melanie Smerillo, MSN, Takeda |
| September | Small group discussions |
| October | Insurance, Co-Pay Assistance and Vaccinations. TCU, Walgreen’s Specialty Pharmacy |
| November | Living with MM discussion, Teresa Micelli, RN, BSN OCN, Mayo |
| December | Annual Pot-Luck and group sharing |
| January | Drug Therapy -Daratumumab (Darzalex) |
| February | Understanding Your Lab Values |
| March | Car-T cell therapy |
| April | Cancelled due to snow storm |
| May | Patient Legal Issues |
| June | Intro & Tour of Frauenshuh Cancer Center |
| July | Open Discussion |
| August | Radiology |
| September | UofIA treatment regimen / MM101 |
| October | How to Choose the Right Insurance & Vaccinations |
| November | Medical Cannabis |
| December | Open Discussion |
| January | Neuropathy |
| February | 3rd Party Payment Support |
| March | Open Discussion/ Sharing |
| April | New Drug Therapy - Empliciti (elotuzumab) |
| May | Lab Values and Tests, how to interpret |
| June | IMF annual meeting |
| July | Myeloma and Diet |
| August | UMN Myeloma Overview and Transplants |
| September | IMF overview of support for research, education |
| October | Emotional support, coping skills and community resources |
| November | Insurance overview and common misconceptions |
| December | Alumni meeting/ general sharing |
| January | Open Discussion/ Sharing |
| February | Mayo Transplant Coordinator/ open questions |
| March | Metropolitan Area Agency on Aging resources |
| April | Dr. Lacey open Myeloma discussion |
| May | New Drug Therapy - Ninlaro |
| June | Transplant overview, allogeneic & autogenic |
| July | IMF annual meeting |
| August | Genetics, biology of myeloma cells & new treatment approaches |
| September | IMF support for research, education |
| October | Drug Therapy Celgene (Thalidomide, Revlimid, Pomalyst) |
| November | Open Discussion/ Sharing |
| December | Alumni meeting/ general sharing |
Our group mission is to Inspire, Inform and Support. Our meetings are a mix of presentations from experts and sharing from patients, caregivers and friends. Some topics we discuss include the latest in medical treatments, understanding test results, living better with myeloma, coping with side effects, choosing the right medical insurance and overall sharing how we all are doing. Take advantage our breadth of the knowledge and experience! Ask us, we’ve been there . . . Together we all grow stronger!
For more information contact Kevin Veenstra or Robin Nelson at [email protected] to:
-get on our distribution list so you can receive our meeting announcements, minutes and other information
-have someone contact you if you need to someone to talk to. Please leave your contact name, phone number and best time/ day to reach you