Kansas City

Covid Update

The IMF applauds the efforts of the volunteer leaders that conduct local myeloma support group meetings and virtual meetings.

The IMF is cautiously optimistic for local support groups to return back to in-person meetings when it’s safe in your community. We suggest that each group follow local, state and federal guidelines to help the volunteer leaders to determine when it will be safe to start meeting in-person again. The IMF will continue to provide Zoom licenses to all myeloma support groups that still meet virtually or have hybrid meetings.  Please contact the group leader for meeting details.

For additional updates on COVID-19 coronavirus, please click this link: Myeloma Patient Safety and the Coronavirus.

You may also wish to refer to www.cdc.gov for information and guidance on specifics for travel, vaccinations, variants and when/how to gather safely.

Stock Support Group Meeting

Wendy and I are delighted to have Lisa Yacko, Senior Medical Science Liaison (MSL) and an oncology pharmacist by profession, with Amgen.  Her presentation on BiTE Immuno-oncology was just recently approved by Amgen for support groups. We are honored to be the first group to hear it.

We look forward to seeing you at our next meeting on Thursday, June 17 at 7:00 P.M. Be sure to mark your calendar and join us. Once again, our virtual meeting will open 15 minutes before (6:45) so everyone can connect and prepare for the speaker to begin promptly at 7:00 P.M.

For additional information, contact Cindy Ralston at (913) 268-7422, Wendy Thomas, RN, MSN, OCN of KU or Email: [email protected]

Learn more about BiTE

For more information, please contact

Cindy Ralston 913-268-7422

Wendy Thomas 816-304-0476

Group Email: [email protected]

Meeting time3rd Thursday of each month from 7:00 - 8:30 PM
Meeting Location Central United Methodist Church
5144 Oak Street
Kansas City, MO 64112
Get directions

39.0327728, -94.5833208

Kansas City Support Group Welcome

Masking to stay safe and meeting virtually to stay in touch! Let us know if it will work. 

 

Upcoming events

IMF Events

No IMF events found.

Support Group Events

Jul 15
Kansas City Monthly Meeting
July 15, 2021 7:00 pm to 8:30 pm CST
Aug 19
Kansas City Monthly Meeting
August 19, 2021 7:00 pm to 8:30 pm CST
Sep 16
Kansas City Monthly Meeting
September 16, 2021 7:00 pm to 8:30 pm CST
Oct 21
Kansas City Monthly Meeting
October 21, 2021 7:00 pm to 8:30 pm CST
Nov 18
Kansas City Monthly Meeting
November 18, 2021 7:00 pm to 8:30 pm CST
Dec 16
Kansas City Monthly Meeting
December 16, 2021 7:00 pm to 8:30 pm CST

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Ask Dr. Durie Videos
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Week in Review by Dr. Brian G.M. Durie
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IMF Publications
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Research
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Support
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About Us

“Whether we are newly diagnosed or long-term survivors, 
it is good to know that we are not alone on our journey.”

It has been said by medical professionals who have studied the issues that cancer patients who participate in support groups lead happier lives, experience less stress and depression, and make better treatment decisions.

Since 1996 the Kansas City Multiple Myeloma Family Support Group has been serving area patients and their caretakers by offering education, support and comfort in knowing they are not alone in dealing with Myeloma. Started by two women, Ann Hovey and Cindy Ralston felt the need to connect with other myeloma patients.

In 1995 Ann was undergoing treatment for Multiple Myeloma at the Myeloma Institute in Little Rock, Arkansas. She found great comfort and support from attending the weekly support group sessions which were offered.

The familiar faces with their similar stores assured her that many others shared her fears, discomfort, and feelings of isolation. Of course, the most inspiring stories which offered her encouragement and hope were those from long-term survivors of 10 years. This was back in 1995-1996 when a cure or remission for Myeloma patients was hardly ever discussed. Attendees were there for ongoing treatment and others for their annual checkup. Their comments provided great insight and a glimmer of hope.

After her recovery from her bone marrow transplants, Ann talked to people at the International Myeloma Foundation (IMF) and the Leukemia & Lymphoma Society (LLS) asking them to compile a list of patients in the Kansas City area who might be interested in establishing a support group. (This was prior to HIPPA)

At the same time, Cindy Ralston who was involved with the Bloch Cancer Support Center, and also a Myeloma patient, attended an IMF Patient and Family Seminar in Atlanta, where she first met other Myeloma patients. Through this experience Cindy began speaking to the Bloch Center and the Leukemia & Lymphoma Society suggesting that they partner to establish a Myeloma Support Group. It was suggested that she attend a support group for Leukemia patients as a means to fulfill her need for local support. Much to her surprise, many of the people attending the meeting were Myeloma patients. This fact reinforced the need for an area group dedicated for just Myeloma patients.

After the Leukemia & Lymphoma Society Support Group meeting where Ann and Cindy first met, they joined forces to establish the Kansas City Multiple Myeloma Support Group, which initially met at the Bloch Cancer Support Center. Since 1997, the group has offered education, support, encouragement and friendship to many area myeloma patients and their caregivers.

 

Members Stories

Our Group is Proudly Affiliated with the International Myeloma Foundation www.myeloma.org

This website is for both the East Kansas and Kansas City, MO Support Groups. 

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