Ft. Myers

Covid Update

The IMF applauds the efforts of the volunteer leaders that conduct local myeloma support group meetings and virtual meetings.

The IMF is cautiously optimistic for local support groups to return back to in-person meetings when it’s safe in your community. We suggest that each group follow local, state and federal guidelines to help the volunteer leaders to determine when it will be safe to start meeting in-person again. The IMF will continue to provide Zoom licenses to all myeloma support groups that still meet virtually or have hybrid meetings.  Please contact the group leader for meeting details.

For additional updates on COVID-19 coronavirus, please click this link: Myeloma Patient Safety and the Coronavirus.

You may also wish to refer to www.cdc.gov for information and guidance on specifics for travel, vaccinations, variants and when/how to gather safely.

ft myers header

For more information, please contact

Dan Neidert (H) 239-939-1934 

E-mail: [email protected]

Lisah Maupin (C) 239-940-9087

 

We meet every month except June and July

Meeting time3rd Tuesday of each month (except June and July) from 6:00 PM - 8:00 PM
Meeting Location Hope Hospice
9891 Healthpark Circle
Fort Myers, FL 33908
Get directions

26.511639, -81.915158

Upcoming events

IMF Events

Sep 30
#KNOWMYELOMA Variety Show
September 30, 2021 6:00 pm PST

Support Group Events

Oct 19
Speaker: Tara Roy
October 19, 2021 6:00 pm to 8:00 pm EST
Nov 16
Round Table Discussion
November 16, 2021 6:00 pm to 8:00 pm EST
Dec 21
No meeting
December 21, 2021 6:00 pm to 8:00 pm EST
Jan 18
Speaker: Lisah
January 18, 2022 6:00 pm to 8:00 pm EST
Feb 15
Speaker: Tracy Bonds
February 15, 2022 6:00 pm to 8:00 pm EST
Mar 15
Speaker: Dr. Zafar
March 15, 2022 6:00 pm to 8:00 pm EST
Ask doctor durie title card
Ask Dr. Durie Videos
deep-ocean
week in review logo
Week in Review by Dr. Brian G.M. Durie
deep-ocean
imf multiple myeloma informational publications
IMF Publications
deep-ocean
A group of scientists review a test sample in a medical research lab
Research
deep-ocean
Multiple myeloma support group members meet in a group circle to chat
Support
deep-ocean
capitol building
Advocacy
deep-ocean

Resources

Funding Myeloma

Click here to view PDF

Co-Leader Lisah Maupin put together a very concise and professional presentation for our group after a meeting that was focused on patient financial assistance and fund raising for MM.

International Myeloma Foundation (IMF)

www.myeloma.org

A non- profit organization dedicated to the education, research, and treatment of myeloma         

IMF Infoline  800-452-2873  Toll free providing immediate support and information.

IMF Patient and Family Seminar These meetings enable patients and their families to learn about the latest developments in myeloma from a panel of world-renowned myeloma experts.  Usually the third week of February in Boca Raton, Florida.

The Myeloma Beacon

www.myelomabeacon.com

Independent, up-to-date news and information for the myeloma community. 

Myeloma Crowd

www.myelomacrowd.org

A site created for patients by patients.  Their goal is to simplify complex information and arm patients with important and current information.

Lab Tests On Line

www.labtestsonline.org/understanding/

A go-to reference for your questions ranging from why a lab test was ordered to what the results might mean.  Designed for the patient to better understand clinical laboratory tests.

Bone Marrow Transplant Information Network (BMT Infonet)

www.bmtinfonet.org/

An organization dedicated to providing easy-to-understand information about bone marrow transplants and the decision making process.

Multiple Myeloma Research Foundation

www.themmrf.org

A non-profit organization dedicated to funding research and helping patients understand their disease.  A great source for finding clinical trials.

American Society of Hematology (ASH)

www.hematology.org/patients/

Their mission is to further the understanding , diagnosis, treatment, and prevention of disorders of the blood by promoting research, clinical care, education, training and advocacy in hematology.

Multiple Myeloma Diagnosis and Treatment

www.mayoclinicproceedings.org/article/S0025-6196(15)00895-2/pdf

A bit technical so you will need your white coat to read it as it is written for a physician audience.  Probably the best single piece of work to give you the big picture (with supporting data) on current approaches to diagnosis and treatment of multiple myeloma.  A Mayo Clinic publication.

 

We use cookies on our website to support technical features that enhance your user experience.

We also use analytics & advertising services. To opt-out click for more information.