Ft. Myers

Covid Update

As most of the world is still facing the effects of the spread of the COVID-19 respiratory virus, the International Myeloma Foundation (IMF) continues to recommend that all myeloma support groups meet virtually.

We take the health and safety of our myeloma support group members seriously and will continue to hold our meetings virtually to ensure the safety of our members. For additional updates on COVID-19 coronavirus, please click this link:
Myeloma Patient Safety and the Coronavirus.

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For more information, please contact

Dan Neidert (H) 239-939-1934 

E-mail: [email protected]

Lisah Maupin (C) 239-940-9087

 

We meet every month except June and July

Meeting time3rd Tuesday of each month (except June and July) from 6:00 PM - 8:00 PM
Meeting Location Hope Hospice
9891 Healthpark Circle
Fort Myers, FL 33908
Get directions

26.511639, -81.915158

Upcoming events

IMF Events

Mar 13
From Vaccine to Variants: The Latest COVID-19 Safety Guidance
March 13, 2021 7:00 am

Support Group Events

Mar 16
Monthly Meeting
March 16, 2021 3:00 pm to 5:00 pm
Apr 20
Monthly Meeting
April 20, 2021 3:00 pm to 5:00 pm
May 18
Monthly Meeting
May 18, 2021 3:00 pm to 5:00 pm
Jun 15
Monthly Meeting
June 15, 2021 3:00 pm to 5:00 pm
Jul 20
Monthly Meeting
July 20, 2021 3:00 pm to 5:00 pm
Aug 17
Monthly Meeting
August 17, 2021 3:00 pm to 5:00 pm
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Ask Dr. Durie Videos
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Week in Review by Dr. Brian G.M. Durie
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imf multiple myeloma informational publications
IMF Publications
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Research
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Support
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Advocacy
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Resources

Funding Myeloma
Click here to view PDF
Co-Leader Lisah Maupin put together a very concise and professional presentation for our group after a meeting that was focused on patient financial assistance and fund raising for MM.

International Myeloma Foundation (IMF)
www.myeloma.org
A non- profit organization dedicated to the education, research, and treatment of myeloma         

IMF Infoline  800-452-2873  Toll free providing immediate support and information.

IMF Patient and Family Seminar These meetings enable patients and their families to learn about the latest developments in myeloma from a panel of world-renowned myeloma experts.  Usually the third week of February in Boca Raton, Florida.

The Myeloma Beacon
www.myelomabeacon.com
Independent, up-to-date news and information for the myeloma community. 

Myeloma Crowd
www.myelomacrowd.org
A site created for patients by patients.  Their goal is to simplify complex information and arm patients with important and current information.

Lab Tests On Line
www.labtestsonline.org/understanding/
A go-to reference for your questions ranging from why a lab test was ordered to what the results might mean.  Designed for the patient to better understand clinical laboratory tests.

Bone Marrow Transplant Information Network (BMT Infonet)
www.bmtinfonet.org/
An organization dedicated to providing easy-to-understand information about bone marrow transplants and the decision making process.

Multiple Myeloma Research Foundation
www.themmrf.org
A non-profit organization dedicated to funding research and helping patients understand their disease.  A great source for finding clinical trials.

American Society of Hematology (ASH)
www.hematology.org/patients/
Their mission is to further the understanding , diagnosis, treatment, and prevention of disorders of the blood by promoting research, clinical care, education, training and advocacy in hematology.

Multiple Myeloma Diagnosis and Treatment
www.mayoclinicproceedings.org/article/S0025-6196(15)00895-2/pdf
A bit technical so you will need your white coat to read it as it is written for a physician audience.  Probably the best single piece of work to give you the big picture (with supporting data) on current approaches to diagnosis and treatment of multiple myeloma.  A Mayo Clinic publication.

 

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