Waterbury Area

View the IMF's Monthly Support Group Newsletter

 

Click HERE to read the IMF Support Group Leader blogs from the 63rd annual meeting of the American Society of Hematology (ASH).

Covid Update

The IMF applauds the efforts of the volunteer leaders that conduct local and virtual myeloma support group meetings.

We are cautiously optimistic for local support groups to return back to in-person or hybrid meetings (combination of in-person and virtual) when it is safe in each community.  Each group will make it’s own determination based on following their local, state and federal guidelines to determine when it will be safe.  The IMF will continue to provide Zoom licenses to all groups that continue to meet virtually or have hybrid meetings.

For additional updates on COVID-19 coronavirus, please click this link: Myeloma Patient Safety and the Coronavirus.

You may also wish to refer to www.cdc.gov for information and guidance on specifics for travel, vaccinations, variants and when/how to gather safely.

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To ensure the safety of our group members and community, we will continue to meet virtually each month.  For details, please contact Robin Tuohy ([email protected]).

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For any additional info, please contact us:

Michael or Robin Tuohy at 203-206-3536
Jon Fitzpatrick at 203-709-0744

Email: [email protected]

 

 

No In-Person Meetings at this time. Please contact Robin Tuohy ([email protected]) for virtual meeting details and link.

Meeting timeSecond Wednesdays of the month from 6:00 – 8:00 PM
Meeting Location Prospect Library
17 Center Street
Prospect, CT 06712
Get directions

41.5008174, -72.9785104

Improving Lives Finding the Cure

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first virtual meetingThese virtual meetings can inspire us to connect and be social and supportive, while we physically distance, and strive to be kind and do the best for everyone.

Our group members continue to meet virtually to learn, share and stay up to date and engaged. We welcome you to share your experience in a volunteer led support group with myeloma patients, care partners, family & friends. Join us to meet and interact with others to learn the latest advances in the treatment and management of myeloma.

 

Upcoming events

IMF Events

No IMF events found.

Support Group Events

Feb 09
Infection Risk and the Importance of Vaccine in people with multiple myeloma
February 9, 2022 6:00 pm to 8:00 pm EST
Learn more
Mar 09
March is Myeloma Action Month!
March 9, 2022 6:00 pm to 8:00 pm EST
Learn more

Past events

Jan 12, 2022
Annual review of ASH
January 12, 2022 6:00 pm to 8:00 pm EST
Dec 08, 2021
Holiday Celebration
December 8, 2021 6:00 pm to 8:00 pm EST
Nov 10, 2021
Guest Speaker: Jennifer Bell, Amgen
November 10, 2021 6:00 pm to 8:00 pm EST
Oct 13, 2021
Group Activity with Kelley Sidorowicz 
October 13, 2021 6:00 pm to 8:00 pm EST
Sep 08, 2021
Guest Speaker: Kevin Brigle, PhD, NP
September 8, 2021 6:00 pm to 8:00 pm EST
Aug 11, 2021
Presentation on BLENREP
August 11, 2021 6:00 pm to 8:00 pm EST
Jun 09, 2021
Guest Speaker: Teresa Money McLaughlin, DNP, APRN, AOCN
June 9, 2021 6:00 pm to 8:00 pm
May 12, 2021
Speaker TBD
May 12, 2021 6:00 pm to 8:00 pm
Apr 14, 2021
Virtual Speaker: Kimberly A. Gibbs RN, BSN, OCN
April 14, 2021 6:00 pm to 8:00 pm
Mar 10, 2021
March is Myeloma Action Month! Special Speaker:  Susie Durie
March 10, 2021 6:00 pm to 8:00 pm
Feb 10, 2021
Virtual Guest Speaker: Teresa Money McLaughlin, DNP, APRN, AOCN
February 10, 2021 6:00 pm to 8:00 pm
Jan 20, 2021
Virtual Meeting: Discussion on ASH Webinar
January 20, 2021 6:00 pm to 8:00 pm
Nov 11, 2020
Guest Speaker: Suzy Graham, RN, OCN
November 11, 2020 3:00 pm to 5:00 pm
Oct 14, 2020
Virtual Speaker: Ann McNeill, RN, MSN, APN
October 14, 2020 10:00 am to 12:00 pm
Events
What Is Multiple Myeloma?
Multiple myeloma is a cancer of the bone marrow plasma cells. It is synonymous with "myeloma" and "plasma cell myeloma." Plasma cells make antibodies against infectious agents such as viruses and bacteria. A cancerous or malignant plasma cell is called a myeloma cell. Myeloma is called “multiple” because there are frequently multiple patches or areas in bone marrow where it grows.
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Ask Dr. Durie Videos
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Week in Review by Dr. Brian G.M. Durie
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imf multiple myeloma informational publications
IMF Publications
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Research
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Multiple myeloma support group members meet in a group circle to chat
Support
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Advocacy
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Videos
Suzy Graham, RN, OCN joins our group

Suzy Graham, RN, OCN virtually meets with the Connecticut Multiple Myeloma Fighters Information Group

Michael Tuohy and his wife Robin have turned Michael’s #multiplemyeloma diagnosis into a chance to help others.

Michael Tuohy and his wife Robin have turned Michael’s #multiplemyeloma diagnosis into a chance to help others.

Binding Site Presentation 6-10-20

In this series of videos, patients, caregivers, and healthcare professionals answer the question, “What does it mean to be a myeloma warrior?” Watch to hear their perspectives on such topics as self-advocating as a patient, finding hope, educating yourself, living fearlessly, and paving the path towards a cure.

CTMMF On Being A Myeloma Warrior

Linda Sturm and Will Mechanic

Diagnosed with myeloma on her 60th birthday, Linda has been living well with myeloma for 14 years with the support of the right team – her doctors, her husband, and the IMF.

Videos

About Us

Michael and Robin TuohyMichael and Robin Tuohy started the CT Multiple Myeloma Fighters Information Group in the Spring of 2001 with the help of the International Myeloma Foundation.   Michael was diagnosed with multiple myeloma in 2000 at the age of 36.  Our support group was the 1st support group specifically for multiple myeloma patients in the State of CT.  Myeloma patients, caregivers, family and friends are welcome to attend our meetings.

Our mission is to be an ongoing resource for information, support, shared experiences and hope for persons with multiple myeloma, their family and friends.

Our focus is to reach out to the myeloma community and empower them through education, provide support, and let them know they are not alone.   Education is key in the fight against myeloma.  Although we are not medical professionals, we strive to provide the most current information in myeloma treatment, clinical trials, side effects, pain management and quality of life issues by our affiliation with the International Myeloma Foundation.  Patients talk about things that doctors don’t – like insurance, bills, assistance, work and how to go about life in general.  Our shared experiences help each other!

If you would like to share your story please contact us.  By sharing our experiences we can help each other.  Knowledge is Power!

 

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