Prospect, CT

You’re Not Alone: Join a Myeloma Support Group Today

 

 

View the IMF's Monthly Support Group Newsletter

 

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This group meets virtually the 2nd Tuesday of most months from 6:00 - 8:00 pm with quarterly in person meeting opportunities.

For details, please contact Robin Tuohy ([email protected]).

Connecticut Multiple Myeloma Fighters Information Group Flyer

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Welcome to the CT Myeloma Fighters Information Group (CTMMFIG)!

 

Our Mission 

Since 2001, our mission has been to bring myeloma patients and care partners together through trusted education, shared experience, and peer support—fostering hope and living well with myeloma. 

Learning together. Supporting one another.

 

For any additional info, please contact:

Michael Tuohy:  203-206-3889

Robin Tuohy: 203-206-3536

Email: [email protected]

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Where Shared Journeys Become Shared Strength: When you or a loved one is diagnosed with myeloma, the path ahead can feel uncertain, but you don’t have to walk it alone. Our group is part of the International Myeloma Foundation’s educationally supported network of myeloma specific groups. Whether you’re newly diagnosed, navigating a relapse, or supporting a loved one, we are here for you.

 

 

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Connecticut Multiple Myeloma Fighters Information Group Leaders receiving an award at the International Myeloma Foundation's 25th Anniversary Support Group Leaders Summit on September 14, 2024 in recognition of the dedication and resilience of the group celebrating 23 years supporting their myeloma coMMunity.

 

 

Upcoming events

IMF Events

Aug 14
Los Angeles, CA, Patient and Family Seminar 2026
August 14, 2026 12:00 pm PST
Aug 24
Join Us For This Online Webinar: What's Next? - Managing Myeloma at Relapse
August 24, 2026 3:00 pm PST
Oct 02
Short Hills, NJ, Patient and Family Seminar 2026
October 2, 2026 12:00 pm EST

Support Group Events

Jun 09
Guest Speaker: Yara Williams, IMF
June 9, 2026 6:00 pm to 8:00 pm EST
Jul 14
IN PERSON Summer Picnic
July 14, 2026 6:00 pm to 8:00 pm EST
Aug 11
Prospect Virtual Monthly Meeting
August 11, 2026 6:00 pm to 8:00 pm EST
Sep 08
Prospect Virtual Monthly Meeting
September 8, 2026 6:00 pm to 8:00 pm ET
Oct 13
Prospect Virtual Monthly Meeting
October 13, 2026 6:00 pm to 8:00 pm ET
Nov 10
Prospect Virtual Monthly Meeting
November 10, 2026 6:00 pm to 8:00 pm ET
IMF CEO Yelak Biru on video monitor screen
IMF Videos
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IMF Staff with Support Group Leaders at ASH 2024
Week in Review
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imf multiple myeloma informational publications
IMF Publications
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Research
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Multiple myeloma support group members meet in a group circle to chat
Support
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Advocacy
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Videos
  • Living Life with myeloma: 25 Years and Counting!


    For over 25 years, Michael and Robin Tuohy have faced multiple myeloma together — as patient and care partner, husband and wife, advocates and leaders in the International Myeloma Foundation (IMF) community. 

  • Waterbury Virtual Support Group Meeting with Teresa Miceli

  • Living Well with Myeloma: Psychosocial Care

  • Suzy Graham, RN, OCN joins our group

    Suzy Graham, RN, OCN virtually meets with the Connecticut Multiple Myeloma Fighters Information Group

  • Michael Tuohy and his wife Robin have turned Michael’s #multiplemyeloma diagnosis into a chance to help others.

    Michael Tuohy and his wife Robin have turned Michael’s #multiplemyeloma diagnosis into a chance to help others.

  • Binding Site Presentation 6-10-20

    In this series of videos, patients, caregivers, and healthcare professionals answer the question, “What does it mean to be a myeloma warrior?” Watch to hear their perspectives on such topics as self-advocating as a patient, finding hope, educating yourself, living fearlessly, and paving the path towards a cure.

  • CTMMF On Being A Myeloma Warrior

  • Linda Sturm and Will Mechanic

    Diagnosed with myeloma on her 60th birthday, Linda has been living well with myeloma for 14 years with the support of the right team – her doctors, her husband, and the IMF.

About Us

Michael and Robin Tuohy

Michael and Robin Tuohy started the CT Multiple Myeloma Fighters Information Group in the Spring of 2001 with the help of the International Myeloma Foundation.   Michael was diagnosed with multiple myeloma in 2000 at the age of 36.  Our support group was the 1st support group specifically for multiple myeloma patients in the State of CT.  Myeloma patients, caregivers, family and friends are welcome to attend our meetings.

Our mission is to be an ongoing resource for information, support, shared experiences and hope for persons with multiple myeloma, their family and friends.

Our focus is to reach out to the myeloma community and empower them through education, provide support, and let them know they are not alone.   Education is key in the fight against myeloma.  Although we are not medical professionals, we strive to provide the most current information in myeloma treatment, clinical trials, side effects, pain management and quality of life issues by our affiliation with the International Myeloma Foundation.  Patients talk about things that doctors don’t – like insurance, bills, assistance, work and how to go about life in general.  Our shared experiences help each other!

 

CURE magazine interview with Robin Tuohy, Vice President Patient Support, International Myeloma Foundation

 

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