Southwest USA Virtual Myeloma Workshop (https://www.myeloma.org/videos/southwest-usa-virtual-myeloma-workshop)

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Southwest USA Virtual Myeloma Workshop

 

What Is Included in This Virtual Myeloma Workshop?

This IMF Virtual Regional Community Workshop (https://www.myeloma.org/resources-support/imf-support-network/myeloma-community-workshops) brings together top myeloma professionals to address disparities in multiple myeloma, review myeloma basics, go over therapy options in the treatment and management of myeloma, and the importance of being your own healthcare advocate.

Addressing the Needs of Communities in the Southwestern United States

In this virtual meeting, the panelists address specific questions posed by multiple myeloma patients and caregivers from support groups throughout the Southwestern USA.

 

Speakers and Topics:

Joseph Mikhael, MD

International Myeloma Foundation

Myeloma 101
Frontline Therapy

Nina Shah, MD

University of California San Francisco

Relapsed Myeloma Emerging Therapies

Kimberly Noonan, RN, ANP, AOCN

IMF Nurse Leadership Board
Living Well with Myeloma

 

Workshop Topic Details:

Disparities in Myeloma, Myeloma 101, and Frontline Therapy

In his presentation, IMF Chief Medical Officer Dr. Joseph Mikhael (City of Hope — Phoenix) discusses disparities in myeloma (https://www.myeloma.org/diversity/are-some-disparities-treatment-care-multiple-myeloma-patients) and how the IMF is committed to addressing this issue head on through multiple diversity initiatives (https://www.myeloma.org/diversity/diversity-inclusion).

Dr. Mikhael goes on to review multiple myeloma basics including the definition of multiple myeloma (https://www.myeloma.org/what-is-multiple-myeloma), key factors of the disease, and approaches to initial treatment (https://www.myeloma.org/multiple-myeloma-treatment) and frontline therapy.

Relapsed Therapy, Emerging Therapies, and Clinical Trials

Dr. Nina Shah (University of California, San Fransisco) reviews current standards of care for multiple myeloma patients, available therapies (https://www.myeloma.org/multiple-myeloma-drugs), how treatments target myeloma, and emerging BCMA targeting therapies.

Living Well with Myeloma: Navigating the Journey

Kimberly Noonan, RN, ANP, AOCN (IMF Nurse Leadership Board) discusses the importance of expressing your goals and preferences with your healthcare team, communicating your symptoms (https://www.myeloma.org/multiple-myeloma-complications), making informed decisions, surrounding yourself with a support system (https://www.myeloma.org/patient-caregiver-information), and the value of exercise.

 

Workshop Resources:

Download workshop slides (https://www.myeloma.org/sites/default/files/pdf/IMF%2520Southwestern%2520USA%2520Virtual%2520RCW.pdf)

 

Additional Resources:

Download the IMF's Multiple Myeloma Informational Booklets:

Download IMF publications (https://www.myeloma.org/cancer-information-series)

 

Workshop Sponsors:

with support from:

Amgen Oncology; Celgene/BMS; Janssen; Karyopharm Therapeutics; Takeda Oncology

Please check out these multiple myeloma resources from our sponsors:

AMGEN Patient Brochure (https://s3.us-west-1.wasabisys.com/imf-d8-prod/2020-05/Amgen%20Unbranded%20Multiple%20Myeloma%20Patient%20Brochure%20-%20Digital%20Version.pdf)

 

Revlimid Treatment Overview brochure (https://media.revlimid.com/wp-content/uploads/2020/01/US-REV-19-0673-REVLIMID-Treatment-Overview-Brochure.pdf)

Pomalyst Transition Treatment brochure (https://media.pomalyst.com/wp-content/uploads/2020/01/US-POM-19-0363-POMALYST-Treatment-Transition-Brochure.pdf)

Standing in the GaaP brochure (https://media.myelomacentral.com/wp-content/uploads/CGAA1507_US-CLG-19-1185_Gaap-Patient-Brochure_2019_v17_DIGITAL3.pdf)

DARZALEX® Patient Website (https://news.darzalex.com/faspro/)

DARZALEX FASPRO™ Patient Brochure (https://www.darzalex.com/sites/www.darzalex-v1.com/files/darzalex-faspro-patient-brochure.pdf)

DARZALEX FASPRO™ Dosing Calendar (https://www.darzalex.com/sites/www.darzalex-v1.com/files/darzalex-faspro-patient-dosing-calendar.pdf)

 

Patient-Caregiver Brochure (https://www.myeloma.org/sites/default/files/pdf/Karyopharm-MM-patient-caregiver-brochure.pdf)

Patient Support (https://www.myeloma.org/sites/default/files/pdf/Karyopharm-KaryForward-Flashcard.pdf) 

Xpovio website (https://www.xpovio.com/)

KARYFORWARD website (https://www.karyforward.com/)

Our Commitment to Patients (https://vimeo.com/397448509/4e1b3e373f)
 

Understanding Ninlaro booklet (https://www.myeloma.org/resource-library/understanding-ninlaro)

 

Video

Source URL: https://www.myeloma.org/videos/southwest-usa-virtual-myeloma-workshop