For additional information and to sign up for the zoom link, please contact:
Linda and Jack Huguelet at 423-886-3554 or 423-779-4907
Email: [email protected]
We meet:
Virtual — January & February
In Person — March to November
35.0370178, -85.1365966
Upcoming events
IMF Events
Support Group Events
Resources
Some things that make multiple myeloma (MM) difficult to understand are the unfamiliar medical terms that some experts and healthcare providers use to explain it. You may come across words like these when you are talking to someone about MM or when you are reading an article about it. Try not to feel overwhelmed when this happens. If you’re talking to a healthcare professional, you can always ask them to explain.
The International Myeloma Foundation brings myeloma support group leaders and patients to the annual meeting of the American Society of Hematology (ASH), an exciting convergence of over 30,000 health care professionals from around the world. Start following the IMF ASH team members now on social media as they ramp up to share the latest clinical updates in myeloma research, therapies, and practice strategies via X(formerly Twitter), Facebook, blogs, and videos.
This Infosheet contains a range of gentle exercises that can help you build and maintain your fitness and strength in a way Exercises for myeloma patients Living well with myeloma Infosheet 2 myeloma.org.uk that is suitable and safe for most myeloma patients, to help you keep living well.
Financial Resources for Multiple Myeloma Patients
While the International Myeloma Foundation does not provide financial assistance directly, we created a list of resources and support organizations that offer medical grants for patients to ease the financial burden and help them focus on their health and well-being. Please note that select programs have enrollment limits, so it's best to apply early and sign up for notifications when possible for the best chance of securing aid.
There are many websites and blogs discussing multiple myeloma. Below are a few that our members find especially informative and reliable.
The IMF is the oldest and largest myeloma organization, reaching more than 195,000 members in 113 countries. In addition to funding vital research, they provide a wide-range of patient resources. Be sure to check out the ‘About Myeloma’ tab on their website for a list of resources. Their patient InfoLine is staffed by knowledgeable professionals.
Website: www.myeloma.org
Patient Infoline: 800-452-2873 (CURE)
Sign up for the Myeloma Minute, which features weekly updates on the latest myeloma news and conferences.
The LLS provides a host of educational and financial resources. Information specialists are available Monday—Friday from 9 am—9 pm ET. They also host separate online chats for patients and caregivers. Both are on Tuesdays from 8—10 pm ET. Register at www.LLS.org/chat.
Website: www.LLS.org
Phone: 800-955-4572
The MMRF focuses primarily on innovative ways to accelerate the development of next-generation treatments and also offers brochures and other patient resources.
Website: www.themmrf.org
Patient Support Center: 866-603-6628
Sign up for the MMRF's Fast Facts for highlights in research advances and progress by the MMRF.
An excellent online source for up-to-date information. Daily emails are available or just visit their site for the latest news and patient insights. The site also features various patient blogs.
Website: www.myelomabeacon.com
A website that allows you to create a personal, protected site to make it easy to post health updates during any type of health event. This makes it easy to keep friends and family updated and may be especially helpful during the transplant process.
Website: www.caringbridge.org
Website that addresses many types of cancers, including myeloma, and offers support for patients and caregivers.
Website: www.cancersupportcommunity.org
A publication dealing with all types of cancers and its related issues.
Click here for a free subscription.
CancerCare® can help provide telephone, online and face-to-face counseling, support groups, education, publications and financial and co-payment assistance. Professional oncology social workers offer personalized care, and all of our services are free of charge.
Website: www.cancercare.org
Celgene (makers of Revlimid) created Myeloma Central to help you understand multiple myeloma and have more meaningful conversations with your healthcare provider.
Website: www.myelomacentral.com
Patient Power offers a variety of videos about many types of cancers, one of which is multiple myeloma. The site features interviews with leading specialists and patient advocates about the latest research, living well with myeloma, and more.
Website: www.patientpower.info
This site was started by a myeloma patient and includes links about the disease and the latest news. It also features a regular schedule of radio interviews with myeloma specialists.
Website: www.myelomacrowd.org
This organization offers tremendous support for our networking group and has a host of services available to cancer patients, including a licensed clinical oncology social worker, nurse navigator, dietitian and chaplain. For more information on their services, contact them at 423-495-7778.
This is a site where patients can exchange information with others, pose questions and just monitor the latest news.
For more information, visit
There are also a number of Facebook pages for myeloma patients and caregivers.
About Us:
Our group has been supporting local patients since 1995. Linda & Jack Huguelet began attending the group shortly after Linda's diagnosis in April 2010 and found it very informative as they began their myeloma journey. They have been leading the group since 2011, a few months after Linda's stem cell transplant.
The goal of our group is to keep patients and caregivers informed and connected. Our monthly meetings provide an educational presentation or speaker and time to connect with other patients and caregivers.
Contact us if you would like to receive our newsletter that includes our meeting topic and the latest myeloma information. Our members are more than happy to share their treatment and transplant experiences to help you through this journey.
We can also meet with you individually. We’ve all been there and know how overwhelming a myeloma diagnosis can be. The advances in myeloma treatment have been tremendous in the last decade and there are lots of options to consider. We are here to help you and your family!
