For more information, please contact
Stephanie McCrae 330-933-0709
E-mail: [email protected]
Our group meets on the 4th Monday of each month from 6:30 PM to 8:30 PM EST
At our meetings, patients, caregivers and friends share their knowledge and experiences on treatments, coping with side effects, medical insurance, participation in clinical trials, new scientific and clinical research and provide mutual support and encouragement.
We also invite experts to join us and share their knowledge. Call, email or mail to get on our email/phone list so you can receive the meeting announcements. You can also view the details of our next support group meeting, get driving directions, etc. here on our web site.
Upcoming events
IMF Events
Oct 12
Living Well With Myeloma: Can Nutrition Improve Quality of Life and Outcomes in Myeloma?
October 12, 2023 4:00 pm PST
Support Group Events
Archive
If you would like to view our past speakers or topics, please view our achieves by clicking on the year.
2023
| January | Virtual Speaker: Beth Faiman, PhD, CNP |
| February | Myeloma Action Month Speaker: Robin Tuohy, IMF |
| March | Speaker: Jim Bond, Multiple Myeloma 30 year survivor, and his wife Kathleen |
| April | Speaker: Robin Tuohy, Vice President, Support Groups, IMF |
| May | Speaker: Barb Nye, BSN, BS, RN, OCN |
| June | |
| July | |
| August | |
| September | |
| October | |
| November | Topic: Understanding Lab Values |
| December |
2022
| January | Topic: Survivorship: Optimizing your Wellness |
| February | Myeloma Action Month Speaker: Robin Tuohy, IMF |
| March | Speaker: Jim Bond, Multiple Myeloma 30 year survivor, and his wife Kathleen |
| April | Topic: Resource Navigator |
| May | Topic: Car T Cellular Therapy |
| June | Risk Status in Multiple Myeloma |
| July | Topic: Taking your Oral Medication for Cancer |
| August | Open Discussion |
| September | Open Discussion |
| October | Multiple Myeloma Journey Partners |
| November | Topic: Infection Risk |
| December | Open Discussion |
2021
| January | Jim Bond, 28 year Myeloma Patient |
| February | Open Discussion |
| March | Speaker: Brian McMahon |
| April | Living with Multiple Myeloma with Kim Gibbs |
| May | Open Discussion |
| June | Topic: Understanding Lab Values |
| July | Overview of CAR-T Treatments |
| August | Speaker: Dr. Jason Valent, Myeloma Specialist |
| September | Open Discussion |
| October | Speaker: Aigars Brants, PhD |
| November | Topic: Infection Risk |
| December | Open Discussion |
2020
| January | Gary Stock, Clinical Pharmacist - treatments and myeloma from a pharmacist perspective |
| February | Open Discussion |
| March | Open Discussion |
| April | Virtual Speaker: Beth Faiman, PhD, RN |
| May | Kristen Keagle, BSN, RN, OCN from Janssen Oncology - Darzalex/Daratumumab. |
| June | Rebecca Hamilton, Director Light the Night along with special guests to share a school project with interviews of patients |
| July | Speaker: Anthony Billinger, M.S., Diagnostic Account Manager - MRD Testing & clonoSEQ |
| August | Bobbie Martucci, Volunteer and Family Services Coordinator - Stewart's Caring Place |
| September | Nurse Educator, Celgene: Understanding your Lab and Test Results |
| October | Speaker: Robin and Michael Tuohy, IMF |
| November | Speaker: Leah Wolfe, RPH, BCOP, MTM, BScPharm, a Pharmaceutical Consultant |
| December | Virtual Holiday Party! |
2019
| January | Speaker: Leah Wolfe, RPH, BCOP, MTM, BScPharm - Myeloma from a Pharmaceutical perspective |
| February | Open Discussion |
| March | Myeloma Action Month |
| April | Speaker: Megan Sell, RN, MS, CNP - Multiple Myeloma Labs and Tests |
| May | Speaker: John Killip, MM Journey Partners - Patient Advocate |
| June | Speaker - Kristen Keagle, RN, BSN, OCN, Oncology Nurse from Janssen Oncology - Myeloma and Self Care |
| July | Speaker: Leah Wolfe, PRH, BCOP, MTM, PScPharm and her team from Northern Ohio Academy of Pharmacy - Myeloma from a pharmaceutical perspective |
| August | Open Discussion |
| September | Speaker: Dr. Michael Dugan, MD along with a patient on the current regimen - Pomalyst with Dex - Celgene |
| October | Speaker: Dr. Shruti Trehan, Local oncologist - Myeloma Team |
| November | Open Discussion |
| December | Annual Gathering |
2018
| January | Speaker: Matthew Teague, Pharmacist - Ask a Pharmacist |
| February | Open Discussion |
| March | Myeloma Action Month |
| April | Speaker: Dr. Nashat Gabrail - Gabrail Cancer Center - Multiple Myeloma |
| May | Speaker: Amy Davidson, RN, BSN, OCN - Takeda Oncology - Cancer Survivorship - Optimizing your wellness |
| June | Speaker: Dick A., Myeloma Survivor & Amy Davidson, RN, BSN, OCN - Patient Ambassador (Takeda Oncology) |
| July | Speaker: Frank Kuhr & Katrina Gekas, Adaptive Biotechnologies - Hot topics from ASCO (American Society of Clinical Oncology) -Disease assessment and MRD as a diagnostic tool -MRD as a correlate for PFS and OS -High level introduction to the clonoSEQ assay -Clinical data using MRD testing |
| August | Jason Valent, MD - Cleveland Clinic - Hear from a Myeloma Specialist |
| September | Open Discussion |
| October | Speaker: Robin and Michael Tuohy, Myeloma Survivor - International Myeloma Foundation (IMF) & 18 year Myeloma Journey |
| November | Speaker: John Killip, Retired Dentist - MM Journey Partners - Patient Advocate |
| December | Annual Gathering |
2017
| January | Speaker: Rebecca Hamilton - he Leukemia & Lymphoma Society, Financial Support |
| February | Speaker: Speaker: Jim Bond, 24 year Myeloma Survivor-Patient Ambassador (Takeda Oncology) |
| March | Speaker: Amy Davidson, RN, OCN - Takeda Oncology - Understanding Diagnostic Testing |
| April | Speaker: Stephanie Davis-Dieringer, M.S.Ed - Stewart's Caring Place: Cancer Wellness Center |
| May | Open Discussion |
| June | Speaker: Amy Davidson RN, OCN - Takeda Oncology - Oral Adherence |
| July | John Killip, Retired Dentist - MM Journey Partners - Patient Advocate |
| August | Speaker: Beth Faiman, PhD, MSN, CNP, AOCN - Be Your Own Advocate, Caregiving |
| September | Speaker: Anne Marie VanBuskirk, PhD, MBA - Takeda Oncology - Understanding Clinical Trials |
| October | Speaker: Sue Enright - Midwest Regional Director, Support Groups, IMF - International Myeloma Foundation (IMF) |
| November | Speaker: Ima Garcia, RN, MSN, ACNP-BC, AOCNP - Bristol Myers Squibb - Empliciti |
| December | Annual Gathering |
2016
| June | First Meeting! |
| July | Open Discussion |
| August | Speaker: Dr. Nashat Gabrail from Gabrail Cancer Center - Wellness |
| September | Speaker: Cara Rhodes RN, BSN - Celgene Corporation - Myeloma Central: A Virtual Tour |
| October | Speaker: Sue Enright - Midwest Regional Director, Support Groups, IMF - International Myeloma Foundation (IMF) |
| November | Speaker: Ima Garcia, RN, MSN, ACNP-BC, AOCNP - Bristol Myers Squibb - Empliciti |
| December | Annual Gathering |
What Is Multiple Myeloma?
Multiple myeloma is a cancer of the bone marrow plasma cells. It is synonymous with "myeloma" and "plasma cell myeloma." Plasma cells make antibodies against infectious agents such as viruses and bacteria. A cancerous or malignant plasma cell is called a myeloma cell. Myeloma is called “multiple” because there are frequently multiple patches or areas in bone marrow where it grows.
