Shared Experiences Help To Better Understand the Myeloma Journey
Support groups empower patients and care partners with information, insight, and hope. The IMF provides educational guidance to a network of over 150 myeloma-specific groups. We are happy to connect you with other survivors and care partners, through an existing support group or by forming a new one.
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COVID-19 advisory: Each group determines how and when to continue to meet. Please use the search tool to view local support group details.
The Adirondack Multiple Myeloma Support Group, founded October 2017, meets on the 1st Friday of each month from 2:00 - 4:00 PM at Rocksport Indoor Climbing Center, located in the Community Room, 54 Carey Road, Queensbury, NY 12804. For more information, please contact Kelley McAfee at 518-260-2102 or Shannon Beckwith at the group email: [email protected]. Visit the group website at Adirondack.support.myeloma.org
Welcome to the Albany Multiple Myeloma Support Group. If you are living with Multiple Myeloma, you need not be alone. You'll find others whose experience can be a source of strength, hope, and inspiration. If you are a caregiver or caring friend, your needs will be addressed with programs sensitive to your particular needs. We invite you to join us and to benefit from a wealth of knowledge, comfort, friendship, and good times.
For more information, please visit http://albanyny.support.myeloma.org/ or contact Gail Young at 561-306-6858, Katie Pincher at 518-339-4675 or email: [email protected]. We meet on the first Thursday of each month from 12:30 to 2:30 P.M.
Meeting Location: YMCA Bethlehem, 900 Delaware Ave. Delmar, NY 12054
The Ann Arbor Myeloma Support Group, founded in 2007, meets on the 1st Tuesday of each month from 7:00 – 9:00 PM at St. Joseph’s Hospital, Specialty Centers Area, Women’s Health Center, Room WHC-1A, 5320 Elliott Drive, Ypsilanti, MI. Watch for bright yellow directional signs.
For more information, please contact Mary at 734-645-1713, Gerry Auth at 734-930-0339 or by E-mail at [email protected].
You can also visit their website at http://annarbor.support.myeloma.org.
The Annapolis Multiple Myeloma Support Group, founded in July 2016, meets on the 2nd Thursday of each month from 10:00 – 11:30 AM at Wellness House of Annapolis, 2625 Mas Que Farm Rd., Annapolis, MD 21403.
Please contact Sally A. Sellman, LCPC, NCC, HTCP at 410-990-0941 or email at [email protected]
For more information about the Wellness House, please visit us at: www.annapoliswellnesshouse.org or call us at 410-990-0941
The IMF can help you start one. Contact IMF Vice President of Support Groups Robin Tuohy at [email protected] or 203-206-3536.
Robin Tuohy worked as a paralegal for over 10 years at a Fortune 500 company before marrying Michael, who was diagnosed with multiple myeloma in 2000, and having children Ally and Mikey. She became involved with the IMF and attended Advocacy Days in Washington, DC, in 2001, and then began the first support group for multiple myeloma patients in Connecticut with the help of the IMF. She feels her experience as Michael's caregiver gives her a unique perspective on multiple myeloma. The Tuohy family carried their message of life after diagnosis across the country in 2007 on the Myeloma Mobile. Robin's motto is "The purpose of life is a life of purpose," and she hopes that she is able to help others dealing with multiple myeloma.
Kelly Cox spearheads IMF’s Regional Community Workshops, events that bring the most cutting-edge research and top multiple myeloma doctors to patients, caregivers, and healthcare workers across the country. Kelly also works closely with 40 support groups nationwide, carrying the IMF’s mission directly to those affected by multple myeloma. Kelly brings enthusiasm and energy to multiple myeloma awareness and outreach wherever he travels for personal visits, as well as via phone calls and emails.
Kelly worked for Warner Bros. International Television for three years prior to arriving at the IMF. He specialized in marketing, product management, and international placement for shows such as “Friends,” “E.R.” and “Smallville,” among others. Prior to this Kelly was involved with fundraising for specialized research into diseases of the retina, including macular degeneration and retinitis pigmentosa.
Nancy Bruno has been active in Support Groups since shortly after her husband Mike was diagnosed with mulitple myeloma in late 1998. What began as comprehensive note-taking during support group meetings led to her becoming a writer for the group’s newsletter. When Andy Lebkuecher’s wife, Cathy, died in December 2006, Andy asked Nancy to lead their local Atlanta group temporarily, "and I haven’t stopped." Her energy and commitment will continue as Regional Director of Support Groups.
Jon Fitzpatrick worked with the IMF for several years as a volunteer before joining our team as the Support Group Coordinator. He is excited to turn his passion for helping others into a career. Jon’s interest in working closely with multiple myeloma patients and caregivers was sparked as a result of his experience in the field of emergency response.
Kelley Sidorowicz joined the IMF’s Support Group team in 2019 after previously being part of the Advocacy team since 2016, working on federal and state policy issues as well as helping the IMF to grow our grassroots network. Previously, she worked in the health and wellness community as a certified health and wellness educator, personal trainer, and yoga instructor. Kelley holds a Bachelor of Science degree in Exercise Physiology from Frostburg State University. She resides in Southern Maryland.
Support groups bring together myeloma patients, caregivers, family members & friends. Patients involved in a support group experience more positive outcomes due to their understanding of treatment options and enables them to have key conversations with their healthcare team.
In the Mind, Body, and Wellness section of myeloma.org, you will find accessible and inclusive wellness resources for myeloma patients and caregivers. Here, members of the myeloma community find support and empowerment through education, community, and the practice of self-care.
The International Myeloma Foundation has joined forces with Atrium Health Levine Cancer Institute’s Disparities & Outreach program to empower people in the Charlotte, North Carolina area to help change the course of myeloma. M-Power Charlotte is dedicated to removing barriers to care and improving outcomes in the disease.
Smart Patients is an online community where patients and caregivers affected by complex illness learn from each other about treatments, challenges, and how it all fits into the context of their experience.
Two-day educational patient, family, and caregiver support in your hometown.
These one-day workshops offer families a condensed version of the full Patient & Family Seminar at no charge.
We have the most cutting-edge and up-to-date information about navigating the multiple myeloma world.