Myeloma Minute: Roadmap to Myeloma Prevention

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| INNOVATION | Latest Research

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Is It Possible To Prevent Cancers Such as Myeloma?

A recent study tantalized the myeloma community by showing that lenalidomide delayed the onset of active disease in patients with high-risk smoldering myeloma. But will scientists ever be able to prevent cancers such as myeloma? According to IMF Chairman Dr. Brian G.M. Durie, expanded research and the reduction of toxic chemical exposures are critical to getting us there.

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| ACTION | Advocacy Alert

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House Passes Bill to Fund 9/11 Victim Compensation Fund

On July 12, 2019, the U.S. House of Representatives passed H.R. 1327, a bill that will extend authorization for the September 11th Victim Compensation Fund (VCF) through 2092 and extend the time in which claims can be made. The VCF provides money for survivors and first responders to cover treatment and compensate victims for physical harm from the terror acts in New York, Pennsylvania, and the Pentagon on September 11, 2001.

Earlier this year, the Special Master overseeing the fund "determined that there is not sufficient funding to pay all pending and projected claims," and cut pending claims by 50% and new claims by 70%.

In 2014, the IMF Advocacy Team held a congressional briefing on environmental factors related to myeloma, which included exposure to dust and debris from 9/11. Click here for a summary of the event. We were joined by Patricia Workman, who is a myeloma patient and 9/11 survivor. Her story is here. Myeloma is the fourth most common cancer among 9/11 survivors and first responders.

The Bill now moves to the Senate for consideration. Ask your Senator to support H.R. 1327 at the link below.

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| EDUCATION | Seminar

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| EDUCATION | Seminar

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Register Now for the IMF Patient & Family Seminar in Charlotte, North Carolina

Register Now for the IMF Patient & Family Seminar in Los Angeles

On September 6-7, 2019, the IMF will host a Patient & Family Seminar at the Westin Charlotte (601 S. College St.) in Charlotte, NC. Choose between two registration packages—either attend Friday’s half-day session and the all-day session Saturday, or attend the Saturday session only. Connect with other patients and caregivers. Together, we can learn, build community, and share our stories.

On August 23-24, 2019, the IMF will host a Patient & Family Seminar at the Hilton in Universal City (555 Universal Hollywood Drive) in Los Angeles. Choose between two registration packages—either attend Friday’s half-day session and the all-day session Saturday, or attend the Saturday session only. Connect with other patients and caregivers. Together, we can learn, build community, and share our stories.

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| ACTION | Win a Vacation

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A 10-Day Luxury Hawaiian Oasis Is a Winning Raffle Ticket Away

The IMF is hosting a raffle for you to win a 10-day stay at the Villa Ono Oasis in Hawaii. The dates of this paradise vacation are March 16-26, 2020. The winners of this luxury package will receive:

  • A 10-day stay at the Villa Ono Oasis
  • Business-class Airfare for Two on American Airlines to Kailua-Kona, HI
  • A Dolphin Swim Adventure for Two
  • A Manta Ray Night Snorkel for Two
  • A Scuba Instruction Package for Two

Only 1000 raffle tickets will be sold @ $50 each: Tickets are selling fast. You can either visit the link below, or contact the IMF’s Karla Lemus at 1-800-452-CURE (2873) to purchase your ticket today. All proceeds will benefit International Myeloma Foundation Research and Programs.

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| INNOVATION | Research Grants

 

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Calling All Researchers: Submit Your Grant Applications

The Brian D. Novis Research Grants honor the IMF’s founder Brian Novis, who succumbed to multiple myeloma in July of 1992. The grants are awarded to researchers working in the field of multiple myeloma and related disorders, including smoldering multiple myeloma (SMM), monoclonal gammopathy of undetermined significance (MGUS), and immunoglobulin-derived amyloidosis. The 2020 grants will support senior research projects with $80,000 each and junior research projects with $50,000 each. The deadline for applications is Thursday, August 1, 2019.

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| #ASKDRDURIE | Dr. Durie's Weekly Web Video Series

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CLINICAL TRIALS

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August 2, 2019
Laughs for Life
Hattiesburg, MS

August 23-24, 2019
IMF Patient & Family Seminar
Los Angeles, CA

September 6, 2019
IMF Patient & Family Seminar
Charlotte, NC

September 7, 2019
Wine Tasting & Tour
Midlothian, VA


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