Myeloma Minute: Resilience in Action

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| INNOVATION | Latest Research

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Resilience Required to Overcome Life’s Challenges—and Find the Cure

From hand-delivering a critical data set halfway around the globe to climbing a tree to restore an internet connection, successful problem-solving is not for quitters. Events of the last week reminded IMF Chairman of the Board Brian G.M. Durie, MD that triumphs large and small demand persistence.

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| EDUCATION | Teleconference

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Register Now for a “Living Well with Myeloma” Teleconference on MGUS, Smoldering Myeloma, and Newly Diagnosed Multiple Myeloma

On Thursday, April 25, 2019 at 4:00 p.m. PST / 7:00 p.m. EST, Dr. Brian G.M. Durie, IMF Chairman of the Board, hosts a “Living Well with Myeloma” teleconference. The focus of the teleconference will be on early disease management, including criteria for diagnosis and best treatment options. Patients are increasingly diagnosed early, and the decisions for initial treatment must be appropriate. In some cases, observation is recommended. With new therapies, many options must be reviewed and considered for patients in each risk group. Each individual’s age and comorbidities should also be considered. Current best treatment guidelines will be presented.

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| EDUCATION | Workshop

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| EDUCATION | Workshop

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Register Now for a Regional Community Workshop in Detroit, MI
Register Now for a Regional Community Workshop in Birmingham, AL

The IMF will host a Regional Community Workshop at The Westin Book Cadillac Hotel (1114 Washington Blvd) in Detroit, MI, on Saturday, June 19, 2019. Registration is FREE, but seating is limited. Learn from and meet one-on-one with myeloma experts to get answers to your questions and concerns.

The IMF will host a Regional Community Workshop at The Westin (2221 Richard Arrington Jr Blvd N) in Birmingham, AL, on Saturday, May 4, 2019. Registration is FREE, but seating is limited. Learn from and meet one-on-one with myeloma experts to get answers to your questions and concerns.

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| ACTION | Advocacy

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Washington Examiner Publishes Op-Ed by the IMF’s Danielle Doheny

On April 20, 2019, an Op-Ed authored by Danielle Doheny, the IMF’s Director of Public Policy & Advocacy, was published in The Washington Examiner. Danielle wrote of her family’s experience with myeloma and focused on the importance of oral parity legislation. Oral parity legislation ensures insurers treat oral chemotherapy drugs similarly to IV therapies. Contact your Member of Congress and Senators about H.R. 1730 and S. 741.

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| EDUCATION | Nursing

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IMF Nurse Leadership Board’s Poster Presentation at the Oncology Nursing Society’s 44th Annual Congress Is Well Received

During the Oncology Nursing Society’s 44th Annual Congress, nurses shared their research and clinical experience for a poster session. Nurse Leadership Board member Dr. Beth Faiman presented the poster, “Measurement of the Impact of a 2018 Case-Study Based Myeloma Symposium on Nursing Behavior.” Members of the NLB Joseph Tariman, Kevin Brigle, and Patricia Mangan joined Beth Faiman in authoring this research. The impetus for this research was a direct result of last year’s symposium at the ONS Congress. The International Myeloma Foundation’s Nurse Leadership Board sought to evaluate the ability of case-study based education to affect change in nursing behavior. Nurses who attended last year’s symposium reported both:

  • a high likelihood to implement their learnings
  • an increased awareness of their influence on myeloma patient outcomes.

These results support the value of symposia-style, case-based education for oncology nurses.

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| INNOVATION | Research Grants

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Calling All Researchers: Submit Your Grant Applications

The Brian D. Novis Research Grants honor the IMF’s founder Brian Novis, who succumbed to multiple myeloma in July of 1992. The grants are awarded to researchers working in the field of multiple myeloma and related disorders, including smoldering multiple myeloma (SMM), monoclonal gammopathy of undetermined significance (MGUS), and immunoglobulin-derived amyloidosis. The 2020 grants will support senior research projects with $80,000 each and junior research projects with $50,000 each. The deadline for applications is Thursday, August 1, 2019.

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| #ASKDRDURIE | Dr. Durie's Weekly Web Video Series

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CLINICAL TRIALS
EVENTS

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Join the conversation about myeloma on the Smart Patients Message Board

April 27, 2019
2019 Miles for Myeloma 5K Run/Walk
Philadelphia, PA

April 30, 2019
Coast 2 Coast for Myeloma
Santa Monica, CA to Provincetown, MA

May 4, 2019
Flying Pig Marathon
Cincinnati, OH

May 4, 2019
Regional Community Workshop
Birmingham, AL

May 11, 2019
Regional Community Workshop
Edina, MN

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