Myeloma Minute: The Need for Global Collaboration in Science

Repercussions of Policy on the Search for a Cure

In this week’s video, Dr. Brian Durie answers the question, “How will the recent Executive Orders impact the search for the cure?” Dr. Durie explains how scientists must be free to travel to exchange ideas and conduct research. He discusses the tenets of longstanding scientific processes. 

Watch CNN Interview Highlighting IMF-Funded Myeloma Research Project in Iceland - Online Now

In the latest episode of “Vital Signs,” CNN Chief Medical Correspondent Dr. Sanjay Gupta travels to Iceland, where he interviews International Myeloma Foundation Chairman Dr. Brian Durie and Principal Investigator Dr. Sigurdur Kristinsson about the Black Swan Research Initiative® iStopMM project. Watch the footage from CNN International HERE.


Register NOW for a FREE Webinar Addressing Concerns on the Lack of Funds for Co-Pay Assistance

Recently, the International Myeloma Foundation’s InfoLine has been flooded with calls from patients and caregivers facing insurmountable financial challenges due to the high cost of drugs and increases in insurance copays. In the past, several services have been available to provide financial assistance to patients; but the current atmosphere has severely limited the availability of those funds. In fact, currently there are NO funds available for co-pay assistance, and the expected funding that will soon be available will likely dry up very quickly. On Thursday, March 30th, 2017 at 4pm Pacific / 7pm Eastern, the IMF will host a FREE webinar open to cancer patients and caregivers to address these issues. This forum is for you to share your stories, and for all of us, to explore possible solutions to these hurdles to co-pay assistance. Register for this webinar HERE.


Myeloma Patients Around the World Declare March 30th as International Myeloma Action Day

The Global Myeloma Action Network (GMAN), a group of patient organizations in five continents, has declared Thursday, March 30th as International Myeloma Action Day to raise awareness of the disease. Declaring the last Thursday of March – which is Multiple Myeloma Awareness Month – as International Myeloma Action Day, GMAN is launching its first “MAM goes MAD” campaign. The IMF asks that myeloma patients and advocates join them on March 30th to tell their stories on social media platforms (including Twitter with hashtag #GMANmad17). Patients also will send letters to both their doctors advocating for early detection, and to policy makers in their local areas to support access to new drug therapies. Learn more HERE.



Storytelling as a Pathway to Hope

In recognition of Myeloma Action Month, listen to multiple myeloma patient and patient advocate Michael Tuohy and his wife, Robin Tuohy, IMF Director of Support Groups, in this story recorded and produced by StoryCorps. As part of Blood Counts (TM), a national campaign dedicated to raising awareness of multiple myeloma, these recordings use storytelling to provide hope. Michael and Robin share their journey--from having never heard of myeloma 17 years ago when Michael was first diagnosed to becoming powerful advocates today. Robin closes the interview by saying to Michael, “We’re actually seeing the future we were so afraid of. We’re growing older together, the kids are seeing you, and learning from you… All the things that make life beautiful.” Listen HERE and share through your social media channels.


Oppose Presidential Budget Cuts That May Impact Cancer Research

Many aspects of the president’s budget proposal may impact cancer research. The most concerning cuts would occur within the National Institutes of Health (NIH), which would cut approximately 20% — or $6 billion — of their current budget. These cuts would completely negate the benefits from last year's 21st Century Cures Act. However, you have some power to halt measures like these. The above figure is simply the president’s proposed dollar amount for this agency. Congress ultimately has the final say on these numbers, which is why your voice matters. Join our Advocacy team in fighting these cuts HERE. Once you click on the link, you will be directed to an online form that allows you to express your opposition to these cuts.



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