Myeloma Minute: Myeloma Patient Stories and Education

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| INSPIRATION | Finding Hope

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Get the Most Joy Out of Each Day

Yolande Paine draws strength from being a Myeloma Warrior. At the Brian D. Novis Research Grant Awards reception, a night filled with hope held annually during the American Society of Hematology meeting, Yolande movingly described her experiences with the disease and the ways in which the IMF has supported her along the way. In this speech, she says, “But we Warriors stick together, and we share our optimism about what lies ahead.” Read more to learn how Yolande is an inspiration for us all.

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| INSPIRATION | Take Action

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Finish Strong This Myeloma Action Month!

If you haven’t had a chance to take action this March for Myeloma Action Month, there is still time. We encourage you to choose one of the many initiatives at mam.myeloma.org to build myeloma awareness. Some examples include:

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| EDUCATION | Seminar

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| EDUCATION | Publications

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Register Now for the IMF’s Patient & Family Seminar in Short Hills, NJ
Updated IMF Publications Now Available

The IMF Patient & Family Seminar in Short Hills, New Jersey, takes place April 5 - 6, 2019, at the Hilton Short Hills (41 JFK Parkway). During this seminar, learn about the latest treatments for and the management of multiple myeloma. The IMF Patient & Family Seminars are a wonderful opportunity to exchange valuable information, visit with friends, and share true-life experiences.

The 2019 edition of the IMF’s publication Understanding Darzalex® (daratumumab) injection is now available. Updated information includes the recent FDA approval of the split-dosing regimen for patients with myeloma. Other IMF publications updated for 2019 include Understanding Velcade (bortezomib) Injection, and Understanding MGUS and Smoldering Myeloma.

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| EDUCATION | Teleconference

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Register Now for the Next “Living Well with Myeloma” Teleconference

On Thursday, April 25, 2019 at 4:00 p.m. PST / 7:00 p.m. EST, Dr. Brian G.M. Durie, IMF Chairman of the Board, hosts a “Living Well with Myeloma” teleconference. The focus of the teleconference will be on early disease management, including criteria for diagnosis and best treatment options. Patients are increasingly diagnosed early and must be certain if decisive first therapy is appropriate or if observation is recommended. With the introduction of new therapies, many options are to be reviewed and considered for patients in each risk group and with assessment for age and comorbidities. Current best treatment guidelines will be presented.

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| ACTION | Advocacy

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Become a Consumer Reviewer As Part of a Department of Defense-Funded Program

We are seeking volunteers to help advance myeloma research! The Advocacy Team lobbied Congress to include blood cancers as a topic area in the DoD’s FY19 Congressionally Directed Medical Research Program (CDMRP). Now, myeloma researchers can apply for research funding grants through the program. The IMF can nominate myeloma patients and caregivers to apply. These patients and caregivers will act as consumer reviewers for the program.

Consumer reviewers are the voice of all myeloma patients. They help select which research proposals end up with funding. Consumer reviewers must:

  • be available for some travel mid-November 2019, and
  • prepare online for 4-5 weeks before traveling to the D.C. metro area.

The DoD will pay consumer reviewers a small stipend and will cover travel expenses. Don't miss this exceptional opportunity to get involved!

To learn more about this program, please email rwezik@myeloma.org. You must complete your application before April 10, 2019.

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| ACTION | Ways to Give

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You Shop. Amazon Gives.

When you shop at smile.amazon.com and choose the International Myeloma Foundation as your preferred charity, Amazon donates 0.5% of all your purchases to the IMF, at no added cost to you! What are you waiting for? Purchase your household necessities (like paper towels) and anything else that you have on your list!

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| #ASKDRDURIE | Dr. Durie's Weekly Web Video Series

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CLINICAL TRIALS
EVENTS

Search the Myeloma Matrix 2.0

Join the conversation about myeloma on the Smart Patients Message Board

April 5-6, 2019
IMF Patient & Family Seminar
Short Hills, NJ

April 6, 2019
Regional Community Workshop
Seattle, WA

April 27, 2019
2019 Miles for Myeloma 5K Run/Walk
Philadelphia, PA

May 4, 2019
Flying Pig Marathon
Cincinnati, OH

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We Thank Our Sponsors:
Amgen, Celgene Corporation, Genentech, Sanofi-Genzyme, and Takeda Oncology
and individuals like you who supported the IMF this year

Give Where Most Needed

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