Myeloma Minute: Myeloma Education & Fundraising


| EDUCATION | Seminar


Register NOW for This IMF Patient & Family Seminar in Los Angeles

On August 24-25, 2018, the IMF will host a Patient & Family Seminar at the Hilton in Universal City (555 Universal Hollywood Drive) in Los Angeles. Choose between two registration packages—either attend for a half-day on Friday, or attend both Friday’s session and another whole-day event on Saturday. This seminar will cover the latest myeloma treatments, information about stem cell transplant, managing bone disease, and other myeloma-related topics. We welcome you to meet other patients and family members who have perhaps gone through what you’re going through now. Together, we can learn, build community, and share our stories.


| INSPIRATION | Fundraising


| EDUCATION | Oncology Nursing


Easy Ways to FUNdraise
Watch This Oncology Nursing Video

At the IMF, we work with people like you to create and produce fundraisers that benefit myeloma research, support, education, and advocacy. Watch this entertaining video to learn about ways you can fundraise. The goal is to do something you enjoy, while the IMF helps you stay on the fundraising path.

This video is the first in a three-part series on myeloma nursing. It was recorded at the IMF Satellite Symposium at the Oncology Nursing Society’s annual meeting in May of this year. In this segment, Beth Faiman, PhD, RN, MSN, APRN-BC, AOCN (Taussig Cancer Insitute, Cleveland Clinic, Cleveland, OH) and Joseph Tariman, PhD, RN, ANP-BC, FAAN (DePaul University, Chicago, IL) discuss the background of multiple myeloma, the value of shared decision-making, and updates on smoldering multiple myeloma. More segments from this exciting ONS 2018 symposium are available as well!



| ADVOCACY | Legislation


Palliative Care Bill Advances to Senate

The House passed H. R. 1676, the Palliative Care and Hospice Education and Training Act (PCHETA) on July 7, 2018. If signed into law, the bill will increase funding for palliative care research programs and provide better training to health professionals in this field. Palliative care focuses on providing patients with serious illnesses relief for their symptoms with the goal of improving their quality of life.

Robin Levy, the International Myeloma Foundation’s Senior Director of Public Policy and Advocacy, said “The International Myeloma Foundation Advocacy Team is optimistic about the House passage of the Palliative Care and Hospice Education and Training Act. We believe the increased funding and resources toward palliative care programs could help medical professionals provide patients with better care and improve the overall patient experience. We are pleased to see PCHETA advance out of the House and urge the Senate to act as well.”

This bill was introduced by Rep. Eliot Engel (D-NY), Rep. Tom Reed (R-NY), and Rep. Buddy Carter (R-GA). The bill now moves to the Senate where it already has strong support being led by Sen. Tammy Baldwin (D-WI) and Sen. Shelley Moore Capito (R-WV).

Click the link below to urge your Senators to support PCHETA.


| #ASKDRDURIE | Dr. Durie's Weekly Web Video Series



BOSTON Trial Fact Sheet

New isatuximab Clinical Trial: the IMROZ Study

New isatuximab Clinical Trial: the IKEMA Study

New ixazomib Clinical Trials: Learn How to Participate

Join the conversation about myeloma on the Smart Patients Message Board

August 2, 2018

August 24-25, 2018
IMF Patient & Family Seminar
Los Angeles, CA

September 22, 2018
6th Annual Miracles for Myeloma 5K Race/Walk
Oak Ridge Park Clark, NJ

September 22, 2018
A Mission for Matt
Mineola, NY

September 22, 2018
IMF Regional Community Workshop
Overland Park, KS

October 12-13, 2018
IMF Patient & Family Seminar
Philadelphia, PA

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We Thank Our Sponsors:
Amgen, Celgene Corporation, Genentech, Janssen Oncology, and Takeda Oncology
and individuals like you who supported the IMF this year

Give Where Most Needed

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