Myeloma Minute: Myeloma Education & Fundraising
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| EDUCATION | Seminar
Register NOW for This IMF Patient & Family Seminar in Los AngelesOn August 24-25, 2018, the IMF will host a Patient & Family Seminar at the Hilton in Universal City (555 Universal Hollywood Drive) in Los Angeles. Choose between two registration packages—either attend for a half-day on Friday, or attend both Friday’s session and another whole-day event on Saturday. This seminar will cover the latest myeloma treatments, information about stem cell transplant, managing bone disease, and other myeloma-related topics. We welcome you to meet other patients and family members who have perhaps gone through what you’re going through now. Together, we can learn, build community, and share our stories.
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| INSPIRATION | Fundraising
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| EDUCATION | Oncology Nursing
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Easy Ways to FUNdraise |
Watch This Oncology Nursing Video |
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At the IMF, we work with people like you to create and produce fundraisers that benefit myeloma research, support, education, and advocacy. Watch this entertaining video to learn about ways you can fundraise. The goal is to do something you enjoy, while the IMF helps you stay on the fundraising path. |
This video is the first in a three-part series on myeloma nursing. It was recorded at the IMF Satellite Symposium at the Oncology Nursing Society’s annual meeting in May of this year. In this segment, Beth Faiman, PhD, RN, MSN, APRN-BC, AOCN (Taussig Cancer Insitute, Cleveland Clinic, Cleveland, OH) and Joseph Tariman, PhD, RN, ANP-BC, FAAN (DePaul University, Chicago, IL) discuss the background of multiple myeloma, the value of shared decision-making, and updates on smoldering multiple myeloma. More segments from this exciting ONS 2018 symposium are available as well! |
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| ADVOCACY | Legislation
Palliative Care Bill Advances to SenateThe House passed H. R. 1676, the Palliative Care and Hospice Education and Training Act (PCHETA) on July 7, 2018. If signed into law, the bill will increase funding for palliative care research programs and provide better training to health professionals in this field. Palliative care focuses on providing patients with serious illnesses relief for their symptoms with the goal of improving their quality of life. Robin Levy, the International Myeloma Foundation’s Senior Director of Public Policy and Advocacy, said “The International Myeloma Foundation Advocacy Team is optimistic about the House passage of the Palliative Care and Hospice Education and Training Act. We believe the increased funding and resources toward palliative care programs could help medical professionals provide patients with better care and improve the overall patient experience. We are pleased to see PCHETA advance out of the House and urge the Senate to act as well.” This bill was introduced by Rep. Eliot Engel (D-NY), Rep. Tom Reed (R-NY), and Rep. Buddy Carter (R-GA). The bill now moves to the Senate where it already has strong support being led by Sen. Tammy Baldwin (D-WI) and Sen. Shelley Moore Capito (R-WV). Click the link below to urge your Senators to support PCHETA.
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| #ASKDRDURIE | Dr. Durie's Weekly Web Video Series
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CLINICAL TRIALS |
EVENTS |
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New isatuximab Clinical Trial: the IMROZ Study New isatuximab Clinical Trial: the IKEMA Study New ixazomib Clinical Trials: Learn How to Participate Join the conversation about myeloma on the Smart Patients Message Board |
August 2, 2018 August 24-25, 2018 September 22, 2018 September 22, 2018 September 22, 2018 October 12-13, 2018 |
Amgen, Celgene Corporation, Genentech, Janssen Oncology, and Takeda Oncology
and individuals like you who supported the IMF this year