Myeloma Minute July 9, 2015

This week's question: Should you have a stem cell transplant even after a partial response to treatment?

Multiple Myeloma Bone Study
 

New Ixazomib Clinical Trials: Learn How to Participate

Join the conversation about myeloma on the Smart Patients Message Board

Upcoming Events

Saturday, July 19, 2015
The Red House Carnival
Somerville, Massachusetts

Friday, July 24, 2015
Chek Fest Golf Outing
Allendale, Michigan

August 21-22, 2015
IMF Patient & Family Seminar
Los Angeles, California

Saturday, October 10, 2015
9th Annual Comedy Celebration
Los Angeles, California

Watch the IMF Mambo for Myeloma & Support This Challenge

Having myeloma is undeniably expensive. But will new systems of evaluating the cost and efficacy of treatment end up harming myeloma patients by mandating suboptimal care and eliminating access to needed drugs? In his blog this week, IMF Chairman Brian Durie examines these questions. “Individual patient value must be considered,” he writes. “But how do we do that?” Click HERE to read Dr. Durie’s blog.

Dr. Ola Landgren announced the opening of a new Phase I/II clinical trial at Memorial Sloan-Kettering Cancer Center for patients with relapsed and/or refractory myeloma. The trial will test a new proteasome inhibitor called VLX1570, which is given intravenously. VLX1570 was developed by researchers at Sweden’s Karolinska Institute. Memorial Sloan-Kettering has some funds available to help patients who demonstrate financial need with transportation and hotel costs. Click HERE to see the full trial listing. Please call the IMF InfoLine at (800) 452-2873 with any further questions.

The May 21 edition of the Myeloma Minute featured a story on Slava Rubin and Alana Shultz, who were forgoing a traditional wedding registry in favor of a crowdfunding campaign to raise money for the IMF and myeloma research. Slava's father passed away from multiple myeloma when Slava was only 15. As a way to remember his father, Slava and Alana decided to use the tradition of a wedding registry as an opportunity to raise awareness and funding for myeloma research. The newlyweds shared the result of their registry—more than $8,000 raised! You can see their campaign HERE. Congratulations and best wishes, Alana and Slava!