Myeloma Minute: Improving Myeloma Patient Outcomes Globally


How Research in Iceland Will Help Myeloma Patients Everywhere

As myeloma researchers at the University of Iceland prepare to launch the exciting iStopMM project, IMF Chairman Dr. Brian Durie examines the benefits this Black Swan Research Initiative® project will generate for the rest of the world: learning, screening, and treating to achieve the best outcomes for myeloma patients everywhere. To read Dr. Durie’s blog, click HERE.


Tune in to the FREE "Living Well with Myeloma" Teleconference on CAR T-Cell Therapy

The next “Living Well with Myeloma” teleconference will focus on CAR T-Cell Therapy: What Myeloma Patients & Caregivers Need to Know. It takes place on Thursday, September 22, 2016 at 7 PM ET / 4 PM PT. Speakers are Dr. Rafat Abonour (Indiana University – Simon Cancer Center) and Dr. Edward Stadtmauer (University of Pennsylvania). CAR T cells, or chimeric antigen receptor T cells, are part of a class of cancer therapies known as immunotherapies. With CAR T-cell therapy, a patient’s T cells are harvested and genetically reengineered to become better able to recognize and attack myeloma. The altered T cells are then reinfused into the body with the hope of fighting the disease. To learn about this exciting new therapy, register for free HERE. Pre-registration is highly recommended. Click HERE for replay.


IMF Holds Patient & Family Seminars in Sweden and Finland

The IMF held a Patient and Family Seminar in Stockholm, Sweden on August 27, 2016 in conjunction with the Swedish Blood Cancer Association. Nearly 200 patients, their families, and medical professionals gathered to listen to leading myeloma experts, including keynote speaker Dr. Hareth Nahi of the Karolinska Institutet. As a result of this seminar, another Patient & Family seminar will be planned in the Spring of 2017 in collaboration with BlodCancerFörbundet. Also in Scandinavia, Nadia Elkebir, the IMF’s Director of Europe & the Middle East, met with Minna Anttonen, the Executive Director of Suomen Syöpäpopilaat ry—the Finnish Blood Cancer Association. As a result of their discussion, the IMF and Suomen Syöpäpopilaat rywill collaborate for first Finnish Patient & Family Seminar in the country’s central location of Tampere.

Help the 4th Annual Myeloma Race/Walk Team Reach Their Goal!

Two families are joining together with the IMF with the hope of raising $100,000 for myeloma research. Sheree Pask, who has been living with myeloma since 2007, and her husband Ron spearheaded a 5K Race/Walk at Oak Ridge Park in Clark, New Jersey. They are teaming up with Gina Guarino, who lost her brother Frank to multiple myeloma in 2012. Because Frank Guarino was an avid runner, Gina has been working with a 5K committee to make the 4th Annual Miracles for Myeloma an even greater success. The race kicks off at 9:30 a.m. on September 24, 2016. Registration cut-off is at 12:00 a.m. that day. To register, contact Ron Pask at (732) 574-9182 or email [email protected]. As Ron Pask notes, “You don’t have to be a runner to participate. You can show your support for this incurable disease by simply making a donation for the cause. You can also donate to have a balloon and placard displayed along the Remembrance Path to honor loved ones who have passed of MM.” To learn more, click HERE.


We Would Like to Thank Our Sponsors: Takeda Oncology, Celgene, Amgen, and Bristol-Myers Squibb

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