Myeloma Minute: Iceland in the Spotlight

iStopMM Principal Investigators in Iceland

IMF President and Co-Founder Susie Novis Durie and the IMF Chairman of the Board Dr. Brian G.M. Durie are in Reykjavik, Iceland this week to work alongside the iStopMM research team. While there, Dr. Durie presented a lecture on “Advances in Myeloma Treatment: The Black Swan Approach.” The lecture took place at the deCode Genetics auditorium, where Dr. Durie was introduced by iStopMM Principal Investigator Dr. Sigurdur Kristinsson of the University of Iceland. iStopMM stands for Iceland Screens, Treats, OPrevents Multiple Myeloma. As part of the study, 140,000 Icelanders over the age of 40 will have their blood samples tested for the precursor to multiple myeloma, or MGUS (monoclonal gammopathy of undetermined significance). If they test positive for MGUS, they are given the option to take part in a randomized clinical trial to treat or prevent the progression of myeloma. Dr. Kristinsson explains the four aims of this groundbreaking study in this video.

Myeloma Action Month Kicks Off on March 1st - Here's How You Can Take Action Now!

March is Myeloma Action Month, and during this time, the International Myeloma Foundation will reach out to primary care doctors, lawmakers, and patients to raise awareness of the disease. Visit the Myeloma Action Month website to learn about all the ways you can get involved. This site includes a letter to send to health care practitioners, a customizable press release for your local news outlets, stories from myeloma patients, and opportunities for you to share your story as well. Once you take action, tweet how you participated with the hashtag #IMFmam.


Donate a Photo to the IMF and Raise Money for Myeloma Research

The International Myeloma Foundation and Janssen are partnering for the Donate a Photo initiative. You simply donate photos from your phone to the IMF, and Janssen then donates funds to support myeloma research. It takes fewer than 5 minutes to download the app and create an account. Here’s how to sign up: 

1) If you have an iPhone, download the free app from HERE, and if you have an Android, download the app from HERE

2) Once you install the app on your phone, choose the International Myeloma Foundation as the cause you want to support. 

3) Upload a picture (either from your camera roll or take one on the spot). 

4) Share your photo to the Donate a Photo gallery. You can even share to Facebook, Twitter, and Instagram to help spread the word and get your friends, children, and grandchildren to donate. 

Optional Step 5) When you share to social media or caption your photos, use the hashtag #IMFmam! Take part and start snapping photos today!


Miles for Myeloma 5K Race/Walk in Philadelphia - April 22, 2017

The 2017 Miles for Myeloma 5K Run/Walk is a regional, family-friendly 5K Run/Walk presented by the Philadelphia Multiple Myeloma Networking Group. The race starts at 8:30 a.m. ET on Saturday, April 22nd. The USA Track & Field/RRTC Certified 5K course boasts beautiful views of the historic Please Touch Museum (43 South Concourse Drive) and the Horticultural Center’s Japanese Gardens along with accessible and free parking! Proceeds from the event will benefit the most promising research initiatives as well as patient support programs of the International Myeloma Foundation. Please join more than1,100 participants by registeringdonating, or purchasing a tribute path sign today!  For more information about the Philadelphia Multiple Myeloma Networking Group, visit



We Would Like to Thank Our Sponsors: Takeda Oncology, Celgene, Amgen, and Bristol-Myers Squibb


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