Myeloma Minute: High-Risk Myeloma Definition Updated


IMF's International Myeloma Working Group Publishes New Consensus Update

On June 20, 2016, the journal Blood published “Treatment of multiple myeloma with high-risk cytogenetics: a consensus of the International Myeloma Working Group.” This consensus updates the definition for high-risk (HR) multiple myeloma based on cytogenetics, which is a branch of genetics that analyzes the structure and function of genetic material on chromosomes. The paper states “risk stratification in MM is important to predict survival and to define a treatment strategy.” Furthermore, it concludes that cytogenetic abnormalities detected by FISH (fluorescence in situ hybridization) testing are “clinically relevant prognostic factors in MM.” To access the report, click HERE.


IMF Educates on Dangers of Limiting Access to Myeloma Treatment Options

Robin Tuohy, IMF Senior Director of Support Groups, and her husband Michael Tuohy, a 16-year myeloma survivor and active patient advocate, appeared at a congressional briefing in Washington DC this week. They shared the perspective of patients and caregivers on the myeloma treatment guidelines that were recently proposed by the Institute for Clinical and Economic Review (ICER). The briefing was organized by the Partnership to Improve Patient Care (PIPC). Robin spoke of her family’s journey in coping with Michael’s illness. She also addressed how the proposals recommended in the ICER Report to the Center for Medicare and Medicaid Services Part B Demonstration Project could negatively impact patients. A full transcript of Robin’s remarks is HERE. To alert others to the dangers of limiting patients’ access to myeloma treatment options, click HERE to send an email to the Advocacy Team’s Action Center.


Celebrated Sketch Comedian Frank Caliendo Headlines "Laughs 4 Life"

Hilarious sketch comedian Frank Caliendo, who has appeared on “MadTV,” “Fox NFL Sunday,” “The Tonight Show,” TBS’s “Frank TV,” and more, will headline “Laughs 4 Life.” The brainchild of the event is Kent Oliver, who was diagnosed with multiple myeloma at the age of 34. His goal is to raise $100,000 for cancer research and patient navigation services. “Laughs 4 Life” will take place on July 28, 2016 at 7:30 PM ET at the historic Saenger Theater in Hattiesburg, Mississippi. Through the support of generous sponsors, all ticket and event sales will go to beneficiaries, including the International Myeloma Foundation. To buy tickets or to become a sponsor, click HERE. To donate, click HERE.


Gear Up for Summer in the City at the IMF's Inaugural Community Picnic Day

Angelenos know the place to experience nature and relaxation in LA is at Griffith Park. The IMF invites you to join us on Sunday, August 21th at our inaugural Community Picnic Day! The IMF invites you to get a breath of fresh air at our inaugural Community Picnic Day in the Pettigrew area of Griffith Park on Sunday, August 21st. Open to all ages, the event features healthy cooking demonstrations, Tai Chi sessions, yoga sessions, art therapy, and a 1K Sprint run just for kids. You may purchase admission tickets at discounted prices now. All proceeds go to support myeloma research. Find out more HERE.

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