Myeloma Minute: In the Future, Could Scientists Nip Myeloma in the Bud?

Could a Gene-Editing Breakthrough Enable Scientists to Halt Myeloma in Its Tracks?

News this week of a scientific breakthrough in genetic editing has huge implications for myeloma, says IMF Chairman Dr. Brian Durie. The CRISPR-Cas9 gene-editing was successfully used by researchers to remove dangerous genetic mutations from the genes of human embryos. With this same method, scientists could edit out the mutations that cause the precursor to myeloma, MGUS (monoclonal gammopathy of undetermined significance). “No more MGUS; no more myeloma linked to these mutations,” says Dr. Durie. “An incredible future is possible.” Read Dr. Durie’s blog.

Register NOW for the IMF Regional Community Workshop in Kansas City, Kansas

The IMF Regional Community Workshop in Kansas City, Kansas, takes place on September 9th, 2017 from 9 AM CST to 3 PM CST. Registration is FREE, but seating is limited. The expert panel includes Craig Cole, MD (University of Michigan), Dr. Siddhartha Ganguly, MD, FACP (University of Kansas Cancer Center), Dr. Al-Ola Abdallah, MD (University of Kansas Cancer Center, Kansas City, KS) and a member of the IMF Nurse Leadership Board.


Download FREE Illustrated Educational Slides on Myeloma 

The IMF Nurse Leadership Board (NLB) satellite symposium at the Oncology Nursing Society’s (ONS) annual conference was attended by 835 nurses. Held on May 4, 2017 in Denver, Colorado, the successful event featured a presentation on “Case Studies in Multiple Myeloma: Best Practices in Patient Care and Symptom Management.” The complete educational slide set from this event is available for free HERE.


Calling All Researchers: Submit Your Grant Applications!

The Brian D. Novis Research Grants honor the IMF’s founder Brian Novis, who died of multiple myeloma in July of 1992. The grants are awarded to researchers in the field of multiple myeloma and related disorders including SMM (smoldering multiple myeloma), MGUS (monoclonal gammopathy of undetermined significance), and immunoglobulin-derived amyloidosis. The 2018 grants will fund senior research projects with $80,000 and junior research projects with $50,000. Tuesday, August 1st, 2017, is the deadline for applications.


Plan Your Summer FUNdraiser with the Help of the IMF

Did you know that the IMF has staff members who can work with you to organize public awareness and fundraising events? In the spirit of summer, brainstorm with Suzanne Battaglia, the IMF’s Director of Member Events, about simple and stress-free ways to raise myeloma awareness. Bake Sale? Picnic? Garage Sale? Wine & Cheese Party? Backyard BBQ? Anything occasion you are already planning or would like to plan, we are ready to help you. Contact Suzanne at [email protected]!

How many times can a myeloma patient undergo an autologous stem cell transplant?

In this week’s video, Dr. Brian GM Durie explains when and if a relapsed myeloma patient should undergo a second ASCT.



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