Myeloma Minute: Dr. Durie's Choice of the Top 10 Myeloma Research Studies from ASCO 2019

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| INNOVATION | Latest Research

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Preview: Top 10 Myeloma Research Studies from the 2019 ASCO Annual Meeting

More than 32,000 oncology professionals from around the world will descend on Chicago May 31 to June 4 for the 2019 American Society of Clinical Oncology (ASCO) Annual Meeting. As patients, doctors, and the healthcare media waited excitedly Wednesday afternoon, summaries of nearly 5,000 cancer research studies to be presented in the Windy City were finally unveiled. IMF Chairman of the Board Dr. Brian G.M. Durie sifted through the 210 that focused on myeloma to share with you what he says are the top 10.

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| INSPIRATION | New Time, New Place

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Save the Date for the IMF’s 13th Annual Comedy Celebration

Actor and Comedian Ray Romano once again hosts the International Myeloma Foundation’s 13th Annual Comedy Celebration. Catch Ray in action with an all-star lineup of comedians on Thursday, October 17, 2019, at our new location, The Beverly Hilton Hotel in Beverly Hills, CA. Past performers have included Cristela Alonzo, Hannibal Buress, Danny DeVito, Gabriel Iglesias, Jimmy Kimmel, Marc Maron, Tig Notaro, J.B. Smoove, and many more! Stay tuned for updates about this year’s performers and for ticket information.

The IMF’s 13th Annual Comedy Celebration benefits the Peter Boyle Research Fund and supports the Black Swan Research Initiative®. Thanks to funds raised by this yearly event, the IMF continues to be able to support patients and conduct groundbreaking research. All these efforts bring us closer to a cure!

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| EDUCATION | Workshop

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| INSPIRATION | Shopping

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Register Now for a Regional Community Workshop in Detroit
Visit the IMF Shopping Mall of Leading Retailers

The IMF will host a Regional Community Workshop at The Westin Book Cadillac Hotel (1114 Washington Blvd) in Detroit, on Saturday, June 15, 2019. Registration is FREE, but seating is limited. Learn from and meet one-on-one with myeloma experts to get answers to your questions and concerns.

Visit the IMF Shopping Mall. This page houses portals to leading retailers, including Macy’s, Walmart, Relax the Back, Yoga Outlet, and many more! When you shop any of these retailers, the IMF receives a donation from the company at no extra cost to you. Check the IMF Shopping Mall often by bookmarking mall.myeloma.org. We will continue to add new stores! For questions, please contact Karla at klemus@myeloma.org

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| INSPIRATION | Oncology Nursing Month

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Our Hats Off to Nurses This Oncology Nursing Month

Did you know that May is Oncology Nursing Month? Oncology nurses support and guide patients and their loved ones through the stress of a myeloma diagnosis and treatment, as well as with the anxiety of living with uncertainities of a long-term disease.

This month, the IMF salutes members of our Nurse Leadership Board (NLB) for their experience on the frontlines of myeloma care. The NLB is a professional partnership with nurse experts from leading medical centers. Its mission is to educate nurses, patients, and caregivers to improve patient outcomes. We salute each one of these Myeloma Warriors as they work “by the side” of patients, their families, and their caregivers throughout the cancer journey. Follow our posts at the IMF Facebook page or Twitter feed to see daily spotlights of these nurses.

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| ACTION | Advocacy Alert

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Blue Water Navy Vietnam Veterans Act Passes in the House

On May 14, 2019. H.R. 299, the Blue Water Navy Vietnam Veterans Act of 2019 passed out of the House of Representatives with a vote of 410-0. If signed into law, this legislation would provide a presumption of exposure to Agent Orange for Navy veterans who served during the Vietnam era within the territorial waters of Vietnam, allowing a Blue Water Navy Veteran (including those with myeloma) to make a claim for benefits without the undue burden to prove exposure.

The courts have also been addressing this issue. As a reminder, the U.S. Court of Appeals for the Federal Circuit changed the political dynamic in January when it ruled in favor of Alfred Procopio Jr. He served on the U.S.S. Intrepid during the war and was rejected for VA benefits for his diabetes and prostate cancer. The government has linked both ailments to Agent Orange exposure. The court ruling requires the VA to cover the costs of extending the benefits to Blue Water veterans, regardless of whether Congress passes its own legislation.

That said, the passage of H.R. 299 is still extremely significant as it would cement the intent and right of Blue Water veteran benefits into law and not leave implementation up to administrative interpretation. The bill now moves to the Senate. Rest assured we will keep you updated of its progress. Click the button below to let your Senator know of your support for the bill.

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| INNOVATION | Research Grants

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Calling All Researchers: Submit Your Grant Applications

The Brian D. Novis Research Grants honor the IMF’s founder Brian Novis, who succumbed to multiple myeloma in July of 1992. The grants are awarded to researchers working in the field of multiple myeloma and related disorders, including smoldering multiple myeloma (SMM), monoclonal gammopathy of undetermined significance (MGUS), and immunoglobulin-derived amyloidosis. The 2020 grants will support senior research projects with $80,000 each and junior research projects with $50,000 each. The deadline for applications is Thursday, August 1, 2019.

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| #ASKDRDURIE | Dr. Durie's Weekly Web Video Series

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May 31, 2019
Hiking the Applachian Trail for a Cause
Northeast U.S.

June 1, 2019
12th Annual Czerkies Memorial Golf Outing
Channahon, IL

June 15, 2019
Regional Community Workshop
Detroit, MI

June 29, 2019
Regional Community Workshop
Pittsburgh, PA

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