Myeloma Minute: August 20, 2015

Is Precision Medicine What We Need?

In his blog this week, IMF Chariman Dr. Brian Durie compares two opinions on the value of precision medicine as outlined in recent articles in Science and The New England Journal of Medicine. Although precision medicine is popular and ultimately feasible is it the most cost-effective approach to myeloma? he asks. To read Dr. Durie's blog, click HERE.


Important Update for Myeloma Patients: Selinexor STORM Trials

Selinexor is an orally administered Selective Inhibitor of Nuclear Export, or SINE™, therapy for the treatment of multiple myeloma. Selinexor inhibits the transport of tumor suppressor proteins from the cell nucleus, where they detect cancerous DNA changes and induce cancer cell death. More than 900 patients have been treated with selinexor in phase I and phase II clinical trials and in an ongoing phase I clinical trial, selinexor in combination with low-dose dexamethasone demonstrated favorable responses. To read more about the selinexor STORM trials, please click HERE.


Reach Out to Your Legislators While They Are in Their Home Districts

The IMF Advocacy team encourages you to meet with your Congressional representatives this August—while your representatives are in their home district—to discuss their support of the federal oral parity bills. Hearing from their constituents makes an impact on legislators, and meetings are an ideal opportunity for letting your representatives know about this important issue. Also this month, members of our Patients for Equal Access Coalition (PEAC) are meeting with representatives in Washington, DC. We will send action alerts to advocates who are constituents of those with whom we meet. To write to your representatives and ask for their support of HR 2739 and S 1566, please click HERE.


What Every Myeloma Patient Should Know: Electronic Medical Records

IMF Medical Editor Debbie Birns is featured in a popular and informative video about the importance of maintaining your patient medical records, which debuted at IMF’s recent 2015 Support Group Leader Summit in Dallas. “Medical care in the United States has changed,” she says on the video, and with that change comes the need for patients to take responsibility for having their medical records on hand for new doctor visits and/or hospitalization. To watch this informative 8-minute video on IMF TV, click HERE.


Little Actions Make a Big Difference for IMF Research Fundraising!

When you do your online shopping through the IMF Online Mall, you will be supporting myeloma research. All you need to do is visit the IMF online mall, click on the logo of the retailer of your choice, and you’ll be redirected to their website where you can shop as usual. However, a portion of your total purchase, as much as 7%, will be donated to the IMF. Bookmark the page to easily access it whenever you shop online. To see the list of participating retailers and access their sites, please click HERE.

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