Myeloma Minute: August 13, 2015

Proposed "Value Framework" Could Limit Patient Access to Myeloma Drugs

The American Society of Clinical Oncology (ASCO) has created a "Value Framework" in an attempt to balance cancer drug costs with value to the patient. In his blog this week, IMF Chariman Dr. Brian Durie examines the framework's point system. "I believe the proposed system does not work well for myeloma," he writes, "and if implemented could limit needed drug access for myeloma patients." To read Dr. Durie's blog, click HERE.


Be a Part of the Los Angeles IMF Patient & Family Seminar

The IMF is hosting a two-day Patient & Family Seminar August 21-22 at the Sheraton Universal Hotel in Los Angeles, California. Attendees will receive the latest information on myeloma, access to many of the top myeloma experts, and a chance to share the company and support of other myeloma patients and family members. This event is not to be missed! For more information, or to register, please click HERE

watch the replay here


Updated Spanish Translations of IMF Publications Now Available

Myeloma affects individuals and families around the globe, which is why the IMF is dedicated to providing resources for myeloma patients worldwide. This includes making many helpful publications available in a variety of languages. Recently, the IMF has made some important updates to many of our Spanish-language publications, including our Patient Handbook and Concise Review. Also available for the first time in Spanish is the “What is Myeloma?” tip card. To view all IMF Spanish-language publications, please click HERE.


Register for the September 17 "Veterans Against Myeloma" Webinar

The IMF’s “Veterans Against Myeloma Teleconference Series” will host a free webinar on Thursday, September 17 at 7 PM ET, 4 PM PT titled “The Military Veteran’s Perspective on Living with Multiple Myeloma.” This 60-minute webinar will feature speakers Sandy Kurtin, RN, MS, AOCN®, ANP and Susan Leigh, RN, retired Lieutenant, US Army, and Vietnam Veteran, and will focus primarily on the results of IMF’s Veterans Against Myeloma focus group, current trends in multiple myeloma treatment, and strategies for veterans to optimize their access to resources. To register for the webinar please click HERE.

Watch the replay here


Take IMF's Advocacy Survey on Myeloma and Medicare Coverage

The IMF Advocacy Team will meet with representatives from the Center for Medicare and Medicaid Services (CMS) next month to discuss current drug- and stem cell transplant-coverage policies. To prepare for the meeting, the IMF has created a short 14-question survey regarding your current Medicare coverage and any issues you may have had with it. Please take a few minutes to complete the survey so we can better understand the issues facing our myeloma community and take those to CMS in August. Please note the deadline to participate is Wednesday, August 19. To take the survey, please click HERE

*survey is now closed


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