Myeloma Minute: An Alternative to the ICER Report


Myeloma Treatment Recommendations Should Come from the Experts

A myeloma drug cost-assessment report that IMF Chairman Dr. Brian Durie wrote about in his blog last week continues to raise eyebrows—and considerable ire—among patients. They worry the report’s findings could limit treatment access. As a May 26th hearing on the draft ICER report draws near, Dr. Durie argues that the International Myeloma Working Group offers a superior framework for treatment decision-making recommendations. To read his blog, click HERE.

The IMF's Nurse Leadership Board Publishes a Study in Cancer Medicine

Congratulations to the members of the International Myeloma Foundation’s Nurse Leadership Board (NLB) on the publication of their manuscript, "Lack of Health Maintenance Exams and Risk in Myeloma Patients,” in the journal Cancer Medicine. Dr. Joseph D. Tariman, a founding member of the NLB, is the lead author of this collaborative research paper, which discusses health maintenance and preventative care practices of multiple myeloma patients. The NLB appreciates the leadership of Charise Gleason, MSN, NP and Dr. Lonial Sagar, who provided guidance in all aspects of Institutional Review Board submission and for his insights on manuscript development and revisions. To access the publication, click HERE.


The IMF Advocacy Team Launces New Facebook Pages

The IMF Advocacy Team has launched a new Facebook page and is also debuting pages for the coalitions, PEAC and SPEAC. Here you will find updates on legislation and policies that affect patients that the IMF Advocacy team is tracking. You’ll also receive updates on the fight to pass oral parity legislation on the state and the federal levels. To access the IMF Advocacy page, click HERE. Give it a LIKE and spread the word! Also connect to PEAC HERE and to SPEAC HERE.

Workout for a Cure

Team SYNERGY in Syosset, New York, will host an “Orange Theory” workout at 11:00 AM ET on May 14, 2016, to raise myeloma awareness and help fund IMF research to find a cure. The workout combines energetic music, a talented group of fitness coaches and a high-energy studio—the recipe for an amazing workout. For more information and to register for this event, click HERE.


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