Providing Help
-
Patient Tools
-
In the US, there is a network of 150 myeloma-specific support groups that hold regular meetings. We encourage you to click the button below to locate a group in your area and connect with other myeloma survivors and caregivers. The IMF applauds the efforts and commitment of these groups, and conducts an annual Summit to offer help, training, and...
-
Smart Patients is an online community where patients and caregivers affected by complex illness learn from each other about treatments, challenges, and how it all fits into the context of their experience. Collectively, our experience is a vast and often untapped resource. Together, we can become more expert in our conditions and receive better...
-
-
Caregiver Tools
-
As a caregiver, it is easy to be overwhelmed by caring for a cancer survivor. An important point to remember is that you, as a caregiver, are also a survivor because you, too, are surviving the challenges, responsibilities, and life-changing effects of this disease and its treatment. We have compiled a comprehensive list of agencies,...
-
The IMF produces and maintains an extensive library of up-to-date educational publications for patients and caregivers, as well as for healthcare professionals. IMF publications are available free of charge online and in printed copy by mail. Core booklets and key medical articles are translated into multiple languages. Please click on the...
-
-
Doctor/Nurse Tools
-
In 2006, the IMF founded the Nurse Leadership Board® as a professional partnership to represent nurse experts caring for myeloma patients at leading medical centers. The NLB is improving the nursing care and self-care of patients with myeloma via consensus publications, symposia, multimedia, and research.
-
The International Myeloma Working Group (IMWG) was formed by the IMF to encourage dialog and collaboration among the world’s leading myeloma experts. IMWG members are divided into workgroups. Researchers in each group work together to examine such important topics as frontline therapy, continuous therapy, the role of transplant, genetic risk...
-
-
Contact the InfoLine
-
The IMF’s InfoLine is there for you for your myeloma-related questions and concerns. The InfoLine team consistently provides callers with best information about myeloma in a caring and compassionate manner. The InfoLine is staffed by Paul Hewitt, Judy Webb, and Missy Klepetar.
-
-
Other Resources
-
The Affordable Care Act, passed into law in 2010, requires that beginning in 2014, no one be denied insurance coverage or charged higher rates because of a pre-existing condition such as cancer. Patients also no longer have to worry about being dropped by a plan because they have gotten sick. Patients who are uninsured and under-insured will now...
-
To provide you with as many resources about myeloma as possible, we have compiled links to sites that cover a wide range of topics—from side effects to funding resources. To find psycho-social support in your area, visit Counseling and Support Resources. If you live outside the US, you will find international resources, and to make travel easier...
-
