The Korean Blood Cancer Association
The Korean Blood Cancer Association is a “non-profit organization that helps patients to cope with the disease through economic and emotional support and work on a variety of disease education programs to help people understand the disease and make their life better.” They make periodical publications and distribute them free of charge. The IMF is committed to working with our Korean partners to enhance access to anti-myeloma therapies, and are please the KBCA is involved with clinical trials conducted by the IMF’s Asia Myeloma Network.
Myeloma Australia provides information and caring support to those living with myeloma via specialist myeloma nurses, educates those involved in patient care and treatment, raises community awareness and understanding of myeloma, and works to improve patient access to the latest treatments at affordable prices.
Myeloma Canada is an organization created by, and for, people living with multiple myeloma. Its mission is to improve the lives of Canadians impacted by myeloma by accelerating access to better care through awareness, education, advocacy, community engagement and clinical research. Its Myeloma Canada Research Network is comprised of 24 centers in 9 provinces across Canada.
On September 9, 2010, the International Myeloma Foundation signed a cooperative agreement with the Chinese Health Promotion Foundation (CHPF), an agency that operates under the Chinese Ministry of Health, to promote awareness of myeloma in China and to encourage measures to prevent and combat the disease. This agreement substantially expands IMF’s presence in Asia and will support the thousands of myeloma patients in China. IMF works in close cooperation with the Chinese Myeloma Committee, especially in the area of physician education.
The Czech Myeloma Group (CMG) was established in 1996. The main objective of CMG is to organize and coordinate research and clinical activities in the Czech Republic in the area of multiple myeloma. It ensures that the best current standards of care for patients with multiple myeloma are met. Its clinical studies provide Czech patients with multiple myeloma the access to the latest experimental treatments in the field.
Myeloma Patients Europe (MPE) is an umbrella organization of myeloma patient groups and associations from across Europe. MPE was formed following the merger in 2011 of the European Myeloma Platform and Myeloma Euronet.
AMEN, the Israeli association of myeloma patients, was established in 2005 by myeloma patients for the sake of other Israeli patients and their family members. AMEN distributes information about myeloma, collaborates with medical centers, and accompanies new patients in their first steps of a journey with myeloma .
IMF in Japan
The IMF has enjoyed a long history of patient support in Japan. Efforts are underway to establish a cooperative structure to be able to provide up-to-date information to Japanese patients. As a first step, the IMF is working in cooperation with the medical association, the Japan Myeloma Society, to develop a website in the Japanese language for myeloma patients in Japan.
The IMF Latin America was founded in 2004 in Brazil by Christine Jerez Telles Battistini, the daughter of a patient with myeloma, and Dr. Vania Tietsche de Moraes Hungria, a hematologist who specializes in myeloma. Dr Hungria is the Director of the Medical Clinic San Germano and a member of the IMF’s International Myeloma Working Group (IMWG). IMF Latin America aims to bring to patients and the medical community of South America the same services available today in the United States, the United Kingdom, and Japan.
IMF in Turkey
The IMF partners with the Cancer Support group Kanser Savaşçıları, formally known as Miyelomla Yaşam, which is dedicated to improve the lives of all types of cancer patients in Turkey. Based in Istanbul, it is the official umbrella organization for cancers associations and aims to empower through awareness, education, and support.