Orange County CA

Covid Update

As most of the world is still facing the effects of the spread of the COVID-19 respiratory virus, the International Myeloma Foundation (IMF) continues to recommend that all myeloma support groups meet virtually.

We take the health and safety of our myeloma support group members seriously and will continue to hold our meetings virtually to ensure the safety of our members. For additional updates on COVID-19 coronavirus, please click this link:
Myeloma Patient Safety and the Coronavirus.

Stock Support Group Meeting

For more information, please contact

Kelly Cox  Personal Email: [email protected]

Group Email: [email protected] 

Meeting time1st Thursday of each month from 7:00 - 9:00 PM
Meeting Location UC Irvine Medical Center, Grunigen Medical Library Bldg. 22A, 2nd Floor Auditorium, Room 2107
101 The City Drive South
Orange, CA 92868
Get directions

33.78728, -117.888284

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Welcome!

ALWAYS FREE for patients, family, friends, caregivers, health professionals or anyone wanting to know more about MM or who have questions.

Each meeting addresses various MM-related topics of interest

  • Expert Speakers with Q&A
  • Medications & Treatments
  • Resources
  • News & Current Events
  • Research & Clinical Trials
  • Insurance
  • Open Forum Discussion with Other Patients
  • Plus other related topics
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Upcoming events

IMF Events

No IMF events found.

Support Group Events

Aug 05
Monthly Meeting
August 5, 2021 7:00 pm to 9:00 pm
Sep 02
Monthly Meeting
September 2, 2021 7:00 pm to 9:00 pm
Oct 07
Monthly Meeting
October 7, 2021 7:00 pm to 9:00 pm
Nov 04
Monthly Meeting
November 4, 2021 7:00 pm to 9:00 pm
Dec 02
Monthly Meeting
December 2, 2021 7:00 pm to 9:00 pm
Jan 06
Monthly Meeting
January 6, 2022 7:00 pm to 9:00 pm
Ask doctor durie title card
Ask Dr. Durie Videos
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week in review logo
Week in Review by Dr. Brian G.M. Durie
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imf multiple myeloma informational publications
IMF Publications
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A group of scientists review a test sample in a medical research lab
Research
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Multiple myeloma support group members meet in a group circle to chat
Support
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capitol building
Advocacy
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Leadership Committee

Jim Blohm headshot

Dennis Castro Headshot

Andy Sninsky headshot

Jim Blohm
Logistics
Dennis Castro
Advocacy
Andy Sninsky
Fundraising

 

Online Multiple Myeloma Information Resources

Brian Helstien’s Memorial to Seymour Reinstein
—  online.myeloma.org/netcommunity/seymour
—  www.myelomacrowd.org/celebrating-whats-possible-myeloma-survivor-brian-helstien-completes-1000-days-running/

The Many Adventures of Andy Sninsky

— Video from the Monastery Heiligenkreuz in the Vienna Woods
https://www.youtube.com/watch?v=oAdyby0CaBo

— Cactus Country to Prague Spring 1968/2018
http://www.crazyguyonabike.com/doc/Closingagap2018

— IMF Fundraiser Page
http://give.myeloma.org/BicycleMojave18

— http://bicyclemojave.myeloma.org
— http://www.crazyguyonabike.com/doc/easyrider2015
— http://www.elpasotimes.com/news/ci_27576644/man-bicycling-across-us-stops-el-paso
— http://www.crazyguyonabike.com/doc/Downsouth2012
— http://www.crazyguyonabike.com/volcandy

International Myeloma Foundation
— www.myeloma.org

Myeloma Manager (Free Test Data Tracking Software)
— manager.myeloma.org

Shop and Support the IMF
  shop.myeloma.org

Veterans Against Myeloma
  www.veterans.myeloma.org

The Leukemia & Lymphoma Society
— www.LLS.org

LLS Myeloma Blog
— www.community.lls.org/tags/blog/myeloma_blog/  

LLS Myeloma Patient Eduaction Videos
http://www.lls.org/patient-education-videos/myeloma-diagnosis-treatment-side-effects-and-support

LLS Publications
http://www.LLS.org/booklets

Multiple Myeloma Research Foundation
www.themmrf.org

Multiple Myeloma News
http://www.themmrf.org/news-and-press/multiple-myeloma-news/?sortby=foundation-news,research-news,press-release

CoMMunity Gateway
https://community.themmrf.org/

Find a Clinical Trial Near You
https://www.themmrf.org/living-with-multiple-myeloma/search-for-clinical-trials/

Blood and Marrow Transplant Information Network
— www.bmtinfonet.org

Resource Directory
— www.bmtinfonet.org/resources

Caring Connections Program
www.bmtinfonet.org/services/support

The Binding Site

Freelite® - www.thebindingsite.com/freelite

Hevylite® - www.thebindingsite.com/hevylite

Wikilite.com
— www.wikilite.com/wikilite/index.php?title=Main_Page

NCI Clinical Center Studies
 1.usa.gov/X12H73

Cancer Care
www.cancercare.org/diagnosis/multiple_myeloma

Co-Payment Assistance
www.cancercarecopay.org

A Helping Hand for Finding Financial Resources Co-Payment Assistance
www.cancercare.org/helpinghand?utm_source=Aug16+E-News&utm_campaign=Aug+2016+eNews&utm_medium=email

Free Publications
www.cancercare.org/publications/order

Customized Cancer Resource
- www.cancer.com

Smart Patients (Myeloma Chat)
- www.smartpatients.com/

The Myeloma Beacon
- www.myelomabeacon.com
Patient Power with Andrew Schorr
- www.patientpower.info/health-topic/multiple-myeloma

Myeloma Crowd and Myeloma Crowd Radio
- http://www.myelomacrowd.org/

Doctor Directory - Myeloma Specialists
- https://www.myelomacrowd.org/doctor-directory/

Cancer Connect
- www.cancerconnect.com

Blood – Journal of the American Society of Hematology
- www. bloodjournal.hematologylibrary.org

Blood Hubs - Multiple Myeloma
- www.multiplemyeloma.bloodjournal.org

Managing Myeloma
www.managingmyeloma.com

Myeloma Central (Celgene)
- www.myelomacentral.com

Celgene Patient Support
- https://www.celgenepatientsupport.com/?utm_medium=Email&utm_source=MMC_CPS_Link1&utm_campaign=CRM&_aat=5b402cc380d4f9fd7c8cb3786172bf1d

inPractice® Oncology
-  www.clinicaloptions.com/inPractice/Oncology/Hematologic_Malignancies/ch42_Heme-Myeloma/Pages/Page%201.aspx

Clinical Care Options® Oncology
www.clinicaloptions.com/Oncology/Topics/Multiple%20Myeloma.aspx

Triage Cancer
- www.triagecancer.org

Cancer Finances - A Toolkit for Navigating Finances After Cancer
- https://cancerfinances.org/

Health Insurance Resources
- https://triagecancer.org/healthinsurance?utm_source=Triage+Cancer+Newsletter+Signup&utm_campaign=0be80dabcf-Openenrollment2019&utm_medium=email&utm_term=0_f47b6fc087-0be80dabcf-43936751

Cancer Legal Resource Center
- www.disabilityrightslegalcenter.org/cancer-legal-resource-center

Senior Helpers
- www.seniorhelpers.com

Meeting Info

Note: If you are feeling ill, coughing or sneezing, please do not attend the meeting! Myeloma patients are much more susceptible to getting sick because of our weakened immune systems.  Cold and flu season is even riskier for us. Please be courteous to your fellow patients. Thank You!

The UCI Medical Center (for Google Maps) is located at 101 The City Drive South, Orange, CA 92868. Directions to the meeting are as follows:

5 FREEWAY
From the North:
Take 5 South > Exit State College/The City Drive > Right on The CityDrive >
Left on Dawn Way > Left into Visitor Parking Structure
From the South:
Take 5 North > Exit Chapman Avenue > Left on Chapman Avenue > Left on The
City Drive > Left on Dawn Way > Left into Visitor Parking Structure

405 FREEWAY
From the North:
Take 405 South > Take 22 East > Exit on The City Drive > Left on The City
Drive > Right on Dawn Way > Left into Visitor Parking Structure
From the South:
Take 405 North> Take 55 North> Take 5 North> Exit Chapman Avenue> Left on
Chapman Avenue> Left on The City Drive> Left on Dawn Way> Left into Visitor
Parking Structure

91 FREEWAY (FROM THE INLAND EMPIRE)
Take 91 West > Take 57 South > Exit Chapman Ave > Right on Chapman > Left on The
City Drive> Left on Dawn Way > Left into Visitor Parking Structure

57 FREEWAY (FROM NORTH ORANGE COUNTY)
Take 57 South > Exit Chapman Ave (South of Angel Stadium) > Right on Chapman >
Left on The City Drive> Left on Dawn Way > Left into Visitor Parking
Structure

Note: There is no charge for parking in the Visitor Structure with a valid Disabled Person Placard. Otherwise, 2-hour parking validation is available in the lobby of the Main Hospital (not in the library). Parking without validation is $1.00 per 20 minutes, up to a $16 daily maximum. Parking with validation is $6 daily. Courtesy shuttle is available from outside the structure on the west side. Valet parking is available. Please check with the attendant for locations, hours, and rates.

 

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