Robin Tuohy - Vice President, Patient Support 

25-Year Care Partner | Advocate | Support Group Leader  

Robin has been a passionate and dedicated advocate in the myeloma community for 25 years. Her journey began in 2000 when her husband was diagnosed with myeloma at the age of 36. This personal experience motivated her to join the International Myeloma Foundation (IMF) in 2005, where she focused on supporting patients, care partners, and expanding the IMF’s network of myeloma support groups. 

As Vice President, Patient Support, Robin leads the IMF’s Support Group Team, providing educational resources and guidance to over 150 local and special interest support groups across the U.S. She plays a key role in IMF cornerstone programs, such as Patient & Family Seminars, Regional Community Workshops, and Living Well webinars all designed to provide critical information and support to those impacted by myeloma. Internationally, Robin is involved in the IMF’s Global Myeloma Action Network, helping advocate for the global myeloma community. 

My "why" is rooted in a deeply personal understanding of myeloma and a profound compassion for patients and their families—shaped both by my own experience as a care partner and my professional commitment to the cause. Every step of my journey has been guided by a singular mission: to educate, empower, and unite the myeloma community. My purpose is clear: to ensure that no one faces the myeloma journey alone. Working with the International Myeloma Foundation (IMF), I am honored to contribute to the IMF’s vision of "a world where every myeloma patient can live life to the fullest, unburdened by the disease."