2025 Susie Novis Durie (SND) Educational Grants (https://www.myeloma.org/2025-susie-novis-durie-snd-educational-grants)
The 2025 Susie Novis Durie (SND) Educational Grants
One of the ways the IMF's Global Myeloma Action Network® (GMAN®) accomplishes its mission is by awarding Susie Novis Durie (SND) Educational Grants to patient advocacy organizations to elevate their work. Here are the 2025 SND Grant Recipients:
Armenia: Armenian Hematology Association
“Myeloma Armenia 2025/26 – National Educational Seminars on MM”
The project aims to bring together medical professionals, patients, caregivers, non-profit organizations, and policymakers to raise awareness of multiple myeloma in Armenia; to highlight the emotional and psychological needs of patients; and to facilitate collaboration for better care, earlier diagnosis, and support services. Its objective is to host one-day national educational seminars, six times during the year, in Yerevan. These seminars will feature expert sessions, patient stories, and train healthcare professionals in delivering psycho-social support.
Kenya: AMPATH – The Academic Model Providing Access to Healthcare
“Expanding Early Detection, Access, and Support for MM Patients in Kenya”
This project outlines a time-bound strategy to transform multiple myeloma (MM) care in Kenya by equipping frontline health workers, raising community awareness, and using digital tools to reduce care barriers. Its overall goal is to strengthen patient support services that enhance the quality of myeloma patient care, lead to improved health outcomes, and better patient experiences. This intervention will be expanded through a Training of Trainers (TOT) model, ensuring sustainable knowledge transfer. Collected adherence data will be shared with the National Cancer Control Program and the National Cancer Institute of Kenya to inform national guidelines. In collaboration with the Global Myeloma Action Network (GMAN), this program aims to share insights, gain learnings from member partners, and contribute to GMAN's resource library for global adaptation.
Poland: Carita Foundation
“In The Blood” – A Quarterly Magazine for Myeloma Patients
The primary objectives of this program are the following: (1) To disseminate reliable and up-to-date knowledge about multiple myeloma, including modern diagnostic methods, treatment options, clinical trials, and patient care, in an accessible and patient-friendly format; (2) To foster a sense of community among people affected by myeloma — patients, caregivers, families, and professionals — by sharing personal stories, expert interviews, and initiatives that support peer connection; (3) To increase awareness of the Carita Foundation’s initiatives, including events, support groups, educational programs, and advocacy efforts that directly benefit the myeloma community; and (4) To promote inclusivity in access to information, by reaching individuals who may not use digital platforms — particularly elderly patients or those in digitally excluded areas — through a quarterly publication.
Serbia: Association of Myeloma Patients Serbia
“Knowledge Unites the CoMMunity” – targeted outreach activities
This project aims to empower the multiple myeloma community in Serbia — including both patients and general practitioners — by enhancing awareness, knowledge, and communication about the disease. Through a series of targeted outreach activities (educational workshops and panel discussions), the organization seeks to address the knowledge gaps that hinder early diagnosis and quality care, especially in smaller and underserved towns. Its ultimate goal is to reduce disparities in care and to empower those affected by this rare but serious condition — regardless of where they live. Overall, they would like to send the message that we are all part of the same coMMunity fighting against myeloma.