Susie Novis Durie Educational Grants, created to help member organizations of the IMF’s Global Myeloma Action Network (GMAN) increase education, awareness, and access to treatment.
Due to the COVID-19 pandemic, SND Grants focused on digital projects that would leverage the need of patients.
The 2020 Susie Novis Durie Grants Were Awarded To:
Armenia (Digital Awareness Campaign)
Armenian organization Armenian Hematology Association (AHA) had digital projects that aims to increase the awareness in myeloma. Translation and production of IMF education information into Armenian, creation and launch of the professional website designed for patients, educational lecture module for patients, caregivers and doctors, and an international teleconference at multiple myeloma awareness day were the topics of that campaign.
The creation of a patient website is the most exciting part of this project, because this link became the first webpage created specially for myeloma patients in Armenia. The most recent and verified information provided by healthcare specialists now available for individuals with multiple myeloma. The website intends to answer all major questions associated with multiple myeloma by containing all necessary information regarding the epidemiology, procedures related to diagnostic workup, management, and treatment. Contact information of medical centers, as well as specialized doctors in the field of hematological oncology, will be publicly available for an easier arrangement of regular distant visits and checkups.
Argentina (Safe Transportation Program)
Argentinian organization Fundacion Argentina De Mieloma (FAM) had another project for SND Grants. “Safe Transportation Program” provides safe transfers for myeloma patients who had to go to the hospital by public service. FAM intended to provide those low-income patients who cannot take a taxi or private car. FAM designed an awareness campaign, highlighting the benefits of not interrupting treatments due to the impossibility of reaching care centers. And at the same time, publicize the shuttle service that the Foundation can give them: the assistance for transportation safe, hygiene, and private.
Due to the COVID-19 pandemic, we know that there are many patients who have had to interrupt their treatments not being able to go to hospitals. Or they had no alternative to travel by public services transport exposing themselves to the challenges that pandemic brought to them. For this reason, this project is a perfect solution for safe and effective patient transportation.
Romania (Medical Support For MM Patients)
Romanian organization Myeloma Euronet Romania (MER), proposed a project with two activities: One is related to the harvesting from home of the minimum required blood tests when a MM patient is in an emergency status, such as hemograma, renal tests and calcium and/or to establish his fitness to continue his /her treatment for multiple myeloma. It is well known that MM patients are the most vulnerable patients when it comes to viruses and their travel to the hospital, most of them by public transportation such as trains/metro will expose them to an enormous danger. The idea is to conclude a contract a laboratory in Bucharest, which have brunches at the national level, to commission this blood tests harvesting. In addition to the minimum required blood tests for a MM patient, they can also get a COVID-19 test is there is any suspicion of infection.
The second activity relates to the establishment of a platform on line for telemedicine which the patient can access and ask for online consultation. The doctors will have access to this platform and will give the required medical assistance to MM patients in need. This online platform for telemedicine will be of paramount importance particularly during the pandemic because the doctors will evaluate whether their patients must go to the clinic immediately or wait until the situation becomes more stable and the danger of infection is reduced to minimum.