Around the World in 72 Hours with the IMF

72 Hours, 5 Countries: A Snapshot of the International Myeloma Foundation's Global Impact

From May 4th through May 6th, the presence of the IMF resonated around the world—from educating oncology nurses in Colorado to co-hosting the first patient seminar in Belgium. In his blog this week, IMF Chairman Dr. Brian Durie leads a visual tour of events with connections to the organization’s work worldwide. “Reflecting on the many activities the IMF was involved with around the world this past weekend, I realize how lucky we are and how critical it is to be part of so many wonderful and important collaborations,” he writes. Read Dr. Durie’s blog.

IMF Releases Statement on House Passage of AHCA

On May 4th, the American Health Care Act (AHCA) narrowly passed the House of Representatives. The International Myeloma Foundation released a statement highlighting some of the concerns with how the bill could affect myeloma patients if it becomes law. IMF policy analysts believe this legislation will change substantially if it moves through the Senate, and we are actively monitoring the situation.

 

Calling All Researchers: Submit Your Grant Applications!

The Brian D. Novis Research Grants honor the IMF’s founder Brian Novis, who died of multiple myeloma in July of 1992. The grants are awarded to researchers in the field of multiple myeloma and related disorders including SMM (smoldering multiple myeloma), MGUS (monoclonal gammopathy of undetermined significance), and immunoglobulin-derived amyloidosis. The 2018 grants will fund senior research projects with $80,000 and junior research projects with $50,000. Tuesday, August 1st, 2017, is the deadline for applications.

 

The 2017 Concise Review Available on Amazon Kindle

The 2017 edition of the Concise Review of the Disease and Treatment Options is now available for Amazon Kindle devices. In addition, IMF’s educational publications Understanding Clinical TrialsUnderstanding the Immune System in Myeloma, and Understanding Pomalyst® (pomalidomide) capsules have been updated for 2017. All are available as FREE PDF downloads at www.myeloma.org/publications.

 

IMF to Host Regional Community Workshop in Buffalo, New York - June 17th, 2017 

The IMF-sponsored Regional Community Workshop in Buffalo, NY, on June 17th, 2017 is open for FREE registration. The event will feature myeloma experts Dr. Philip McCarthy (Roswell Park Cancer Institute), Dr. Pallawi Torka (Roswell Park Cancer Institute), and Deborah Doss, RN, OCN (Dana Farber Cancer Institute).

 

 

IMF Patient & Family Seminar in La Hulpe, Belgium - A Success!

The Belgian multiple myeloma support group MYMU (Wallonie Bruxelles) and the IMF held their first Patient & Family Seminar in La Hulpe, Belgium on Saturday, May 6th. The event was attended by 200 participants, and featured speakers Dr. Rafat Abonour (Indiana University), Dr. Jean-Luc Harousseau (University of Nantes), Dr. Chantal Doyen (Namur Hospital), Dr. Marie-Christiane Veekmans (Saint Luc Universitaires), Dr. Khalil Kerkar (CHwapi Tournai), and psychologist Mina Milani (CHwapi Tournai). Created in 2006, MYMU is the official French-speaking myeloma support group of Belgium. Currently, Belgium is participating in a national study for myeloma treatments that has so far accrued more than 250 myeloma patients.

Does using daratumumab make response-monitoring difficult?

In this week’s video, Dr. Brian Durie explains how daratumumab may interfere with response-monitoring and with blood transfusions for myeloma patients.

BOTTOM LINE:
​If you are taking dara, discuss response-monitoring with your doctor. 

 

 


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